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Anyone have a SPD kiddo?

post #1 of 10
Thread Starter 

My 2nd oldest son has a sensory issue with his diet. He has limited himself to approx. 10 foods. We recently just started going to an OT for feeding therapy. Just want to know I am not alone and if you all have any tips that could help me help my son I would love to hear them. TIA!!

post #2 of 10
You are not alone. I'm sure that your ot will be able to give you the best advice for your child.

For my dd, we found that canned fruits and veggies were better tolerated than fresh due to the texture.
post #3 of 10

No concrete suggestions, but BTDT! My YoungSon ate about 4 foods (mainly popcorn) until he was about 8. Then, he had a "choking incident", in quotes because their really was no incident, just his perception. Anyway, he put himself on a clear liquid diet: water, grape and apple juice, and homemade chicken and veggie broth I had to strain through cheesecloth. He lived on this for about 9 months. He did take gummi vitamins, but really ate nothing else. We went to feeding therapy; no progress. Tried all sorts of ideas, but generally, I just ignored it. One day, he simply got over it. Sat at the table and ate whatever the rest of the family was eating. My jaw dropped into my spaghetti! Somehow, through all those years, he grew and remained extremely healthy. Today, he is 17, 6 feet tall, in great shape, physically very active. He eats everything except mashed potatoes or anything that texture. So the sensory issues have not totally gone away, but are so manageable! I don't mean to discourage you from therapy. Just wanted to say that even it it doesn't show quick results, your child will be OK!

post #4 of 10
Thread Starter 

Thanks you guys!! Linda on the move, I will try canned with his OT and see if he will do that.He did try canned green beans (he used to eat those) but now to him the texture is similar to bugs. :) 
Mamarhu, Wow!!! I think my jaw would drop and I would do the craziest dance I have ever done (of course, not in front of him). with excitement!! Did you just take deep breaths and let him decide when and what to eat? I have been finding myself getting so upset with him and just not helpful.That's when we both decided an OT may help.

post #5 of 10
Second that. I had quite a few sensory issues with food as a child. I gradually grew out of many of them by adolescence. Still have a few but it's way more manageable now.
post #6 of 10

hi there

 

my ds is nearly 3, has some spd behaviours, is also a late talker and has severely limited his diet, we're working with OT and dietician on his 'food neophobia' as they call it.

i have a hard time with how to explain it to family/friends who dont understand that this is so much more complex and different to just 'toddler picky eating'. i'd love to chat over some of this stuff with other mums who 'get it'. One thing i've been told by those who have experience treating it is that its a long road and you just have to keep going and being consistent with the strategies.... sigh.... but its discouraging some days... one thing we've been trying is 'food chaining'. no success yet but we soldier on! 

 

 

just curious if anyone has a kiddo with oral defensiveness which makes teeth brushing a problem? any tips? he just bites the toothbrush, and how on earth do you handle a visit to the dentist?! 

 

thanks!

post #7 of 10

My son couldn't handle the dentist, either. I was lucky to go to great pediatric dentists and they basically only did what he could tolerate. One great suggestion they made was to buy him an electric toothbrush. He couldn't tolerate it at first but slowly he could handle it for longer. But basically he got no teeth work done until he was almost 7 and even then they could just barely do the teeth polishing thing - he still can't tolerate the flouride treatment (the mouth trays make him gag). Luckily he inherited my strong enamel - 45 yrs old and never a cavity! :)

 

I can also relate to the food issues. Unfortunately I didn't really know what we were dealing with for the longest time. And although I was also a very picky eater as a child, it was nowhere near on the scale of my children. My one regret is trying to push them to try things and eat, on the advice (more like "intense pressure") of well-meaning but misguided relatives. It only made things worse. My one piece of advice is that whatever you try, if it makes mealtimes stressful don't do it. 

 

I'm hoping my children grow out of it as I did. Otherwise it's too late for us now (had I known when they were toddlers I might have been able to help them deal with it). I have come to terms with their diet being limited and heavy on the processed foods. Not how I ever intended to feed my kids but hey, you take the hand you are dealt with, right? ;)

post #8 of 10

thanks for the reply piglet68 - its good to have a reminder that pushing him wont help, and good to hear other people have grown out of it.

the electric toothbrush is a great idea! i'm going to have to research a pediatric dentist who might have experience with kiddos with these kinds of issues.

i'm a bit slow at learning to play the hand i'm dealt with on this one, it's humbling for sure! i get anxious about too much carbs and dairy (pretty much only eats soft white foods,ugh, but will take a smoothie now and again so i cram in as much green as i can!) in his diet, ideally i'd like to try a gf/df diet as ive heard of it helping spd symptoms but that would mean there was nothing he could tolerate and he'd starve! so i guess i'll have to wait on that one...

post #9 of 10
Definitely find a dentist who understands SPD...it makes a huge difference. Honestly sometimes you have to sedate kids In order to get dental work done. I never thought about my issues with the textures and dental procedures as being related, but it makes sense...
post #10 of 10

Hi again

 

Just thought of another thing that was helpful - I'm not sure what age your son is but lots of food play was recommended by our OT as part of my sons therapy. My son also has self limited his diet to only a few foods, and for us the initial goal is just to get him looking at and touching foods that are 'not preferred' (ie they make him cry if they are on his plate!) 

Things like

finger painting with pudding or anything that would work as a fingerpaint (my son didnt go for this as he hates messy hands!)

rolling games with oranges, blueberries, apples

driving cars through rice/pasta (uncooked i assumed!)

stacking crackers/toast

 

i realise that thats only appropriate for younger kiddos but the other thing our OT said which applies to any age was to get him involved in the preparing and serving of the food without the pressure of the expectation that he eats it. What seems to be key is removing the pressure and 'normalising' the eating experience. Family style meals where the food is served at the table was recommended. Also having sectional plates that separate the different foods, and always offering a preferred food along with the new/different food.

 

All the best! 

Lottie :)

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