My daughter is 8. She's been diagnosed with ADHD and Absence seizures that progress into grand mal if not regulated with medicine. We've been struggling with her medications (which is typical for some kids), but in the mean time she still has to go to school and to her summer programs, which is the purpose of this thread.
No matter how much explanation I try to lend to school officials and care takers, they still seem to miss the point that some of her behaviors are caused by the seizure activity itself. She can be defiant in that when she is having a seizure, reasoning with her is like trying to explain the existence of the cosmos to a brick wall: It's just not happening. She becomes angry or fearful and acts accordingly, though her normal baseline is generally sweet and outgoing. The only thing that can be done in this situation is give her a quiet space to cool her jets until she feels like she can deal with "normal" activities again, but, such as this morning, when I try to explain this to them, they deny that it has anything to do with seizures and act like she's trying to get out of having to do things. I suspect that they also do not give her transition warnings (such as "We're going to clean up in five minutes") to help her cope with the ever changing tide that is a school or school like environment.
Because of their inability to recognize these things, I'm considering homeschooling my daughter. She's globally delayed as a result of her condition (I estimate that she's probably blanked out on half of her experiences). She has sclerosis of the hippocampus which makes learning even more difficult for her and she continues to fall further and further behind because it would seem that no one knows how to deal with her issues appropriately, even the special ed teacher (her school doesn't have a very good rating to begin with, so I'm sure you can imagine what kind of malfeasance is going on there). My sister is an educator in the same district, so I feel like it would be of embarrassment to her to withdraw my child from their system (her school has an excellent rating in spite of similar demographics to my daughter's school). I feel like my daughter's making it clear that these environments are not suitable for her, in spite of the fact that she enjoys going. I realize the need to have her engage in social activities, but as it pertains to her school work, I feel like the more children and noise there is around her, the less she is going to be able to process and understand. What would you do if presented with a similar situation? Would you take your special needs child out of school if you thought it was doing more harm than good?
(She does have an IEP, a behavior plan, and as I said, I have tried to explain what's happening, but I've had it up to my eyeballs. If we continue with public education, I feel like I'm going to have to contact the Epilepsy foundation to have them come in and explain what's happening with my daughter because they're just not listening.)