Not wanting to start any arguments here.
DH and I have been reflecting on all the stuff we've tried/are trying with DS over the past year and a half that we suspected then confirmed that he has a autism spectrum disorder. One of the reasons is that DS is starting daycare/preschool in the fall and this is bringing a new and very big expense that we are fitting into the budget and along with all the supplements and special foods (and consulting with therapists, books for help and info etc.) that DS gets it's a lot. Yeah, I know kids with special needs are expensive and of course it's worth it. I'm just reflecting on what has seemed to work with DS and what's made no difference and curious about other's experiences too.
I've been back and forth about the GFCFSF diet for my son. We took him off it very briefly after he seemed to make big developmental strides last summer, he wasn't gaining weight and we questioned if the diet was making a difference and if limiting what foods he could eat was a good idea. Then he had a really bad spell of worse sleep, behaviour, etc. But that also coincided with some big changes in our lives. So he's back on it and has been for the past 11 months. And he's had big ups and down during the time in what we've witnessed as a cycle of big steps forward along with occasional steps back- so we've often wondered if the diet is even doing anything. It is a big expense for us- living abroad the GF and dairy-free soy-free options are few and very very expensive in our part of the world. So now that he's starting school and we will have other people keeping a close eye on DS's behaviour we think we'll try him off it after a few weeks of school- once they've seen his behaviour on the diet they can compare with us to how he is off of it.
And I've also tried supplements - B6 magnesium etc. I've never really seen any difference. DS does take other vitamins and minerals and supplements that I would normally give him anyway so those I'm not questioning (D, Calcium, fish oils). It's the special regiments that are expensive for us (again, these are more expensive living here).
As he gets older and he notices that he is on restricted diet and that he takes all these supplements it kind of sucks too. A small part of it is just us wanting him to enjoy the things we did as kids- an occasional ice cream treat (we can't find dairy or soy free here), birthday cake, not having to take pills every day.
Anyway... So what didn't work for you? How did you come to the conclusion that it wasn't working?