Feeding is hit or miss. Very limited food range. He does food jags where it is one food for days/weeks at a time and then he will refuse to eat it again. Sometimes he gets a broader range, still not normal, and sometimes he eats almost nothing for weeks at a time. He tends to only eat a couple times a day. His ability to recognize thirst or hunger is certainly a struggle. We struggle with weight loss. Looking back, now I realize that all of his favorite foods over the years, (he is four) , have been soft foods. Foods that are easy to eat. Starting in April, he started having periods of gagging and vomiting on preferred foods. Once he does that on a food, we can cross it off his list of foods he might be wiling to eat. He also started making noises while he eats at the same time, like a humming noise. Somedays he eats only Popsicles, strawberries, and juice boxes. Right now he is in a hamburger jag because he thinks they are Crabby Patties so we are going with that. Any other food beyond those, he may or not not attempt to eat a couple bites of. He truly doesn't care if he doesn't eat all day.
He is low tone, we struggle with it daily. He has always been a noisy, messy eater and I think he struggles with food placement in his food along with trying to breathe at the same time. Fine motor control to get the food into his mouth is also interesting. I had an intake call yesterday for an intensive feeding therapy clinic. Resources in my area are very limited so anything beyond what we currently do, I would be traveling 350+ miles for. They would want him to do a four week, five time a week, intensive and would require daily OT as well. $$ of course. We would have to charge it, nothing new to us. We are drowning in therapy/medical bills. Living expenses for me across the state and child care for my other three children that would have to stay behind, are going to kill us as well. So the feeding therapy has to be worth it. I know no one can decide that for me but I would love to hear other's experciences.