Hi. I usually just read forums, looking for advice but never comment since I don't ever have any to give! :) But today is a good day to throw our story out and get some feedback.
DD is 6 months old, with a diagnosed seizure disorder, which was diagnosed and treated at 6 weeks. She developed a feeding aversion right before 3 months and was hospitalized for FTT. The week there only resulted in frustration, but due to gavage feedings with expressed milk she gained weight appropriately. We decided to hospitalize her because she had lost head control and was losing muscle tone. We were terrified. The feedings restored her tone and head control!
Oddly enough, the aversion ended there and she has been nursing well, though I do have to pump to maintain my supply because she only sticks around for one let-down per breast and is never interested in comfort nursing. She enjoys solids and eats animal foods and coconut oil, avocado, and papaya 1 or 2 x per day. She has been nursing well, with an on-target diaper count for both urine and stooling. I offer expressed milk in a spoon-tip bottle, but she rarely even drinks an ounce, so I assume she is satisfied.
She receives early intervention services 1x per month by a special educator. She gives us hand-outs on feeding, language development, etc.... For our family I feel like this service has been minimal help because ther handouts are simply common sense activities that have already been happening in our home (ie. read to your baby, play finger games, prop them to sit, etc...) And though I didn't specialize in early childhood, I am a special educator as well.......
Her 6 month well-baby was a real blow. I expected her to fall of the chart weight wise, but I was not expecting her to go a solid month without gaining even an ounce. She did however maintain her head circumference and shot up nearly an inch and a half. The doc was very concerned about her development and recommended more frequent services. I personally feel that she is within the normal parameters for development, though she is on the later side. She has only missed one milestone, and that is saying "goo" and any other type of babbling. She can sit unsupported briefly, but sometimes tips to the side without bracing her arms. She rolls both directions and pivots but does not scoot. She only shrieks occassionaly, but makes a wide range of gurgles and razzes. We personally find her to be very expressive. She is not interested in tiny objects yet and doesn't have a pincer grasp yet (which I would expect, it is a bit early in my view....).
I don't know that I have any specific question but I am looking for thoughts. We have another weight check in 2 weeks. She's currently 12 lb 11 oz, 25.5 inches. She sleeps well most days and night, waking anywhere from 2-4 times in a night for a feeding.
She has seen a GI specialist 2x, and we both agree she doesn't seem that she has any GI distress. We saw him last month, and at that time I was confident she was simply a small baby. But today I have no confidence.
I suppose by bottom line is: I am comfortable with having a baby that is not on the charts, provided it is her unique pattern. I'm just not sure this is truly a unique pattern and not a real problem. I feel like I can't trust my instincts because I waver so much and am plagued by thoughts that it is somehow my faut for not feeing her enough.
Thanks for listening to me vent, though we don't actually know one another....