I hope someone can help me figure out what is going on with DS. He is having random stinging, pins and needles sensations all over his body. They started out maybe 10-20 per day a few months ago and now they are literally every few seconds. Sometimes he also has bubble sensations and once in a while he says he feels a cool sensation. There is no rhyme or reason to the pains. Can occur anywhere and at any time. His GP said she did not have enough info to go on. I new we had to do something so I thought it could be related to nerves, so I got a referral to a neurologist. She did an exam in her office and said he seemed fine to her. She did blood tests for celiac, thyroid, vitamin D, Vitamin B12, and iron. She said his ferritin level (blood stores - different than amount of iron in the blood from what I understand ?) was low. It was 22 and they like to see it above 50. He has been on an iron supplement (Floradix - about 45 mg per day) for about 10 days and I see no difference. Dr. said it could take 2 weeks, but I honestly don't think that is the problem because he has no other low iron symptoms (not tired, pale, etc.)
Has anyone else had this type of problem? I really don't think he is making this up, it is too random and he has never been they type of child to make things up like this.
I am so sad that he is hurting all the time and so lost as to what to do next :( Thanks in advance for any advice!