My five year old son, A, is a very smart, loving and sweet little guy, but we are struggling since school started. He started kindergarten almost a month ago now, and transition has been HARD!
He has been diagnosed with Sensory Processing Disorder, ADHD, Anxiety Disorder NOS, low muscle tone, and also has Epilepsy, multiple lesions in his brain's white matter, and he also has asthma. The asthma, thankfully, has been the least of our issues. He has a chronic cough type of asthma, which is wonderfully controlled with Qvar.
He has been evaluated by the JFK Center for Autism and Disabilities in Denver, CO, and they gave us a wonderful assessment and treatment objectives. His IQ testing was absolutely off the charts, he excelled in all the testing in terms of intelligence. His comprehension scores are exceptional, but it feels like he just doesn't "get it" when it comes to his behavior.
Behaviorally, we are struggling greatly. He refuses to listen, and even though he can repeat back to me in his own words what I have told him, and he intellectually gets it, but doesn't make it into real world sense. For example, he has a chewing habit, part of the SPD. I purchase for him a myriad of different chew "toys" like stretch bracelets, pencil toppers, hand held chew sticks, etc. He loves them, and uses them, but when I tell him not to put something else into his mouth, he repeatedly does it. It seems like he does it defiantly, just to get a rise out of me. On Sunday, I caught him three separate times putting small rubber lego wheels into his mouth and chewing them like gum. We talked about the dangers, he promised he would stop, and then, bam, he's back at it. I made him throw them away, and he found some more, and was back at it less than an hour later.
He has become exceptionally whiny, complains and back talks, and is overly dramatic about every.darn.thing. No amount of punishment/consequence, discussion, redirection, anything, is working. He always promises that he is going to never whine again, never going to be naughty again, yada yada, but it is just words and he doesn't mean it. He often tells me that he can't help it, his "brain makes him want to be naughty."
We have a treatment plan to set up with his school, including an IEP with accommodations made for occupational, physical, cognitive behavioral and speech therapies, but the school has informed me that while they are reviewing all of his records and the recommendations from JFK, they won't have an IEP in place, or therapies started, until after Thanksgiving. I honestly don't know if we are going to make it that far without mama completely losing her head. I know that the therapies are going to be greatly beneficial, but until then, yikes!
I could really use some advice on some things we can do at home to tame the energy, the whining, and some sort of technique that would get through to him about behavior and consequence. He even chooses his own punishment for things, and that doesn't work. No TV for a week? Doesn't even phase him.
Anyone out there with some magic advice? :)