I am thinking more and more that wheat is the enemy in this house. Sorry this is long but trying to give the whole picture and would love some advice/feedback.
I had no issues with wheat at all that I am aware of until my 4th baby was born and was milk and wheat intolerant through breastmilk. I was GFDF for 15 months and then he seemed to outgrow it as far as GI symptoms. I however, started to have trouble with it. The first week I introduced it, I had a headache almost the whole time. I started gaining weight rapidly. I had issues with dairy as well. My oldest three kids from my first marriage are mildly on the autism spectrum and I have read that undiagnosed celiac in mom can contribute to the development of autism in her children. All of my older boys have the accompanying GI difficulties but as teens are pretty anti-dietary changes. We tried a GF diet for 2 weeks and they pretty much freaked out the whole time.
My 5th baby was also milk-protein intolerant. We avoided most gluten containing foods for him, though he was on a hypoallergenic formula due to colitis and so I continued to eat gluten. At once year we trialed a "regular" diet and he had a complete relapse. He seemed to react to wheat terribly and we fed him GF for a while. Then it seemed to abate around 18 months. He was ok with small amounts of dairy and wheat, so we thought. But over the next six months he totally fell off his growth curve! He actually lost weight, going from a BMI in the 50th percentile to the 8th in those months. He also struggles with chronic constipation and is now on daily Miralax because it was getting so bad. He just turned 2 and we go for another weight check next month. I am trying to get more calories in him but at the same time am wondering if the foods he is eating are making things worse! I am not sure what to do.
Back to DS4, he started having behavior issues last year (age 4). I noticed they were so much worse when we ate gluten as compared to not. I remembered as I though about it that he got more moody and aggressive when we started wheat as a toddler. Though his bowels were ok, I remember he started hitting us for the first time ever. We trialed a GF diet from January to March of this year and it was helping him a lot but then I got pregnant and I couldn't keep up with all the scratch cooking GF requires and you start to think maybe its all in your head anyway, yk?
DH started having health issues as well in the last year, including GI bleeding and severe fatigue. He was diagnosed with mild sleep apnea. His colonoscopy was clear but the GI said his colon seemed "irritated" and very sensitive and to look for connections in his diet - especially dairy or wheat. DH has reported that he tends to bleed the day after we eat something like pizza. He broke out all over on his thighs earlier this year and its getting worse. The pictures look very similar to me to celiac rash - though DH says it doesn't really itch. It fits the description otherwise as a pimple like bump that blisters, pops and leave an open sore that eventually heals over, leaving a purple mark for months. He also gets these on his arms, as well as having psoriasis on his arm, which I have read can also be connected to celiac. He has a hard time believing he could have celiac as he grew up on homebaked bread but I know it can happen at anytime and he struggled with depression as a child and teen and young adult - something that can be connected to undiagnosed celiac.
So back to our 4 yr old, he also has a bumpy rash on his bum that looks like pimples. He's had it since he was in diapers. It makes me wonder if it is related to celiac or gluten sensitivity as well. Both he and I have what you might call IBS symptoms that come and go.
I am not one to subject myself or my kids to lots of diagnostics so I really hesitate to go in and start the process of blood draws and biopsies. I could just do a long GF trial and see if it clears up everyone's issues but on the other hand, its easier to commit to when you have solid evidence that its necessary.
What do you think? Am I on the right path here? I am 36 weeks pregnant and if gluten is an issue for me, DH, and our kids, I want to know now before I have another sick newborn. Oh, I wanted to add that both DH and I have a diagnosis of ADD and we recently read that celiac disease is higher in the ADHD population. I also struggle with anxiety and depression.