Elimination diet and she is still having issues
-Did your infant receive a rotavirus vaccination? Dtap?
-do you have (breast milk) oversupply?
-is your infant on vitamin or flouride drops?
I found some interesting threads here on MDC also:
Edited by Asiago - 11/3/13 at 3:14pm
Too much Foremilk can cause bloody stools (just as allergies can).
How often does she nurse? How is her growth and development?
Do you know if the GI specialist is knowledgable about human lactation? One thought is bring a lactation consultant into it, one who will work with the GI specialist.
One basic suggestion that I overlooked.....contacting Le Leche League. A phone call to a local leader may be very helpful as blood in EBF infants stool is not all that uncommon, and is a typical Le Leche League subject.
Edited by Asiago - 11/4/13 at 12:15pm
You may want to consider seeing a Board Certified Lactation Consultant. In severe cases overactive ejection (sometimes misnomer-ed as "over supply") can cause blood in the stools if the baby isn't getting to the hindmilk and is getting only very high lactose foremilk.
There are management techniques for Overactive Ejection that may help the situation. One of the most common is to take the baby off the breast during the first ejection (let down) of every feeding, especially the early morning feeding, and letting the foremilk flow into a clean burp rag, then after about 20-30 seconds, when the milk stops spraying, put the baby back on the breast. Then, if the baby is over a month old, you can use that breast, as much as the baby wants to nurse, but ONLY that breast for about a 4 hour period. When the "block" is over, you start on the other breast, of course taking the baby off the breast during the ejections. Then use that breast, as often and as much as the baby likes for about 4 hours. Then repeat.
Did the doctor do a RAST test on the baby for the supposed allergies? (Babies under 2 don't usually have histamine reactions, so allergy tests are iffy. Just don't get the "drop under the tongue-push the arm down" tests, they are useless according to evidence based data) Has imaging of the baby's GI system been done? If so, what was found? Was it barium XRay imaging or was a small colonoscopy camera used?
I've worked with a few babies with something akin to inflammatory bowel disease who had these symptoms and controlling OE (if the mom had it) using some Lactase directly to the baby to break down the lactose in the milk (usually only necessary in rare cases) and having the bowel disease treated properly got the babies a lot better.
If it were my baby and the "treatment" wasn't helping much, before eliminating more and more foods from your diet, I'd get a second opinion with both an MD allergist and a different GI specialist.
I never got to baseline with DS4. I was on a TED most of his first year and while he survived he certainly didn't thrive. He fell off his growth chart by the end of that year, though he grew in length and met milestones. Still it was very, very rough on me, on him and on our family. When his little brother came along and had blood in his stool at 3 weeks, I knew I couldn't do it again. I made the difficult choice to wean him to hypoallergenic formula at 4 weeks. The blood immediately disappeared. He slept well, he gained. His first year was not marred with constant anxiety at every bite, every diaper. It was still a very hard decision and there were lots of tears shed at first, but it was the right decision for him and for our family. Sometimes doing what is best for our kids includes shifting some long held ideals and priorities. Just wanted to share that so that if you reach the point I did you will know you are not alone and its ok.
I just had to make the same difficult decision with my 5 month old; while I'm relieved at how happy and well she seems now, and that, like you said, the anxiety over every bite and every diaper is gone, the grief is overwhelming. (I think partly because this baby is my last.) How long did you feel you were wading through the tears?....