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Elimination diet and she is still having issues

post #1 of 12
Thread Starter 
I have been on the total elimination diet for almost a whole 2 weeks now and I haven't seen a change. In fact this morning I have seen more blood in her stool than I have ever seen before. I only eat bananas for breakfast, and for lunch and dinner it's the exact same rice, turkey, patties, zucchini, and an avocado. I had a few mess ups when my husband cooked in vegetable oil( which is soybean oil) I'm just wondering of I should give up the breastfeeding and switch to elecare. I am at a total loss and want to do what's best for her in the long run. I just wanted to get other moms feed back on what they have done in the past as well. The GI doc wants me to keep on the diet for 2 more months but if she is bleeding and we can't figure out the allergy wouldn't that be worse to keep going down this road? I know that breastfeeding is best but is it really in her case?
post #2 of 12
How old is your baby?

-Did your infant receive a rotavirus vaccination? Dtap?

-do you have (breast milk) oversupply?

-is your infant on vitamin or flouride drops?

I found some interesting threads here on MDC also:
Edited by Asiago - 11/3/13 at 3:14pm
post #3 of 12
Thread Starter 
My baby is 11 weeks old and its a no to all those questions except I do have an over supply and a forceful let down. I will check out that link. I actually cut out rice and have seen not near as much blood as before and some diapers are starting to look like normal consistency.
post #4 of 12
That is wonderful (regarding rice and improvement). I do wonder though about the over supply. Does baby finish one breast before falling asleep or indicating that she is finished and would like the other, or do you switch her before then?
post #5 of 12
Thread Starter 
Up until just yesterday she has never finished one side she would always pull off before it was empty. I only put her on one side at a time because she never finished one and wanted another.
post #6 of 12
I have been trying to get my son to a baseline and someone posted a link about foods that are cross reactive with gluten. Rice is one of them, so if stools are better without rice, the allergy might be to gluten, and since the proteins are similar could react to rice (and most other grains). I don't know how to link from my phone, but if you google "foods cross reactive with gluten" you will find a list of 19 or so foods to avoid. If you eliminate those foods, it will basically put you on the paleo diet (without eggs). I avtually feel spectacular since doing it and its making a big difference in my son too. So much better than corn syrup solids. Tbis is such a hard process, but you can do it! I always had a nagging feeli g that formula would be easier....but what if the formula makes her sick too? There are tons of paleo and GAPS blogs where you will be able to find awesome recipes. HTH!
post #7 of 12
Thread Starter 
Thank you for the info I am going to try that. My GI doc did tell me to stay away from beef because of how since its all from the cow it can share all the same protein. I just ate potatos tonight so I'll leave them out tomorrow.
post #8 of 12
Also it takes a few weeks for the dairy and gluten to clear your system, so you should hopefully start to see some big improvements soon.
post #9 of 12
Originally Posted by Jmerowens4 View Post

Up until just yesterday she has never finished one side she would always pull off before it was empty. I only put her on one side at a time because she never finished one and wanted another.
Okay that is helpful information. It is possible that she may not be getting much Hindmilk, therefore consuming a lot of Foremilk.
Too much Foremilk can cause bloody stools (just as allergies can).
How often does she nurse? How is her growth and development?
Do you know if the GI specialist is knowledgable about human lactation? One thought is bring a lactation consultant into it, one who will work with the GI specialist.
One basic suggestion that I overlooked.....contacting Le Leche League. A phone call to a local leader may be very helpful as blood in EBF infants stool is not all that uncommon, and is a typical Le Leche League subject.
Edited by Asiago - 11/4/13 at 12:15pm
post #10 of 12

You may want to consider seeing a Board Certified Lactation Consultant. In severe cases overactive ejection (sometimes misnomer-ed as "over supply") can cause blood in the stools if the baby isn't getting to the hindmilk and is getting only very high lactose foremilk.


There are management techniques for Overactive Ejection that may help the situation. One of the most common is to take the baby off the breast during the first ejection (let down) of every feeding, especially the early morning feeding, and letting the foremilk flow into a clean burp rag, then after about 20-30 seconds, when the milk stops spraying, put the baby back on the breast. Then, if the baby is over a month old, you can use that breast, as much as the baby wants to nurse, but ONLY that breast for about a 4 hour period. When the "block" is over, you start on the other breast, of course taking the baby off the breast during the ejections. Then use that breast, as often and as much as the baby likes for about 4 hours. Then repeat.


Did the doctor do a RAST test on the baby for the supposed allergies? (Babies under 2 don't usually have histamine reactions, so allergy tests are iffy. Just don't get the "drop under the tongue-push the arm down" tests, they are useless according to evidence based data)  Has imaging of the baby's GI system been done? If so, what was found? Was it  barium XRay imaging or was a small colonoscopy camera used?


I've worked with a few babies with something akin to inflammatory bowel disease who had these symptoms and controlling OE (if the mom had it) using some Lactase directly to the baby to break down the lactose in the milk (usually only necessary in rare cases) and having the bowel disease treated properly got the babies a lot better.


If it were my baby and the "treatment" wasn't helping much, before eliminating more and more foods from your diet, I'd get a second opinion with both an MD allergist and a different GI specialist.

post #11 of 12

I never got to baseline with DS4. I was on a TED most of his first year and while he survived he certainly didn't thrive. He fell off his growth chart by the end of that year, though he grew in length and met milestones. Still it was very, very rough on me, on him and on our family. When his little brother came along and had blood in his stool at 3 weeks, I knew I couldn't do it again. I made the difficult choice to wean him to hypoallergenic formula at 4 weeks. The blood immediately disappeared. He slept well, he gained. His first year was not marred with constant anxiety at every bite, every diaper. It was still a very hard decision and there were lots of tears shed at first, but it was the right decision for him and for our family. Sometimes doing what is best for our kids includes shifting some long held ideals and priorities. Just wanted to share that so that if you reach the point I did you will know you are not alone and its ok. 

post #12 of 12

I just had to make the same difficult decision with my 5 month old; while I'm relieved at how happy and well she seems now, and that, like you said, the anxiety over every bite and every diaper is gone, the grief is overwhelming. (I think partly because this baby is my last.)  How long did you feel you were wading through the tears?....

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