Hi, I am new to Mothering and this forum! My daughter Abigail has a diagnosis of Apraxia of Speech--with minimal oral motor weakness. Apraxia is a neurological disorder is where a person knows what they want to say, but the brain is unable to communicate the message to the muscles of the mouth. Apraxia can be developmental or aquired. Aquired apraxia is what would happen to someone who had a stroke or traumatic brain trauma. When Apraxia is developmental there is no known cause--they aren't even sure if it happens in utero or post birth.
Approxiamtely 1% of all children have Apraxia--but Apraxia is hard to diagnosed and very often "hides" in umbrella disorders such as autism.--so that figure is by no means accurate.
Abigail is currently 5, she got diagnosed when she was 3 by one of the lead authorities on Apraxia, Nancy Kaufmann, in W. Bloomfield, MI(right outside of Detroit). We spent 5 weeks at her clinic for intensive speech therapy and it was so neat to meet other parents from all over the country(NY,CT,VA,FL, CA) who were dealing with Apraxia also!
We were blessed to have another speech therapist through the school district continue with the Kaufmann method of treatment. Finding a school district to do the one-on-one therapy can be very hard--and private therapy is so expensive(ie 150 per 1/2 hr) and getting insurance to pay can be a nightmare(as I am sure you can all relate!).
Abigial is doing very well--she just finished a year of OT due to upper body weakness(typical of apraxic children)--we have years of therapy ahead and no idea how well her speech will or will not progress. When your dealing with the brain anything is possible. I am glad that we got her diagnosed so young and that she has had these 2 years of therapy before entering kindergarten this fall.
So, that's our story! Nice to meet all of you!