Hi!My ds,almost 3,has a congenital heart defect calledTetralogy of Fallot
.He had open heart surgery to repair the defects at 11 weeks old.He's amazingly healthy.He was home in 5 days,and is doing great.
He does have quite a few other issues.He's only recently been talking,and while we can understand him 95% of the time,most others can only understand about 40% of the time.He's such a sweetie.He was behind in physical development(sit up around 10 months,crawled around 12,walked at 17 months but with lots of falling,now he can run,jump,climb,there is no stopping him,lol!),and he has many of the signs of autism.He hand flaps,toe walks,echos many of the things we say,cannot answer questions very well,seems to ignore us when we are talking to him,he has many sensory issues due to what I believe the pain of his surgery,screams hysterically whenever anything changes(if we take a different way home,have to go out,etc),and loves to watch things spin(will spin the wheels on his trains and cars,will spend hours spinning the wheels on his Daddy's skateboard if we let him along with his hand flapping),hates any loud sounds,and LOVES trains,batteries,and fans(although he is terrified of most fans,but will spend hours watching our window fan).He will only play with his Thomas trains.He'll spend hours watching the battery powered ones go along the track.
We have a very hard time going anywhere,which is very hard on his big sister.She wanted to go see Garfield the movie,so we went.Thankfully my Dad was with us(dh works 70+ hours every week,so he isn't too involved unfortunalty),because ds couldn't even get throught the previews.He was hysterical.He was shaking,and sobbing.The management of the theater was very nice and gave me a full refund for ds and myself.I don't drive,so we were stuck 30 minutes from home,and had to wait for dd and my dad.Thankfully there was a small specialty toy store,and they had a Thomas train table.I let him play for a while so he would calm down.I bought him a train since we were in the store so long,and let him climb on the benches outside while we waited.We wanted to go to Six Flags,but I don't think that will happen.He's been asking everyday to go to Day Out With Thomas,and I bought him a video that shows what will happen there so he knows what to expect,so hopefully that will go ok.
I can never find a babysitter,as no one is sure how to deal with ds when he has an outburst.I am the only one who can calm him.I love him so much.I am just so grateful to have him.I just wish I had some time with just my dd(she's 6).Everywhere we go with ds I have to have the sling(luckily he's only about 30 lbs,because I carry him a lot) or the stroller,because he just runs off,and will kick,scream,bite,etc whenever someone tries to pick him up when he's trying to run off.
On a positive note,he can be very affectionate(but he will try to bite while hugging),loves to say I love you,and he's potty training himself!!I am so PROUD!!!He will also share almost anything when asked,and tries to be helpful by bringing me things he knows I use,even when it's not the right time,lol!
Sorry I made this so long,I can never write a short post,lol!
SAHM to dd,6,and ds(3 in July!!!)