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MAJOR behavior changes through diet!!! - Page 6

post #101 of 121
Update: Now we are seeing major behavior changes through diet too. Our oldest son is more alert, and communicative, and comes out with the family five hours a day or more, which he didn't used to do. He gets more and more "normal" everyday...It's like getting our lost son back.....

I am so so emotional right now. But thanks for this thread and all of your help
post #102 of 121
Thread Starter 
Best Births, that is wonderful news! Keep us posted!
post #103 of 121
Dear All,

It is so very encouraging to hear your success stories w/ diet intervention!! We began the GF/CF diet for our twins 7 days ago, and so for I have noticed may positive behavior changes in our more severe PDD-NOS twin -

Less anxious
More calm
Able to SAY how he feels
Less "weird" behaviors when agitated (makes a face like a silent scream)
Less tantrum-like reactions to things not going his way
Less overall behavior issues

We are seeing a DAN Dr on Feb 1st, so we won't know until tests come back after that point as to what other foods might be affecting him (ei soy, corn, egg, etc). I sure hope that just keeping gluten and casein away are the key, its hard enough finding things they like without having to worry about eggs and corn... my heart goes out to all of you who are doing the "diet thing" with your kids - It. Is. Hard.

Meg
post #104 of 121
It took me a couple hours, but I finally read through this whole thread last night.

I have read Doris Rapp's book, Is This Your Child?, and I believe my son may have allergies/sensitivities. By reading this thread, I think I'm going to start with eliminating dairy.

I want to learn more about gluton and a GF/CF diet. If anyone has anything to say about these, please do! I'm new to this and I want to do the best for my ds... as we all do. I do not know anything about gluton! I'm guessing it has to do with bread?

I make my own bread and was thinking about eliminating wheat, but I'm afraid to. So I guess I'll start with dairy and see how it goes.

Thanks so much for this thread!
post #105 of 121

Gluten

I agree, it is a monumental concept, just removing dairy (casein) from one's diet, esp a child's!! Adding in gluten as an elimanent is difficult at first, but once you've shopped a place like whole foods a few times on the lookout for GF/CF foods, it becomes much easier each time to fill your cart with items that your child CAN eat. I even found GF/CF oreo cookies by Newman's Own, and they taste great!!

Gluten is in more than just breads and products containing wheat - its even in some ketchups, so just read labels (I suggest not bringing any kids w/ you the first few times you go, my kids were going BANANAS in the isles while I read away!)

There is a website about this if you're intested:http://www.autismdiet.com/ and I know other moms here on this board will have some links too...

Best of luck getting started, it really does get easier after a week, which is what I found...and you have to give it about a month to give enough time to see results. But honestly, we started seeing results by day 3.

Meg
post #106 of 121
Thank you, Meg. We have a Whole Foods that's about 20 minutes away. The only problem I'm afraid I will run into is the $$$ of all the foods. I'm sure we'lll manage, though.
post #107 of 121
My ds has never been diagnosed with anything on the autism spectrum, but I wanted to consider doing a dairy free (and after reading, most likely a casien free) diet for behavior issues.

I'm not sure if doing a gluten free diet is necessary, but then again, I don't know much about gluten. If anyone can offer any insight about gluten when it comes to behavior that would be great! I need all the information I can get!
post #108 of 121
Thread Starter 
Quote:
Originally Posted by kimmie-pooh
If anyone can offer any insight about gluten when it comes to behavior that would be great! I need all the information I can get!
there is a different reason and response for a Celiacs person who responds well to diet changes then there are for a child on the spectrum who benefits from the autisim diet.
In non medical terms, the child with celiacs is having villi damage because their own body is fighting the gluten back and destroying healthy villi in the intestine. Some of these children have gut issues that they can often recover from quickly with a gluten free diet. Some others have much worse off gut problems and need to not only go gluten free but pursue candida or specific carb diets.

The children who see behavior changes for the better on the "autisim diet" are said to have systems that create peptides by not properly breaking down protein chains. The majority of the peptides go through the urine, but some go to the brain and cause behavior problems and for some chidlren, autistic behavior.

Now, it is not even as simple as just that because some children have a stronger reaction to the casien and others to the gluten. Some will have celiacs on top of this.
I think that Bean's problems stem from gluten, although she may very well have been on the spectrum with or without gluten. Some of her characteristics are still present and will be, but the difference is that with the diet changes, the bad or inappropriate behaviors have stopped.
That is a pretty big difference.

So, while she also had diarrhea (chronic) and immune failures, that leads me to believe she had celiac or gluten sensitivity in addition to the peptide response to gluten/dairy.
post #109 of 121
Also toxins released from bad bacteria and yeast from an intestinal flora imbalance causes behavioral changes... "Breaking the Vicious Cycle" describes this. They are alcohol-like and produce similar behavioral changes (some kids get silly, some get angry... like happy drunks and mad drunks do!)

Organic Acids Test are often done to dx this.

Actually BTVC also connects gluten intolerance and major behavioral conditions like bipolar and seizures too if I'm remembering correctly.
post #110 of 121
to make the die off less while dealing with yeast, I just started giving ds GSE (grapefruit seed extract) a yeast killer, then MCT liquid, then an hour later a cap of charcoal to absorb the die off. At the same time I just started giving him Candex which is a yeast killing enzyme which isn't supposed to have die off. At each meal I give him one of each of the houstons enzymes...
Sometimes inbetween meals I have given him silva solution which is for bacteria but has no die off.

low sugar on the diet. Except the only way he can take his C is if I take one emergen c (5 grams of sugar) and then add another 2000 grams of c with vit crystals, he does this four times a day so that is 20 grams of sugar a day...until I find another way to dose the C.

Our son's day is 31 hours because he sleeps 10 and is awake 21, so I need to figure out how to dose a day like that (I plan to ask the aut/merc list). I was thinking, just add the vitamin doses every 4 hours of the awake hours?? But I'm going to check first....

He has been moody, and exausted more than ususal, but I told him it was because of the die off. We are STILL seeing gains, but he FEELS worse. I think it is because he is a. more alert to how he always felt (like crap) and b. having yeast die off. I haven't started him on the 25 bill probiotic yet because I didn't know if it would be too much too soon....maybe will start that in a couple days, then after that bottle is gone up it to 50 billion of probiotics...then 75...
post #111 of 121
Yikes on the 31 hour cycle, and I thought my DS's sleeping was horrendous!! You poor mama.

How old is he?

What's silva solution?
post #112 of 121
Thread Starter 
Quote:
Originally Posted by JaneS
Also toxins released from bad bacteria and yeast from an intestinal flora imbalance causes behavioral changes... "Breaking the Vicious Cycle" describes this. They are alcohol-like and produce similar behavioral changes (some kids get silly, some get angry... like happy drunks and mad drunks do!)

Organic Acids Test are often done to dx this.

Actually BTVC also connects gluten intolerance and major behavioral conditions like bipolar and seizures too if I'm remembering correctly.

Jane, thanks for adding that! And it is interesting to hear that there is a correlation being made between the gluten intollerance and bipolar disorder. That disorder seems to be much more prelevant!

Bean is healed in all regards, but still reacts to gluten. I strongly suspect her to be Celiac, but I am forever curious to know which came first, the chicken, the egg, some gluten, a vaccine, celiac disease, food intollerance, autism, candida...oh what I would give to KNOW the answer to what started this rolling ball for Bean and for all of us!

Maybe we'll figure it out someday, but in the meantime, it is good to be healed and on a restricted diet. I am hopeful the newer enzymes we are trying will allow me a bit more freedom in foods, but I'm skeptical.
If it keeps me from getting sick when I eat at my family members houses, though, that would be very good!
post #113 of 121
Silva Solution Kills bacteria and helps with flu, nausea, chills, etc. It kills bacteria without die off. It improved ds breath.

I'll be short because I just lost a long post. I think the selinium we have given ds for the past 3 days may be shortening his awake cycles, because yesterday's was a 13.5 hours awake, and today was 11.5 hours awake! The sleep has stayed basically the same. He has had 20 hour awake cycles on a regular basis since he was 12 years old which is when his autism really regressed (he is 16 now). Cracking the sleep cycle problem could be a major breakthrough and part of his cure...because insomnia is one of his biggest symptoms.... I read about circadean clock today on google and it was wild. I guess all this time I thought the odd sleep was just part of his illness or a quirky unschooled teen thing. We never looked at it as a sleep disorder before. According to google and what I read about circadean clocks today, I guess 20 hour awake cycles are very abnormal....

My son is 16, so the sleep cycles are a hassle for feeding him, and yes, pretty much a hassle we are used to. If he slept normally it would transform his life....

things look so promising...EVERYTHING we have done so far seems to have given us tremendous gains...I feel like the luckiest mom ever to have found this information about autism and diet. Thanks Again to everyone!!!!
post #114 of 121
oh and I should add, silva solution tastes like water...we joke that we ought to sell water for 17 dollars a bottle...but no kidding...this stuff works....

After taking fish oils, it is just so nice to take something that doesn't taste horrid though...and this is EASY to take!
post #115 of 121
WOW i cannot tell you how happy i am to have found this thread , this was just what i was looking/hoping for! I just read everypage and a lot of the websites posted, lots of great info. my ds who is 3 has been having behavior issues and has always had "smushy" diapers which border on diahrread most of the time. I learned early on he couldnt eat corn or he would get wacko crazy and if he drinks straight milk he gets diahrea from that too, and yogurt, but he has continued to eat cheese.
anyway its' 3 in the morning lol i need to go to bed but wanted to bump this and say THANK YOU for having this thread, it is aweseom. we will be starting ds on a dairy free diet w/in the next week, and gluten free too, but now i'm wondering if i should not do both at the same time? I had planned on doing both but wonder now if i should start w/dairy and then do gluten? Thank you again
post #116 of 121
Another update on ds, now he is awake days at 6 am like us and goes to bed at 12 pm like us. His friends are all commenting that he is much nicer to them. He spends all day with the family and interacts like "normal". His die off from the yeast is over. He went through his first round of chelation with the DMSA without negative side effects. He is now taking solaray 1000mg vit C capsules with acerola and rosehips 8 caps a day instead of the emergen C. We have tweaked his supplements a bit, and he takes about 10 caps of different things 4 times a day. He went no sugar for a month, and now when he has sugar there has been no negatives. This weekend he gets 2 rootbeers for the superbowl party we are having with him and all his friends. We are serving gluten free pantry brownies, chili, baked beans and salsa that they dip in gf potato and corn chips. Ds friend that is over here and hasn't seen ds since he began this diet and treatment says he thinks ds is going to be "cured", which is deep down my hope and my gut feeling...that we are really onto something big....a cure.
post #117 of 121
Thread Starter 
That is a fabulous update!
post #118 of 121
Hello all! I came here to start a new thread of questions for all you wise mamas but whew! I think this thread answered many of them (and then some!)

I love reading about all of your stories and especially the updates.

I am just beginning to learn about all of this. SHort version: dd2 is currently on enzymes - it's helped her reflux IMMENSELY - no more meds! Her *allergy* eyes, dark circles are gone (almost).

I started the elimination diet and then we went to a naturopath/chiro who did muscle testing and said that broccoli and rice were suspect. (That and turkey were all I was eating - with little improvement). Once we stopped broccoli and rice things started improving - oh and with both of us taking enzymes.

I know I should do a rotation diet, but geez, what do I do? Eat only potatoes for 4 days, then only brown rice for 4 days, then only turkey for 4 days? It seems that's all dd can tolerate right now.

This is all confusing especially since she has also started eating solids. So . . . I have to watch what I eat, AND what she eats.

Her sleep has improved. Some nights she does a 3 hour stretch - some nights only 1 and 1/2 all night long.

I'm really starting to suspect gluten too (though I didn't at first). So, here's another question for you mamas:
Can I take one Peptizyde AND one *overall* enzyme at each meal just to be safe? It can't hurt can it? (I've been taking what our naturopath gave us called Chiro DGST.)

Thanks so much for this great thread!
post #119 of 121
Thread Starter 
I just re read through this whole thread. I never mentioned that I did do the Specific Carboydrate Diet for Bean or that she was actually diagnosed with autism and no longer has any of those autistic traits.
I did mention those things in this thread:
http://www.mothering.com/discussions...ghlight=autism
And there are some great related discussions there too (and testing ideas from other members)

Just thought I'd add it to the pot!
post #120 of 121
Quote:
Can I take one Peptizyde AND one *overall* enzyme at each meal just to be safe? It can't hurt can it? (I've been taking what our naturopath gave us called Chiro DGST.)
Our son takes one peptizyde, one zyme prime, and one no phenol with every meal. On meals where it contains more of an item, I may give him more. I muscle test for the amount.

He usually needs only one no phenol capsule with apple cider or a meal. Zyme prime, maybe two or three if the meal has lots of fats or carbs, then the afp peptizyme, only one, unless their is gluten and casein in the food, in that case it would be four pills to every 2 pieces of pizza with one candy bar, or eight pills to a footlong sub from subway.
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