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MAJOR behavior changes through diet!!! - Page 3

post #41 of 121
Quote:
Originally Posted by wholegrainmama
It all seems so overwhelming, though.. especially when everyone else in our family can eat a seemingly "normal" diet and is fine. Not that we all wouldn't benefit greatly as well, but still. It's such a paradigm shift for my dh.. it has taken him a lot longer to get out of the "I grew up on that stuff and I am fine" mindset.
I had to LOL at your DH :-)

Mine is the same way. He's diabetic, I've got "Mystery Illness" (Is it CFS, IBS, PCOS? Who knows?) our eldest daughter is undiagnosable, but completely insane, and the little one just wonders what the hell is wrong with everyone else!

A year ago, our diet was:
Breakfast: weet-bix (think shredded wheat, but flaky) and milk
Lunch: Whole wheat bread, cheese and cold cuts (real meat, not bologna)
Dinner: variable, but usually one of 3 things.
spaghetti and homemade sauce,
mashed potatoes, veggies, and chicken or beef.
veggie-and-meat stir-fry with rice

That was around the first time I brought up GF/CF to my DH.
He just said "No."
Now, usually, he doesn't *refuse* me anything. He may argue, persuade, tease... but outright refusal is just *so* not him.

He said that we were eating a perfectly healthy diet (and according to the "mainstream" advice, it was an excellent diet!) and there was no reason to go eating hippie-food.

So I started reading things to him while I was online, mentioning things to him while we were driving (captive audience) and taping *short* articles to the wall in front of the toilet :-)

6 months later, as if it was *his* idea, he comes up to me and says "I've ben thinking maybe it's time to try some dietary interventions for Sam. What do you think?"

So we went GF/CF.

*His* diabetes is about 50% better, he's lost that middle-age-spread, his *hair* is thicker, I was feeling better, and our daughter was acting like a human child rather than a wild orangutan baby!

And then it got bad again.

I dunno if we got glutened or if we just need to look at some of our other food items, (I'm suspicious of potatoes and the bacon that he won't give up, and <sigh> corn and eggs) but I'm sick again, and the wild monkey has taken my daughter's place again. She's even back to poo smearing and wetting herself for no apparent reason. And she *never*, *EVER* shuts up. Not even in her sleep!

Suddenly DH is saying "I guess the diet isn't working, eh?" and I'm back to printing out potty-reading for him .

But I'm not giving up!

I just wanted to let you know there's someone else out here with a stubborn hubby who is still gettting there (albeit slowly)

And if you have *one* family member with diet-related issues, it really is worth putting *everyone* on the diet for a while to see what happens. We never expected *him* to be the one with the greatest and most lasting benefit out of this! And the amazing (though short-lived) improvement to my health was also astonishing and well worth experiencing.
post #42 of 121
Thread Starter 
Selena, from what i"ve been reading, the gut is damaged and after that initial improvement upon going GF/CF, the replacement foods can start to bother the person in the same ways if the gut is still damaged. It will take time to heal.

You can either rotate your foods on a 4 or 5 day cycle to help prevent them from getting overloaded in your system (which is VERY difficult) or you could consider trying some of the enzymes from here:
http://www.enzymestuff.com/

There is a lot of info on this site, and the option to buy or check out the books from the library.

I am going to try this enzyme:
Peptizyde

My hope is that it will help heal the gut for my girls and myself much more quickly and we will hopefully even be able to add dairy again someday. I Will not ever add gluten again because I suspect my daughter to be Celiac, and enzymes will not cure Celiacs, but if it is a gluten sensitivity, some people ahve reported the with the enzymes they are able to add gluten and dairy into their diet again. That sounds like a LOT of wishful thinking at this stage, BUT I would be very encouraged by an enzyme that is targeting the right foods and healing the gut!
I can't wait to try it out
post #43 of 121
I have a few enzyme sites bookmarked :-)

I started looking into them when the potatoes started looking suspicious, but I have some reservations about them:

1. cost! we're already about broke just keeping up with the "fresh, in-season veggies"!
I'm learning some cheaper ways of cooking, but I think we can financially afford rotation a lot more readily than upps

2. foreign substances. We can't even find vitamins supplements that the older one can tolerate! So far, *pure* EPO and a calcium/magnesium liquid are the only things that don't make her *nuts*. I just don't relish the stress of going through more of the reactions that she had to the zinc and selenium supps... and don't get me started on the "all-organic, hypoallergenic, *safe* multivitamin! I thought we were gonna have to physically restrain her to kepe her from hurting herself.

3. availability. haven't found any locally (we're in New Zealand) and I don't mind buying diapers online, but dietary supplements are a bit more finicky

So while it not that I have discounted the *idea* I just don't think we'll be able to put it into *practice* any time in the forseeable future.

I do appreciate you making the suggestion, though
post #44 of 121
Thread Starter 
then a rotation diet would be a very good idea for you guys, I think.


We did this for a while. It is kind of tricky at first, but if you make out your menu ahead of time, it isn't so tricky. It helps to have freezer space
post #45 of 121
Well we have a big freezer and we've hardly used it since we went GF/CF, so that's no problem :-) (I used to do a lot of frozen dinners and stuff, but no more!)

I'm waiting 2 weeks for some testing before I do any more dietary changes.
(Had to go back on gluten to be re-tested for celiac Disease)

But then I need more info on it first anyway... and more energy! <LOL!>
post #46 of 121
Quote:
She only gets about 8oz of juice a day, mixed with additional water (too much sugar previously).
I just wanted to let you know (just in case ) that juice almost always has corn derivitives in it. Ascorbic acid, any kind of vitamin fortification, and sweetners are the likely ingredients to watch for.

My ds had a wide range of bizzare behaviours (like "zoning out", never sleeping, hyperactivity, twitching, obsessive behaviours, avoiding eye contact, and lack of coordination just to name a few) that we have attributed to his corn allergy. You really have to be careful with corn because it is in everything. Even in many "safe foods", the manufacturers will claim that it has been reduced to a level that corn allergic kids can handle, but many cannot.

Only original rice milk is safe and majority of soy milks are out. For kids who can handle dairy, only whole milk is safe. My ds reacts to EVERYTHING corn based. Even many craft supplies in schools have corn product in them.

Corn is the #1 allergen to affect behaviour from what I have discovered. My ds still has issues (mainly due to his personality and abilities) but nothing like before we eliminated every single corn product in his diet.

I am so glad to find this thread, all families need to know that food may be causing or contributing tho their child's problems. It has made such a difference for us
post #47 of 121
Damn!

My first thought was "No, no! The stuff we buy is just juice!" But then I got up and read the label and it's also got ascorbic acid and "flavor".

What, do I have to grow and juice my own fruit, too?
post #48 of 121
Thread Starter 
freerange, thanks! I didn't know that about absrobic acid. I have been watching for Dextrose and corn syrup, of course.
I will check our labels again!
post #49 of 121
Quick thought: labels don't always tell you everything you need to know because manufacturers are not required to list an ingredient that makes up less than 2% of a product. For example, my son has a yeast allergy. Many all-natural juices have yeast added to enhance sweetness, but yeast is not listed on the label. The only way to be safe is to call manufacturers. And even known "safe" products can be suspect because ingredients can change.

On the plus side, this has made me practice my whole-food ideals in a way that nothing else ever did. Yippee?

Tara
post #50 of 121
Quote:
Originally Posted by thoesly
Quick thought: labels don't always tell you everything you need to know because manufacturers are not required to list an ingredient that makes up less than 2% of a product. For example, my son has a yeast allergy. Many all-natural juices have yeast added to enhance sweetness, but yeast is not listed on the label. The only way to be safe is to call manufacturers. And even known "safe" products can be suspect because ingredients can change.

On the plus side, this has made me practice my whole-food ideals in a way that nothing else ever did. Yippee?

Tara
Not *another* hidden ingredient!

AAARRGGHHH!!!

Okay. I'm gonna start a lobbying group for legislation requiring *full disclosure* of ingredients and processing methods on all food packaging.

Hang on. I'm already lobbying to reduce packaging!

AAAARRGGGHHH!

I just can't win!

Yeast!

So now we can't drink any of the juice we can actually afford, either!


post #51 of 121
Quote:
Originally Posted by Silliest
Not *another* hidden ingredient!

AAARRGGHHH!!!

Okay. I'm gonna start a lobbying group for legislation requiring *full disclosure* of ingredients and processing methods on all food packaging.

Hang on. I'm already lobbying to reduce packaging!

AAAARRGGGHHH!

I just can't win!

Yeast!

So now we can't drink any of the juice we can actually afford, either!


Hugs!!! I totally get where you're coming from. What's that line in the Jimmy Buffet song? "If we weren't all crazy, we would go insane."

Slightly off-topic -- or maybe not -- as of 2 months ago, all apple juices were safe (but not cider), Welch's concord grape juice was safe, and the RW Knudson line of juices were safe. Good luck!

Tara
post #52 of 121
<LOL!>

We are big Buffet Fans around here
(thank goodness! It really *does* help keep us sane)

I *desperately* miss Welch's grape juice! I was practically weaned on it (which probably means it's actually poison to me, right? ) but we don't get it in New Zealand.
Nor do we get those lovely Welch's fruit-juice popsicles that I lived on in college

We *do* have something called the "Manufactured foods database" which is a website that is *supposed to be* a listing of all manufactured food products available in New Zealand, with complete information about their ingredients. It's also supposed to be searchable by substance-free-status.

Like I can theoretically pull up a list of everything that's gluten, soy, AND dairy-free.

Unfortunately, it is not complete. Many imported foods are not listed at all, and I strongly suspect that the "hidden ingredients" are not accounted for in all cases.
It is, at the very least, a place to start looking, though.

The juices we drink are "Fresh-Up" brand concentrates that come in those obnoxious juice-box packages. They are on the "safe" list when I use the MFD site and search for gluten/dairy free status, but I obviously need to check further.

The Rice Milk we use is "Vita Soy" brand and it lists only
brown rice, water, calcium phosphate, and sunflower oil.

It is the *only* milk-substitute that comes up on that list as being gluten/dairy free.
Obviously, I need to check *that* more thoroughly as well.

Got any good recipes for homemade rice-milk?
I've tried a number of times, and it's always pretty yucky

We can try growing our own fruit and juicing it, but that'll take a while :LOL

At present we have bumper crops of lemons and grapefruit.

The peach tree is in blossom, so *maybe* we'll get peaches this year, but none of it compares to the apple, orange, mango and other blends we could get from Fresh-Up.

Dammit.

Then of course there's the juice we can get at the local hippy-dippy-whole-organic-blessed-by-pendulum-swinging-eath-sucking-tree-hugging-druid-food-eater's shop, but that's about 6 bucks a pint!

Can I make *grass* juice? :

That's about all that we have a lot of around here (it's sheep grazing country)

How about V-8 juices? (not a chance, right?) They're "imports" here, so they're not on the MFD website and I've been dying to know if they're safe.

(Still not cheap, but not *so* bad)

Everything else on our supermarket shelves is a "juice drink", not a natural juice.
post #53 of 121
Thread Starter 
I buy mango pulp and just mix it with water to drink as juice. I hope that is okay?!

As for gluten free rice milk, we use WestSoy brand rice milk (previously westbrae) and we've been told that it is gluten free

I have made it at home and I think it is good homemade, but my girls don't like it and they refuse to drink it!
They are used to the ricemilk in the box, I guess.

We don't drink much juice here at all. Maybe a litre a week?
We do drink a lot of tea and rice milk, though.
I started adding water to their rice milk because they refuse to drink water, so this way they have to drink it if they want milk.
So sad, I know...
post #54 of 121
Here is a pretty thorough list of corn ingredients. It is pretty limiting if your child reacts to all of them (mine does). http://www.theconnorswebsite.com/cornallergens/list.htm

HTH
post #55 of 121
Thread Starter 
Free Range, I just saw that list for the first time yesterday and I am so MAD!

Bean has still been fighting GI problems and here I thought I was doing so well with her diet, and she is getting corn in so many areas that I didn't know about!

We live in Iowa and I never thought I'd say this, but right about now I HATE corn
.........pouting........

We use Xantham gum a lot in baking, I found out the meat we've been buying is loaded with dextrose
the vitamins and absorbic acids...oh brother. I don't know where to start and where to stop.

I thought we were doing so good!
sniff sniff...

Now I have to wonder about the houston enzymes. What ARE they made out of anyway? I wonder if they're safe for a corn, egg, gluten, soy, dairy, partial legume free diet?
post #56 of 121
LaLa,

That is so hard. I was shocked when I discovered how many corn products ds was still getting. I had a big knot in my stomach that didn't go away for weeks. I was so worried about all the damage I was doing to him when I thought I was being so careful. Frustrating!! Thankfully our only other allergy is oats, although I want to have RAST testing done to rule out soy, wheat, and a few other things because I worry he may still be reacting on some level.

I wish you luck in figuring it all out
post #57 of 121
:

You know what really makes me sick, is how many times I've heard parents ()and even my own husband) say
"We tried dietary intervention and it was a *disaster*!"

To think how many of those families *might* have had good results if only we had truth in labeling

And another thing!
The pharmaceutical industry freaks out about misleading claims made by supplement companies, the supplement companies (let's face it, they're companies, not charities. They market to a perceived niche, they're not "out to help us") freak out about the sins of the pharmaceuticals, half of them are in bed together anyway and you can barely manage to sort the advertising from the information even if you *are* a freaking genius...

and it's all pointless if we can't even get safe *food* to eat!

post #58 of 121
Quote:
Originally Posted by LaLa
but if it is a gluten sensitivity, some people ahve reported the with the enzymes they are able to add gluten and dairy into their diet again. That sounds like a LOT of wishful thinking at this stage
From everything I'm reading on GF/CF sites, it does seem to be wishful thinking, sadly. I'm still figuring this all out but wanted to offer some info, too.

Quote:
We continue to hear reports of parents being told that enzymes can replace the GFCF diet for autistic spectrum kids. In fact, there is so much potentially harmful misinformation being spread that we feel we must speak out. Parents must understand that for most kids, enzymes are NOT
a substitute for dietary intervention.
Quote:
We have only heard from a handful of parents who claim that their children can substitute enzymes for the GF/CF diet, and two of these parents may be linked to financial interest with a particular enzymes manufacturer. To be fair, we assume that there are more people who have genuinely found this to be true, but there may be other reasons. For some children, once the gut is healed, the diet may no longer be necessary if there is no true allergy to milk or wheat.

However, a great number of "diet responders" who go off the diet suffer from a severe regression days or even weeks later - with or without enzymes. The letters we receive about this are heartbreaking, and many parents tell us they are extremely angry with the enzyme manufacturer or other professional who told them that it was okay.
http://www.gfcfdiet.com/ANDINewsletterEnzymes.htm
post #59 of 121
Thread Starter 
thank you playdoh! I will check out that link later today/tomorrow!
post #60 of 121
Does anyone have a link for the blood test?

I've been planning on getting the provocation/neutralization allergy testing done on my son that Doris Rapp recommends. It would be more expensive--probably 1000$ or more with travel.

Has anyone done both types of testing? Which would you recommend and why. Thanks
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