Week of August 16th - Page 6

[Soogie]

Originally Posted by truebluexf
Unless it's a new law, DS never got the PKU a second time after the hospital.

None of my boys did either....

I'd have to dig through my links to find where I read that every state required a repeat PKU. It was broken down state by state of the "required" tests at birth and after, including vax schedule and such. Most states include and require other newborn screenings, not just PKU, in the heel stick profile. I think Texas, where I am, has a total of 5 genetic/metabolic disorders.

Is anyone NOT doing the PKU/Vit K/eye gunk at all? - Lucysmama/Katie

We pass on the Vit. K (as long as there are no complications during birth which would warrant it) and a definite no to the erythromycin eye goop. We'll be doing the PKU, just to be on the safe side, but only at 2 weeks after birth. My cousin had lost her first baby to SIDS, 9 years ago and when she had ds #2, she had all the "routine" screenings done and this time Fatty Acid Disorder: MCAD, was added to the profile. Well it turns out, that her son does have this genentic disorder, but it was caught and treated early. It was most likely the cause of her first son's death. So to err on the side of caution, knowing someone where the newborn screening was critical, I choose to do that part.

[gottaknit]

I asked my midwife about the PKU tests last night at my prenatal visit. It's not a law in Oregon. You don't have to have it at all. (I plan to get it done anyway, though.)

Definitely will pass on the eye ointment.

Undecided on oral vit K, but no vit K shot for sure.

[Soogie]

I think I should have phrased my post that it's not necessarily a state law for the PKU and other newborn screens but are routine and strongly encouraged and that the schedule to have the test done at birth and then repeated are, just that, routine. Most peds follow the state health's department regulations to the tee and most parents don't know they have a choice either way. Anyone can refuse ANY and all testing. ie vit K, eye goop, hearing screen...

[OakEmber]

Court- Thanks for asking about our night...it was nice but I didn't sleep well...haven't been in general lately anyway so maybe I wouldn't have regardless. You should really watch The Butterfly Effect sometime, it was really good...but I KWYM sometimes you just need to watch something light. I can't wait to see 50 First Dates, looks really funny.
I will be discussing NB procedures tomorrow with my midwife and then I will give a clear update...right now I just know for sure no eye goop and no Vit K injection. I don't really have an issue with the PKU, so long as it is done at a later point...I will be BF during to ease Oakley's discomfort and I think since it doens't have any negative health consequences like the Vit K injection potentially could, the benifits outweigh the risks on that one for me. I could just cry though for Ember having all those things without being snuggly in my arms ...ah but we get wiser with time.