I often lurk and sometimes post on a support board for parents of children with heart defects. I've been on the board for almost six years, since ds was a baby. Two children died this past week and I just read about it. I feel stunned. One little boy was 5, and I recognized his mother's name as one that has been on the board for several years. His condition had worsened and he had a transpant and it did not go well. She wrote that he asked for his hockey stick and Buzz lightyear doll to hold when he passed away, and said goodbye to all his family. I can't stop crying. When I read things like this, it takes all the air out of me. I want to take back any moment I was irritable or impatient with ds. I want to stand very still and focus on him, and never look away.
I guess I feel better writing this. It is all just so fragile and fleeting. I'm not an atheist, but at moments like these I doubt anyone could really run a show that had such sadness as this.
Heartmama
I guess I feel better writing this. It is all just so fragile and fleeting. I'm not an atheist, but at moments like these I doubt anyone could really run a show that had such sadness as this.
Heartmama








