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Vaccine Registry  

post #1 of 37
Thread Starter 
Because so many seem interested in information about Vaccine Registries, I figured I would start a thread where we can post that information. Here is the site from Florida. It even has the forms that you can send in to opt-out. I think that this registry is voluntary and that you aren't in it unless your provider puts you in it. I am going to call the two docs that my ds has seen to see if they participate in the registry. If they do, I will send in the opt-out form. If they don't then I going to assume that registry does not even know we exist and won't bring their attention to it. How does that sound to those who are familiar with my state's registry?

http://www.flshots.org/
post #2 of 37
post #3 of 37
Here's Virginia's: http://www.vdh.state.va.us/imm/imm_reg.asp



"What are Immunization Registries?
One of the focus areas of this act was the development of an Immunization Information System or a Registry. Click here to learn more about these systems. Each state is required to implement a statewideregistry that is guided by the registry standards developed by the Centers for Disease Control and Prevention. Click here to view the CDC minimal functional standards for immunization registries."

I didn't realize that "each state is REQUIRED" to implement the registry. On the website it says that this is because of the "childhood immunization act of 1993".

If that's the case, then why haven't ALL the states gotten a registry? If we're all in such dire trouble because of vaccine-preventable diseases, then why is it taking them so long? So far, I'm counting 12 years....
post #4 of 37
Here is some info about Indiana:

http://www.in.gov/legislative/ic/cod.../ar38/ch5.html

Basically I learned that CHIRP is the registry and that, if your child's doctor is a member, you are automatically enrolled. You can choose to be taken off by filling out an exemption form available at the doctor's office or printing this and giving it to the doctor:

https://chirp.isdh.state.in.us/docs/...ta_Removal.pdf
post #5 of 37
Here is a link for tracking systems by region:

http://www.he.net/~dvk/imms/tracking.htm

This was up to date as of 10/14/04
post #6 of 37
Thread Starter 
Good news. Apparently, the registry in Florida isn't well known. One of the docs we have seen had no idea what it was, the other said they do not enter patients. However, they do access those client's that have used the health department for shots. So I think Ds is safe and not a part of it. Yeah, I won't send in the opt-out form, that way they'll never know Ds exists. I wonder if other states are like this also.
post #7 of 37
post #8 of 37
So, I guess Delaware doesn't exist....it's not listed.

Maybe that's a good thing??
post #9 of 37
This is for MA--I love it when they don't tell you anything and still think it's o.k. to track you whether you vax or not. I know I didn't receive any forms to opt out or in to the program. I'm sure all of my kids are listed in the database : In their defense, I'm not sure that this has gone into law yet as there wasn't a date listed on the website, but my guess is that if it hasn't already, it will soon.

http://www.vaccinechoice.org/rights.htm

STATE TRACKING SYSTEM ASSAILS PRIVACY
The Department of Public Health(DPH) is in the process of establishing the Massachusetts Immunization Information System (MIIS), a state-wide database designed to track the vaccination status of all children in Massachusetts from birth. The DPH is proposing a regulatory change that
would mandate that all vaccines administered to a child be reported to this tracking system. While use of such a system might be more convenient and time efficient for providers, MCVC believes that some elements warrant significant review.

Privacy is a primary concern. While the DPH has established a consent form for use in conjunction with the MIIS, they nevertheless plan to track both those who offer--and those who withhold--their consent. This ‘consent form’ allows parents to ‘decline consent’ to not have information shared with others, including school systems, health providers, etc.

However, the DPH will keep a list of people who have declined their consent. The child’s name, birth date, place of birth, sex, provider’s medical record number, mother’s maiden and married names, and mother’s date of birth, along with the fact that the parent refused consent will be logged into this DPH system.

If ‘consent status is unknown’ the Department assumes that you’ve consented and will keep your child’s vaccination information on file in addition to the personal identifying information listed above. According to DPH officials, the information belonging to those who withhold their consent will not be shared with any person or agency other than the DPH. For some, even this "limited" exposure would amount to an unacceptable infringement of privacy. And what if your doctor doesn’t present you with the consent form? There is no penalty/consequence to hold doctors accountable within the context of the regulation as written.

The state claims that this registry can "improve safety" of immunizations, yet the DPH has consciously decided NOT to track adverse reactions or medical contraindications to vaccines.

The state hopes to tag and track children who are not vaccinated in order to be able to ‘remind’ parents to get their children vaccinated "on schedule" - even though this schedule is only a compilation of "recommendations", not requirements. A "reminder/recall" component is built into the system. However, parents claiming medical or religious exemptions will be unnecessarily
"reminded" because the state will not be keeping record of these legally supported exemptions.
post #10 of 37
Does anybody STILL think I'm being paranoid??????
post #11 of 37
Yes you are just being paronoid!! :LOL

I notice California;s are listed by county. There are only about five our six listed and all but one is in Southern California. So I assume since we lived in Northerna Cali, no where near Santa Clara County it is safe to assume we are not in some kind of tracking system?

I can't really tell if Oregon has one but since my children were born in California I would assume they are not in it if they do.
post #12 of 37
I'm in VA. I carefully read the HIPPA notice before signing today and I didn't like what it said. By signing the HIPPA you are allowing them to share information with local health authorities about your child. I think this would also allow the use of a registry.

I never give out my childrens SSN so, it would be hard to truly link them in a system. Names, addressses and DOBs aren't proof enough of identity in my opinion.

At least VA states that it is voluntary. I certainly don't want my family in a system like that.
post #13 of 37
FYI FOR NASSAU COUNTY, NEW YORK RESIDENTS:

I just got an email back from the NYS DOH Immunization Program
NYSIIS Project Manger and he stated that my first son (born in 1997) is not and never has been on the state registry . . . that no one in Nassau County is on the list. No medical providers in the county participate.
post #14 of 37
If I understand that right, this is a list of folks who do not want to vaccinate and want to be put on the list to opt out of being on a list???

Clear as MUD.

Actually, I think I missed the point.

What does the list do? Other than collect names of anti-vax folks?
post #15 of 37
We have to take Alex to the dentist today (he has 'soft' teeth and needs fillings. ) and his dentists' office is right next to the pedi. I'm going to drop off the forms requesting that they be removed from the CHIRP system. I'll let y'all know how that goes.
post #16 of 37
Wow, I'm glad to know these exist. I don't want any part of them! I hope we're not automatically listed because we go to a ped once a year. We don't vax and the ped is fine with that.
post #17 of 37
post #18 of 37
I'm really hoping I didn't sign a HIPAA form at the ped... But I was so sick at the time, I can't remember anything.

Can you take them back if you did sign? Like, withdraw your consent?

Anyone know what docs do if you won't sign a HIPAA? Do they refuse treatment?
post #19 of 37
Quote:
Originally Posted by mindycat72
I called them trying to get info to opt out but nobody ever returned my calls.
post #20 of 37
They probably can choose to deny service if you don't sign. State & local disclosure laws will still apply whether you sign the HIPAA consent or not. This is an interesting little article about signing the consent forms:
http://www.aafp.org/fpm/20030200/29theh.html
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