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Eczema questions and concers (long)  

post #1 of 19
Thread Starter 
Cautionary note: I have a lot of information to offer about my sons eczema, and I will probably sound overwhelmed, but that's only because I am. I need all the help I can get from those of you who have been in similar siuations or just have a good knowledge of allergies and exzema. I have searched through the archives and read as much as I could on eczema. Anyway I'll get right in to the detalis of our experiences with eczema...

My son was born after a medication free home birth in October 2004. The first month was trouble free. At the beginning of month two till the end of month three, DS had what seemed like reflux -- he would puke up quite often, but mostly in the evening. When he stopped with his reflux, he then started to develop redness on his face. I didn't think much of it at the time, but it soon became obvious the redness was spreading. DS started scratching the patches he had (only on his face at the time). The patches have got progrssively worse, and now he has spots of eczema on:

Both cheeks -- covers a significant area of both cheeks
Both arms -- only one small spot per forearm
Both legs -- on the outside of each leg from knee till ankle

But before I get in to what sorts of things I have done to help him cope with the scratching/bleeding/scabbing/scrathing cycle, I want to share with you some of the factors that might be a contributing to his eczema.

Food:
* We have been off cows milk for over 2 years now.
* Wheat has been a large part of our diet. I used to make my own breads, and that's when we used to go through 3 loafs a week.
* Almost every meal we eat has onions and tomatoes, both of which are quite allergenic.
* We have always kept our consumption of preprocessed food low.
* Most of our foods are whole foods, but I think we lack the variety of foods that is so needed in order to curb sensitivities.
Unfortunately we eat almost no organic foods because we can not afford it currently. I am going to look into the financial feasibility of more natural and organic foods again because I know there are huge benefits involved for all (we have a co-op here, but the yearly fees are so high it is hardly worth it; I am going to have to go the route of hunting the natural foods stores and/or buying in bulk direct from farms).

Aside from food, I take a daily dosage (2 Tbsp.) of Omega-3 and -6 oils.

As for DS's diet in particular, he is now about 99.9% breastfed. I really didn't want to introuduce solids to him just yet, but he is eager and has give all indications that he is ready (including pincer grip).

Laundry detergent: Presidents Choice Enzymatic perfume and dye free liquid detergent. We don't use commercially prepared softener on the kids clothes. Their clothes get a vinegar rinse.
DS however does not have eczema on the parts of his skin that are most exposed to clothes (his diapers are washed in this for instance, and he has no eczema on his bum). He does however have a constant (though slight) patch of redness around his rectum (I have heard that can be a symptom of sensitivity/allergy).
I have ruled laundry detergent out as an allergen, but I am not opposed to changing to a more natural product -- actually I am all for the switch, but our pocket isn't yet.

Medications: I do not take medications unless I absoutley have to, and it hasn't come to that since his birth.
DS has not been vaccinated.

Bathing: DS is only given a bath twice a month unless when needed otherwise.
We use a commercially produced hypoallergenic bath gel which I have already decided not to buy any more of. I don't know what to switch to yet, but I suspect we can avoid soaps for now.

Pets: We have no pets in the home, and have not been exposed to any pets for about 3 months now.

Hereditary?: Both my DH's and my immediate family have not reported any severe allergies. My brother has mild allergies to strong perfumes. My mother is allergic to gooseberries. My SIL does have some sensitivity to pollen as does DH but it is mild too.

Stress: Obviously having a new baby does bring its own stress, but obviously I am stressed (if I wasn't before, I am now) from Galens eczema (details of what treatments I have done follows). The stress would explain my constant exhaution.

New hosehold items?: We did get some new rugs (cheap quality) just before Galen was born for use under the birth pool. No other big furniture items. I will confess however that our one-bedroom apartment is a bit too small now (yep that is the only way we can survive right now) and I know that there is too much clutter which couldn't be helping with keeping allergens in the air down. Thankfully at least we just got a new vacuum with a Hepa filter. We are also moving to a bigger place soon

What I HAVE done...
* Have kept DS nails trimmed
* Applyed aloe vera to the eczema patches to sooth skin. Worked to an extent but usually for very short periods.
* I eliminated all cheese from my diet. Did that for one month. Eczema still got progressively worse.
* Started applying calendula at most twice daily to all patches. Seems to relieve itching.
* I eliminated wheat 2 weeks. DS eczema actually looked very good on some days, but still seemed to be spreading a bit (though not nearly as much as it ever did before). The subsiding of his eczema inflamation coincided more with the introduction of calendula ointment than the elimination of wheat (though the reduction could have been due to both). 3 days ago I started consuming wheat again and that's when the itchiness really started again. Now it seems like a no-brainer that wheat is the issue, but it could also be that because the last three days the weather has got considerably uncomfortable that his eczema is simply acting up because of stress of discomfort or elevated temperature.

So, is there a sure fire way for me to find out exactly what is triggering my sons eczema.

Should I be seeing an allergenist? I have heard that the testing done is not very good at determining a food allergy (of course DS could be allergic to something in the environment too).

I need help with a good elimintation diet. Should I be going on a diet to eliminate gluent now to confirm that DS is sensitive to that? Is there a good free online resource for how to go on an elimination diet? I have come across so many but...

Anyway, I am just very, very confused about all this. What on earth do I do? Is all my frustration just overkill? I do feel very responsible for my sons condition, and I am a worry wart. I really feel I need to do something to prevent any sort of semi- or permanent damage to DS GI system.

As for me, I am very stressed out lately too, and I always feel tired. Should I also be going to see a naturapath of an alternative medicine practitioner to figure out how to up my own energy levels. I still eat well though not as well as I did prior to elimination diets.

Anyway, I have to go now, but please someone try to help me sift through all this mess.
post #2 of 19
Dear Siana

Hey thanks for the excellent information. I am so sorry to hear about your son..... eczema is no fun at all :-(

I am sure that you know this already, but unfortunately in the world of food allergies and intolerances there are NO hard and fast rules. Rice is a low allergy food - yet my 4 mth old son reacts to it. It is really a question of trial and error.

As you probably found out - eczema is usually related to food intolerances. And yes, the red circle around his anus is another sign of this. One thing that you did not mention was his bowel movements... how often a day, and what sort of colour and consistency? The more often and the greener the colour, it would suggest that he def. has an overactive system that is related to food problems.

What food is he eating himself? And did the eczema get worse when you introduced solids?

You also mentioned reflux - this is also a sign of food intolerances.... Is this also making him miserable and do you have him on medication?

Of course there are plenty of cosmetic things that you can do - eg apply pawpaw cream, oatmeal baths etc etc- but none of these will get rid of the problem.

In terms of an elimination diet, well there are plenty out there. However most people do not know that the most likely cause of food intolerances is actually naturally occurring chemicals called salicylates and amines in food, as well as artificial chemicals and additives. So the Mother of all elimination diets is to eliminate all these. BTW organic food has more natural chemicals, so for once non-organic is sort of better ;-)

If you want some more information have a look at:

http://www.cs.nsw.gov.au/rpa/Allergy...ol/ffintro.cfm

The diet is NOT easy, and really sensitive babies will even react to some of the 'low' foods. ATM I am only eating quinoa, lamb, chicken, celery, leek and green beans, and my son is still slightly reacting to something. BUT the improvement that he has had over the last 12 weeks is nothing short of miraculous.

You mentioned that you had eliminated wheat - but you probably needed to give it more time. It can take up to 6 weeks for proteins to fully vacate the system....

Oh the other thing that I would suggest that if you are going to do an elimination diet then see a dietician. While BF it is not good to muck around too much..... AND more importantly, try and find some support. I am in an email support group for the elimination diet above... I would be happy to give you more details if you are interested - these guys keep me sane!

There are lots of other things that I could add, but i will keep it at this at the moment. Good luck.
post #3 of 19

Eczema support (long)

Siana- I feel for you! We are in basically the same predicament- my 4 mo DS is struggling with eczema that sounds identical to your sons. We are managing to keep it under control- which is I think the best we can do for now!

The approach that I have taken is to eliminate the most highly allergenic foods (dairy, wheat, soy- i have ruled out eggs) and not go too overboard on the elimination. I found it was just too hard on me to be so limited- it was greatly increasing my frustration and stress level and also very expensive- shopping at the health food store for wheat and dairy free specialty items is too much! My DS eczema is limited to patches- it isnt a full body blow out like some moms deal with so I feel I don't have to go to severe on diet limitations. I also am reluctant to go on my own with a severe elimination diet while breastfeeding and I cant afford to see a specialist.

Instead, I am taking a different approach. In my research I came across the website http://www.curezone.com which has a good forum that discusses eczema. Here I came across a link to a website that discusses foods that will help your body fight eczema. I love the idea of focusing on what you can eat rather than what you can't. Heres the link
http://www.wholehealthmd.com/hk/reme...59,459,00.html

Other things that have really worked for us is California Babys Calendula Cream- fantastic stuff. Oatmeal baths are soothing (a note on bathing- latest research says that frequent, short lukewarm baths followed immediately by moisturizing are best for eczema so you may want to bathe more often.) See the latest issue of Mothering for info about making your own oatmeal soak. The homeopathic itch cream Florasone seems to help some- it needs to be applied frequently though. I am currently taking Evening Primrose Oil and Borage/Flax oil to provide EFAs. Also, Probiotics are important- you may have seen the thread I recently started about Probiotics for babies- I have ordered some of Jarrow's Baby-Dophilous and hopefully that will help too.

Probably the biggest help is keeping DS from scratching- he wears mittens whenever he is really itchy and we keep a close eye on him to be sure he does no damage. I notice that his rash is always way worse when he is rubbing it and so keeping him from scratching at night is key. THis has worked very well for us- and just to clarify we sleep with him so I can keep an eye on him and he is not rolling over much yet so he doesnt get tangled up- we pin his sleeves to his sleeper with the old-fashioned, heavy duty diaper pins and it REALLY REALLY HELPS! He can't scratch and so he sleeps better and his skin looks way better. It sounds kinda barbaric but really works!

I also want to provide you with a bit of comfort. After Owen's eczema had been bad for a month or so- I was getting really stressed and desperate for a quick fix. I kept eliminating more from my diet, tried everything I could find on his skin, and woke up every morning devestated to see the rash still there. I knew I needed help dealing with it- I talked it over with a good friend/doula/childbirth educator/nurse who really helped me. She said- You are too stressed...take a break from everything for a week and see how it goes. Remember, your baby is FINE!

I took her advice and really eased up on treatment- just moisturizing and I let myself eat some foods that I was pretty sure were'nt triggering the eczema. And- Owen looks WAY better. I think my stress was really feeding his dis-stress, and reminding myself that really, this is NO BIG DEAL helped me let go of (some) frustration. He will probably grow out of it and it definitely bothers me more than it bothers him. As long as your boy is generally happy, playing and laughing- this is not affecting him as much as it is you! You are not poisoning your baby or anything- this is just something his little body has to work through. You can help- but you are not a superhero! Healing eczema is a long hard road and time is the best ally.

Also- eczema gets worse before it gets better so any change after treatment is good!

Good luck! Let me know if you find the miracle cure
post #4 of 19
My dd is 2 1/2 and still bf's and has food allergies and eczema. Some things that have worked for us...bathing every night and immediately slathering with vaseline, the hydration works for her skin. DD is sensitive to fish oil, I had tried giving it to her to help, and took it myself. Fish is a high allergen. We got RAST testing done at age, seems her big allergy problems are eggs, sesame seeds and peanuts. I had taken many things out of my diet during her first two years, but never eggs (I really thought they didn't make a difference) and sesame seeds. I think alot of eczema is food sensitivities but some can be environmental. I have watched my dd go outside and start itching! Hang in there.
post #5 of 19
Hi Siana,

First of all let me tell you that I know how you feel. Our DS who 2.5 years old has suffered from 'eczema' for the last year and it has been very frustrating. We tried everything from conventional to alternative medicine and nothing seemed to help. However, last month we went to see a vrey good naturepath who identified for us a few things: (keep in mind that this is what worked for us and may not work for you but could help you in tracking the culprit down)

- he had chlorine in his system
- had a bit of candida
- his liver had weakened through the use to antibiotics and he was detoxing through his skin
- he was sensitive to all dairy, sugar,fructose, chicken, eggs , citrus and eggs.

he was given homepathic and bach flowers remedies and we started eliminated all of the above. He cleared up immediately and we were delighted. Now, last week he had a day where he had a few things he is not suppose to have and we have another massive breakout but al least we know what to do. Luckily, with this breakout he doesn't scratch/bleed which is great because he can sleep and relax. I think that the bach flower remedies are a great help in this case. Stree was an issue as we had relocated 3 times since he was born and the last one being overseas. He is still breastfed and had I knon all this i would've made huge changes long time ago. One other great thing had been his bowel movements. He poops everyday now as oppose to 3-4 times a week. I think the great contributor here is dairy or lack of it.

I know its not easy but hang in there. Please see a good naturopath. The RAST test didn't work for us at all. If you need further help please let me know and I'll try to help as much as possibel. Even as I write this message, am in the process of getting more information on his eczema because his breakout this week was a bit discouraging. However, we have to just be patient until he clears up again. Good luck!!
Najia
post #6 of 19
Thread Starter 
After all the wonderful replies I've received, I really regret one thing -- having not posted here earlier! Believe me I really wanted to but I figured I could do this alone, but I realize now that I needed this support. Thank you

[QUOTE=Kashel]One thing that you did not mention was his bowel movements... how often a day, and what sort of colour and consistency?/QUOTE]He poops twice every other day. His poop has been thick and dark mustard-coloured. I have not been very happy with his BMs because sometimes they are 'formed' like a loose adult movement. He is cloth diapered too and I check his daiper very often and change right away (regardless of pee or poop)

Quote:
Originally Posted by Kashel
What food is he eating himself? And did the eczema get worse when you introduced solids?
He has eaten baked sweet potato, baked parsnips, baked potato, rice and quinoa. When I say eat, I just give his a little tast of the food. To tell you the truth, now that I think of it, the reason why I bothered with introducing food (besides his signs of readiness) was because it was the only way I was able to eat at all. He has always been in my lap at meal times and I didn't want to lose that just for the sake of keeping my food from being on the floor!
He didn't seem to have any reaction to those foods from what I could tell. I am not opposed to reverting to exclusive BF but I am not sure if that should be the way to go.
Quote:
Originally Posted by Kashel
You also mentioned reflux - this is also a sign of food intolerances.... Is this also making him miserable and do you have him on medication?
Thankfully his reflux has passed. We didn't use any medication on either of us.

Kashel, I will check out the information page you linked me to soon. I am sure I have a lot to learn yet about intolerances/sensitivities/allergies.

Quote:
Originally Posted by Owens Mama
the approach that I have taken is to... not go too overboard on the elimination.
A lesson I need to learn!

Quote:
Originally Posted by Owens Mama
I also am reluctant to go on my own with a severe elimination diet while breastfeeding and I cant afford to see a specialist.
I know where you are coming from. Because my sons eczema is now worsening with every passing day, I think I shall have to resort to some specialist care.

Quote:
Originally Posted by Owens Mama
I came across a link to a website that discusses foods that will help your body fight eczema. I love the idea of focusing on what you can eat rather than what you can't.
I like the idea of the support group and this different focus approach. I *need* to do this.

Quote:
Originally Posted by Owens Mama
Oatmeal baths are soothing (a note on bathing- latest research says that frequent, short lukewarm baths followed immediately by moisturizing are best for eczema so you may want to bathe more often.)
Ah. I didn't know that. I shall have to start doing this. What type of moisturizer do you use? I use calendula for the spots right now, but what sort of all-over-body moisturizer is good for babys skin. I am thinking cold pressed sweet almond oil might be pretty good, but I really don't know what's best.

Quote:
Originally Posted by Owens Mama
Also, Probiotics are important
I can't seem to find a local distributer of the baby probioitcs. I shall have to look out of town for a source.

Quote:
Originally Posted by Owens Mama
Healing eczema is a long hard road and time is the best ally.
My DP keeps telling me that, but I am a paranoid little worry wart who wants to be proactive and figure out something (anything) to fix DS eczema : Of course, the truth of the matter is that no matter how hard I try, he may not be fully 'healed' so you are right, time really is my best ally.

Quote:
Originally Posted by Owens Mama
Good luck! Let me know if you find the miracle cure
: Prior to Galen's birth I always figured breastmilk would prevent him from acquiring allergies! I guess allergies in the BF babe are rare but obviously very possible. BTW I am glad your baby is doing quite a bit better -- there is nothing better than having some peace of mind I think.

Oh yeah, I probably should have mentioned in my first post that we cosleep. It is the only way I can keep my sanity with DS's incesant scratching and from preventing the sheets from getting bloody every night (besides the benefits of BF through the night of course!).

Quote:
Originally Posted by circlemama
...bathing every night and immediately slathering with vaseline, the hydration works for her skin.
I would be nervous using a pertrolium product on DS skin. I know the skin can not absorb any of the vaseline, but I'd be too nervous that my son would digest some of it. Obviously a 7 month old can not be as trusted with this treatment as your 30 month old.

Quote:
Originally Posted by Najiasaidi
Please see a good naturopath. The RAST test didn't work for us at all.
Najia firstly I am so happy for you that you have finally figured out what your son is allergic too. I bet it must be wonderful feeling. Aside from that, I have decided to go with a naturapath. I hope things work out as well for us as they did for you.

I shall write after my first naturapath appointment. Thank you again mamas for all you support.
post #7 of 19

Eczema battle and a WARNING

This is my first post and I am also going crazy with the eczema battle!! I have eliminated dairy from my diet and that seems to help. But I swear when we are outside, especially with the pollen flying around, I have noticed my 2 yr. old gets outbreaks of eczema, mostly on her hands. My 6 month old has it around her eyes which I thought was an odd place to get it.

If anyone is using Elidel or Elocon, stop using it!!! Prolonged use causes cancer. I am a nurse and just found this information online. Besides those creams are only containing the problem not curing it. I have been using the ShiKai otion ofr Pediatrics and the calendula cream too. Does anyone have any other creams to try? I would love some more advice. Thanks.
post #8 of 19

Also in Eczema Hell

DD's eczema is not so bad on her skin, but it's raging on her face. Our ped did a culture on her cheecks and from the rubbing and touching she's developed a staph infection (impetigo). So we tried bacitracin, then bactroban, and now oral ab's. None of this is working. I've cut out dairy and soy, but it hasn't been that long, and I've cheated (with goat cheese).
Part of me wants to finish the course of ab's to see if it will help with the impetigo, part of me thinks it's making it worse. Her ped was reluctant to put her on it, as was I, but I'm in "I'll try anything" mode.

We use a really wonderful locally made herbal baby eczema cream and an equally wonderful diaper rash salve. The cream helps the uninfected places on her chest and back. The salve keeps her face moisturized better and I've noticed her cheeks don't look so angry red. I also use California Baby diaper area spray on her cheeks seems to calm it too. I also wash her hands frequently (she rubs her face), keep her nails short.
All the chamomile and oatmeal baths are helping the body rash, but her cheeks are still red and weepy.
I also take Evening Primrose Oil. I took it at the end of my pregnancy, and take it for my rosacea. I don't know if that's helping her, but it's clearing up the rash on MY face.
But I'm at the end of my rope. She's also had pretty bad diaper rash that looks similar to the impetigo. Bacitracin (applied over night), our usual diaper salves and sprays, frequent changes, fleece lined cloth diapers to keep the moisture wicked off, and diaperless time cleared that up in 24 hours.

This morning dh said to Ingrid, "I can't wait til your cheeks clear up so we can kiss them again". I just about cried.

Please, someone tell me this will pass, and please be believable!
post #9 of 19
We also battled with severe eczema. It started when DS (now 3) was 4 months old. I didnt' even know eczema was food related until months later. We saw a pediatric dermatologist and our regular ped and neither even mentioned food allergy. When DS was 11 months old, we found out he had a life threatening allergy to peanut. I finally found the root of the eczema.
Even with totally avoiding peanut and all other nuts, though, he was still plauged with eczema on his elbows and knees and sometimes on his face and back. I don't know if there was another, less severe allergy causing it, or what.
The only thing I found that relieved it was a homemade salve that I make. It's an organic olive oil and beeswax base with chamomile, lavendar, calendula, plantain, comfrey, and St. John's Wart. While it did not totally cure ds's eczema, for the first time, it was manageable and at bay. He would still flare up occassionally, but if we would diligently put the salve on 5-6 times a day, it would remain minimal.
About a year ago, ds's eczema went away. Totally. It's been gone every sinse. I have no idea why, and we still use the salve every day, but I have hope that he is outgrowing his allergy. (We will get RAST test results for the Peanut allergy this Friday).

Anyway, I am going to make another batch of the salve soon (in the next few weeks). If anyone battling eczema would like to try it, let me know. I would ask that you pay for shipping. It's slighly greasy and I don't always get the consistency just right, but it has really worked for us.

Good luck to all who are battling eczema.
post #10 of 19
We're also in the endless battle with eczema. Ds is now three and it's still a battle. He still nurses a lot- and reacts to foods I eat.

We discovered multiple triggers causing the same result: furry animals, mold, dust mites, foods, pollen. When I get everything in blance he goes a day or two without scratching. Then I eat some tomatoes or soy, he gets some incidental soy or some nuts, etc. and boom giant flare up. Or he goes in a house where pets live and boom flare up.

I have resorted to benadryl if he gets bad sneezing with the flare up.

Note: atopic eczema can progress to asthma- even in breastfed kids! This was the biggest downer for me. I had hoped nursing would be more protective.
post #11 of 19
We finally got a new supply of California Baby's calendula cream in the mail and after just one night of use Owen's skin is virtually clear! So wonderful to see beautiful baby skin instead of ugly red rash! He is still itchy, especially on his scalp, so I know something is still going on but at least we can keep the rash under control. For all the moms getting so frustrated out there- it is definitely an ugly fight but keep at it and we can all hope that our babes will grow out of it.

Good luck!
post #12 of 19
I use CA Baby diaper area spray on dd's cheeks to sooth and keep clean, followed by a locally made diaper rash ointment. Her impetigo is clearing up slowly.

Maybe we should have an eczema tribe?
post #13 of 19
"Maybe we should have an eczema tribe?"

There sure are a lot of eczema moms here, so seems like a good idea to me!
post #14 of 19
Here we are then!
The Eczema Tribe
post #15 of 19
I need to come back and read through this... don't have time now, but want to post and let you know I'll be around.

As I have said before, and I apologize for sounding like a broken record (but even our naturopath wasn't supportive of this). In our case, it was overgrowth of yeast causing allergies. Candida releases a toxin that causes skin inflammation, also interferes with the good bacteria in the gut which digest food, especially proteins like "allergenic" wheat and dairy.

I just want to say this right now because I think we need to start looking at allergies differently. I drove myself INSANE with all the lotions, potions, supplements, detergents, etc. and the answer was really within.

I should change my sig. to be more specific. Let me just say that homemade kefir right now is our Holy Grail in rebuilding our gut/immune system. And possibly the removal of my mercury fillings, but as we are not done with that yet, I attribute our latest improvements to the kefir. DS has been 95% clear for a very long time, but he and I have been super sensitive to carbs. We have been pushing the dietary envelope lately and doing just fine.

I'll be back...
post #16 of 19
Thread Starter 
Jane, do you think homemade saurkraut (sp?) would be as good as kefir?
post #17 of 19
Yeah! I was wondering the same thing. If dairy proteins cause a flare up I would avoid kefir, as much as I love it. I've got tons of grains that I don't use because when I eat a dairy product (and I never drink milk--it's alsways cheese, yogurt, cottage cheese) Ingrid's cheeks go ballistic.

I use the creams to help sooth and to help get though a flare up. I don't use them to cure it. I'm trying to go about dd's eczema the same way I was able to get my rosacea down to a mild blush: internally, systemically.

So tell us more about saurkraut. I looooves me some fresh homemade saurkraut..
post #18 of 19

Cross posting this to the Probiotics for a 4 mo old thread too...

Quote:
Originally Posted by Siana
Jane, do you think homemade saurkraut (sp?) would be as good as kefir?
Check out this page!
Using kefir grains to make sauerkraut
http://users.chariot.net.au/~dna/kefirkraut.html
post #19 of 19
Quote:
Originally Posted by Parthenia
Yeah! I was wondering the same thing. If dairy proteins cause a flare up I would avoid kefir, as much as I love it. I've got tons of grains that I don't use because when I eat a dairy product (and I never drink milk--it's alsways cheese, yogurt, cottage cheese) Ingrid's cheeks go ballistic.

I use the creams to help sooth and to help get though a flare up. I don't use them to cure it. I'm trying to go about dd's eczema the same way I was able to get my rosacea down to a mild blush: internally, systemically.

So tell us more about saurkraut. I looooves me some fresh homemade saurkraut..
You can also culture green coconut water kefir. Asian markets or Whole Foods carry them:
http://www.bodyecologydiet.com/coconutkefir.php
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