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The Eczema Tribe - Page 23

post #441 of 503
Quote:
Originally Posted by Aura_Kitten View Post
i have Pompholyx (sp?) ~ mostly on my left hand, on my middle two fingers, but sometimes it spreads over both my palms.

stress is the biggest trigger for me. outbreaks are maddening. : and toward the end of one, when my fingers are all crusty (sorry if this is TMI) i invariably get people who give me looks like i ought to be quarantined. blah. i want to shout at them, "It's not contagious!!"

i've been trying to find natural remedies for it for awhile but so far nothing. i'm in the process of making a rosemary tonic for it now... :
THANK YOU THANK YOU THANK YOU!!! I have had this all my life and NEVER knew what it was. I spent a year going to a dermatologist and at it's worse I had big ole holes in my nails! I was given creams and when that didn't work and the nail holes showed up I was given what I think was oral steroids. Whatever it was he was adamant I not be pregnant. He keep asking if I was sure I wasn't pregnant. (Hrm.... I had a miscarriage two years after that.. I wonder if it had anything to do with it.... ) Whatever the pills where, they got rid of it. BTW, this appeared right after dd#3 was born and lingered until she was about two.

Then when DD#3 was born I got it again. It wasn't as bad and went away on it's won. I don't even remember how long I had it, just that I had it again, how annoying.

DS is now four months old. A month ago it appeared yet again. : I have been putting Tropical Traditions Baby Silk cream on it. It keeps it at bay if I remember to put it on there.. but I often forget.

When I was a kid I used to get this on my feet. I always though it was a heat rash and that I was "allergic" to shoes. I can only wear shoes that are leather, and I must wear sandles in the summer. I think this is what that was/is as well.

Anyway, the reason I came to this thread originally was because DS has a dry patch of skin on his forehead. Sometimes it is rashy and sometimes it is just dry. I have noticed when he nurses depending on what I eat, it gets red and rashy just after nursing. The rash will go away after awhile but the dry patch stays. I have cut dairy out for the most part.. well except butter and cheese : but he still gets it. I am going to contact a farm nearby tomorrow about raw goats milk as my youngest DD is allergic to dairy (causes wheezing) and I want to get her off soy.

I will talk to my ND about this Pompholyx and see if she has any ideas and how to get rid of it. Thanks for giving me a name.
post #442 of 503
I'm glad to find this tribe. my son is 4.5 months old and has eczema all over his body. It's pretty severe on his face, where it's scaly, flaky, often raw and oozing. His arms, legs and torso just have patches and some bumps. And he has it on his scalp (cradle cap).

It started at 6 weeks with a small patch or 2 on his face, and then progressed from there. We are constantly attempting to keep him from rubbing his face, because he just rubs the skin off! It's very stressful for us. and, i can only assume, extremely uncomfortable for him!

We bathe him 2-3 times a day and then goop him up with Aveeno and also this olive oil based eczema cream.

We have taken him to a homeopath and he's on a remedy that seems to be having a positive effect.

We have prescriptions for Elidel and Zyrtec, but we don't want to use them. We used Benadryl once, but had a rebound effect from it, so forget that!

It's just so sad have to swaddle him to sleep when he doesn't want it, or hold his arms down so he won't hurt himself. I think it's interfering with his development because he spends so much time being itchy.

I hoped that he would outgrow it in a couple of months, but I keep reading this stuff about people having it their whole lives, or at least until they're 5 or 10 or teenagers. With his being so bad, I wonder if it'll recede or go away at all.

Any good stories of kids with severe eczema who outgrew it early on would be welcome. As well as holistic ways to keep down the itching on his poor little face.
post #443 of 503
even bathing with just water can dry the skin, and 2-3 times/day for a kid who has bad excema is a lot, i think. i only bathe my toddler 2x/week, and we don't use soap unless he's super smelly.

Is your son bf'd? If so, have you considered that he might be reacting to something in your diet? If he's ff'ed, he may have sensitivity to the dairy or soy content, or something else even, in the formula.

We like cocoa butter and Aquapohor for regular lotions, and we do use a steroid cream if it's getting out of control, b/c his excema is environmentally triggered and I can't keep him out of the grass in the springtime! I do wish we had some less chemically-based options, but when it comes to my kids' skin cracking open and bleeding, I'll do what I have to do.
post #444 of 503
Quote:
Originally Posted by bdavis337 View Post
even bathing with just water can dry the skin, and 2-3 times/day for a kid who has bad excema is a lot, i think. ...
Is your son bf'd? If so, have you considered that he might be reacting to something in your diet?
There are 2 teams on this issue, it seems. One says only bathe 1-2x/week and the other says many times per day. We usually give him oatmeal bathes, and we lock in the moisture asap after the bath, so we think it's good for him. Most of the dermatologists I've heard have an opinion go with the 2x/day theory, so there we are. Plus, he enjoys it and it seems to help him feel better.

He's ebf and we did a whole allergy elimination thing already. His skin seemed to react to citrus and tomatoes, so we've cut those out. Soy also seemed to make him super gassy, so we're not eating that, either. Other than that, nothing made a difference. Sometimes he'll have a good skin day and we'll look back and say "hmm..we ate practically nothing but bread and cheese!" so it's not dairy.

Steroids, imo, just suppress the system, and make the problem go deeper. So we're not doing that. We haven't decided on the Elidel or the antihistamines. I don't like that you have to give the antihistamines constantly for them to work properly. Oy. I just want my baby to be happy.
post #445 of 503
Quote:
Originally Posted by karin95 View Post
He's ebf and we did a whole allergy elimination thing already. His skin seemed to react to citrus and tomatoes, so we've cut those out. Soy also seemed to make him super gassy, so we're not eating that, either. Other than that, nothing made a difference. Sometimes he'll have a good skin day and we'll look back and say "hmm..we ate practically nothing but bread and cheese!" so it's not dairy.
I have been off dairy since late Jan., and beef since March. DS's eczema and cradle cap cleared up around Easter. I have however continued to eat cheese and butter.

The other day I was craving a fresh strawberry shake. I had DH get me a small hoping that DS had grown out of his allergy a bit. Nope.. two days later cradle cap came back. Since the shake was a one time thing it cleared right up however.

So I just wanted to point out that your child COULD have a diary allergy but for some reason cheese and butter wont effect him/her.
post #446 of 503
Evening primrose oil and bifidobacterium.
post #447 of 503
Quote:
Originally Posted by aniT View Post
So I just wanted to point out that your child COULD have a diary allergy but for some reason cheese and butter wont effect him/her.
Thanks for that. However, we don't drink milk, and rarely have anything with milk in it (the occasional ice cream), so pretty much it's cheese, butter, yogurt.

His itchiness was so bad last night, it kept him up for a long time. Which meant I was up for a long time trying to keep him from scratching and flailing. It's sooo sad!
post #448 of 503
subbing in. i have a 22 month old who has mild eczema--dry patches behind his knees that almost never go away. he calls them his itchies, and he's pretty good about trying not to scratch them. i haven't had time to read all the posts in this thread, but i look forward to learning from all your experiences. we are vegan, so diary isn't an issue for us, and i don't think soy is. i haven't tried eliminating different fruits and veggies b/c my ped had told me that the patches would clear up when it got warm and not to worry about them. well, it's june, and they are as bad as ever. so i guess i better start looking into other causes besides cold weather! thanks in advance for all your help!
post #449 of 503
karen95

Your son sounds exactly like my son was at 4.5 months, red, oozing, peeling, itchy, especially on his face. He is now 7 months and only in the last month have I noticed some major improvements. I'm not exactly sure if he is just starting to grow out of it or if all the stuff I am giving him is starting to help, I have never had a clear sign that something (elimination/rotation diets, supplements, efa's etc) made a difference. . Actually, this past month I have been cheating on my diet and he looks better than ever WTF!!

At the moment I have him on EPO, high vitamin cod liver oil, dairy free probiotics, digestive enzymes, a homeopathic remedy, acupuncture and I am avoiding the top 10 allergens in my diet. My homeopath suggested a bath with apple cider vinegar and epson salts, I have been doing that for 3 weeks and it really seemed to help with itching.

I just had some scratch tests done yesterday and milk, soy, eggs and cats came up positive! I don't understand these results as I had been very very careful to avoid milk, soy and eggs for months and there was absolutely no improvement in his skin. I don't know how accurate these tests are in such a young baby.

I also still swaddle him when he sleeps, I feel bad doing it but he will still scratch like crazy even though he looks better. My naturopath said not to worry about the swaddling hurting his development, she said in some cultures they swaddle until they are 2!!
post #450 of 503

breakthrough in eczema research

'Blood chemicals link' to eczema

By looking at the blood chemicals that are present during peak scratching times, scientists may be better able to understand what causes eczema.

http://news.bbc.co.uk/2/hi/health/6962450.stm
post #451 of 503
My 21 month old son has had eczema since he was 4 months old. We have tried MANY different diets and I thought I would share what has helped us finally gain control over it. I hope this helps someone...

We currently are GF/CF, soy free, egg free, nut free, seafood free. On top of all these restrictions we follow a low oxalate diet. Turns out some of his itchiness is caused by oxalates in foods. If you want more info on that find the yahoo group Trying_Low_Oxalates. He is very sensitive to sulfur in foods (cabbage, eggs, garlic) and his rash bubbles out of control with any sulpha medications or sulphite preservatives. He gets a strong probiotic: 150 billion CFU a day from VSL #3. I also limit his fruit intake and he has no sugar. He still nurses so I follow the same diet that he does. I believe many eczema sufferers are sensitive to foods and it takes perseverance to figure out which ones! We are very careful about all foods and supplements, we try one supplement or food at a time and only every 2 weeks. I am so sensitive to corn that a tiny bit of dextrose in a pill brought on eczema in my hands and horrible dryness during the summer months.

I bath DS daily using a chlorine ball filter. I add epsom salts (see:http://www.mothering.com/discussions...t-685026.html), sea salt (to help keep moisture in) and baking soda (to help balance body Ph). I use Vanicream on him when his skin is dry, emu oil . I have used steroid creams when it gets really bad, we use Atarax (antihistamine specific for food allergies) when he gets itchy and use the smallest dose that is still effective. An antibiotic cream when it gets infected. And what has helped immensely with the itching is a cream made with 1 teaspoon on NasalCrom, 1Tablespoon emu oil, and 4 oz of lotion. I really wanted to treat him naturally but it did not work and in the end I just had to treat the symptoms as best I could to help him get through.

Here is a pic of him at his worst:
http://i13.photobucket.com/albums/a2...s/DSCF2268.jpg
Here he is now:
http://i13.photobucket.com/albums/a2...s/DSCF2476.jpg
post #452 of 503
Help! Help! DD has been diagnosed with a form of eczema. It is patches of red, raised bumps and it is on her butt and back of thighs w/a bit on her hips. She scratches it non stop so it is scabby and gross. It started about a year and a half ago, she's five and a half now. So I have a few questions:

Could she have developed food allergies that are causing this? She never has had food allergy symptoms before this started.

What can I give her to help get rid of it? I was reading about flax seed oil earlier in the thread. Has anyone had any luck with that? What else can I put on it to help it not itch and get rid of it?

Any advice would be GREATLY appreciated. TIA!
post #453 of 503

Some info that may help

Hello folks,

I am a 34 yr old male and have had increasingly worsening exema for the past few years.
It was first noticed in 2001 after a bad sunburn. It layed low for some years (however, still present), but in around 2005 it began to get worse. First it was one spot, then another and another until I was innundated with uncomfortable and unsightly sores (I began to feel like a lepur). I had gone to a number of doctors and specialists all of which told me I had Psoriasis. I had known for some time that there was some link to the food I ate, but couldn't find the offending substances. When I told one of the specialist this, they told me to join a psoriasis support group and deal with my chronic condition. No doctor would believe it was food driven, No Dr. would help. My dermatologist even gave me a combo of a steriod cream and 3% salicylic acid.

I'm an adult with Exzema so severe it was diagnosed as psorisis by 3 specialists. The doctors simply didn't believe me when I told them it was related to foods in some way. My investigation took years and it wasn't till recently that I had enough "no" foods to link it with an actual substance (which I knew all along there had to be one common chemical). If anyone is interested in my daily tracking sheet, let me know (vman@sympatico.ca)

The story is long and I won't bore the folks here. Needless to say, I have finally (after years of experimentation and frustration) determined the source, salicylates and their mimics and some Oxalates (notably chocolate). If I had of realised this a couple of years earlier, I probibly wouldn't be so sensitive now.

My (only child) son is 2.5yrs and had very bad exzema as a small baby, it was easly cured (probibly best noted as treated) with a change in formula and salicylate reduced foods for breastfeeding mom. I fear that he may inhierit my condition, but if he does, I can teach him the treatment.

I joined a group and perscribe to a diet that primarily works for ADHD but eliminates the salicylate. If interested, the group is called the Feingold Association.




Good Luck,

Vaughan Martin
post #454 of 503
subbing


I'm awaiting C's non-diary probiotic shipment and her omega gummies. I'm hoping that will help her eczema. And hoping that will help her so she can sleep through the night. currently gets up twice a night.
post #455 of 503
Subbing.

Hi, I have been battling excema since my dd was 2 weeks old. Now I am finally going to do the elimination diet. I am going to eliminate dairy and wheat and eggs and soy. I have a feeling she is allergic to wheat because she looooooves cheerios and almost all starches. I haven't read the whole thread yet but is there a website for gluten free cooking for toddlers? Do any moms have any recipes that they want to share? What do you feed your child while on the elimination diet.

It seems that I have to get so creative with our food intake now (I am doing the diet too because I'm still nursing).

Thanks and I look forward to reading the whole thread and getting to know you mamas.
post #456 of 503
post #457 of 503
thank mclisa!
post #458 of 503
free2be, New Morning makes an oat cereal like Cheerios called Oatios that is wheat free (has oats and rice, though). I find it in my local health food stores and food co-op.
post #459 of 503
Just subbing. :
post #460 of 503
Quote:
Originally Posted by salfree View Post
The story is long and I won't bore the folks here. Needless to say, I have finally (after years of experimentation and frustration) determined the source, salicylates and their mimics and some Oxalates (notably chocolate). If I had of realised this a couple of years earlier, I probibly wouldn't be so sensitive now.
Dr. Feingold is definately onto something.
http://www.feingold.org/

www.enzymestuff.com has some info on this too ... many ASD kids are phenol and salicylate intolerant, so the best info is from that community.

A K2 deficiency, as well as imbalanced gut flora, are a couple of things which have been shown to cause the inability of the body to detox these foods chemicals. I'm sure vitamin and mineral deficiencies also play a role. Vitamin A is highly correlated with psorasis and gut inflammation too.
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