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Support for parents of preemies & NICU babies, #2 - Page 9  

post #161 of 284
Quote:
Originally Posted by boscopup
I want 3 kids, but DH is reluctant to do a third if our second is preterm. Actually, reluctant is probably not a strong enough word. I have parents in town, so it would be totally doable for me to do bedrest/NICU time and have the kids still watched by family, but DH doesn't want to deal with that stress.

I have a good friend who gets PTL starting around 16-17 weeks and goes on bedrest until 36 weeks when they let her deliver. Her mother came to live with her while pregnant with #2, so she could care for #1. Now they're just waiting for #2 to start talking before they TTC #3. All of her babies have been fine at 36 weeks - they were able to go home with mom and not do any NICU time, but the bedrest for so long is definitely a killer, especially since it's pretty strict bedrest. She begged for a cerclage last time, but apparently, while her mother had IC, my friend does not - she just has PTL that the OB is afraid would rip out a cerclage. So bedrest and drugs it is. Anyway, her take on things was that the months of bedrest are such a small sacrifice for the long life ahead of her children, so it's worth doing. When you think of it that way, I guess it makes it a more positive thing, ya know?
well I agree when you think of it that way the bedrest seems liek a small sacrifice. personally I haven't had to go on bedrest, but I feel like (at least my 33 weeker) has been really affected by the nicu stay (our relationship) I just think he has always not needed as much physical contact and I feel like he is more distant than my other kids (yes I have gone to extensive therapy) there are obvious extenuating circumstances such as a divorce and an abusive manipulative ex husband. but I do feel like the nicu stay rocked the fundamentals of my newborn bonding.

I remember bursting into tears while in labor with ds #3 saying that I couldn't handle him being sick, and that he just couldn't go to the nicu because I coudln't handle it. he was fine at birth and only had complications later related to gerd and jaundice. with my dd I was more relaxed (36 weeks) had a lot more faith it would be okay, but it was a different hospital and the midwife had two clients delivering 8 minutes apart, so she couldn't be there for continuous after care and my teeny dd had to go to the nicu for 6 hours just to be "safe" and I was there minutes after birth with my arms in the incubator, but she still developed issues later due to jaundice ( which I totally think is because she was deprived of nursing (or any other food) for 6 hours after birth) I just can't handle the advocacy or the trauma from the staff telling me how to care for my babies. ..... gtg bb
post #162 of 284
If it is any consolation mama, I too had a terrible bonding experience with my second, didn't get to see her for 26 hours after birth, didn't get to spend much time in the NICU with her, not much kangaroo care, had trouble nursing her for months, etc. and if anything she is a much more physical child than my first, who roomed in with me from birth and went straight home from the hospital with me and on the breast. My older daughter doesn't like cuddles and kisses very much, she's just sort of independant that way. My baby on the other hand, often walks up and just hugs me, or when I kiss her she signs to me "more." Some of it I just think is hard wired into kids personalities. Not to trivialize your experience in any way, and I certainly understand why you wouldn't want to repeat that.
post #163 of 284
yeah I know it has a lot (maybe most) to do with personality traits, Its just 8 years later those feelings around having my newborn born blue and limp and then having him torn from me for two weeks are still so raw, I wonder if there will ever be a time that it won't effect my life like this.
post #164 of 284
Wow, that is so hard. I hope it gets easier for you.
post #165 of 284
Hi mamas! This thread is so long so I didn't read it all, but I'm trying to see if a cute mama I met at my work posts here. I am a nurse in a NICU in Utah and met a mom and dad with a preemie there today, she seems so much like a mothering mama, CD's (I saw a cute embroidered FB from fussybutt at the baby's bedside today so I was like OOh I better say hi to her!), no vax, I think she wanted a HB, etc. I can't share personal information (I hope I already haven't shared too much but I'm trying to find her if she is here ), she has a little boy they call Vite, I know his real first name but not how to spell it and don't want to butcher it trying

Are you here mama? I'm Kimberly, the nurse that was in the next room who was taking abut the diapers with you today (Sunday).
post #166 of 284
BTW, I hope you all don't mind that I'm popping up here, I have never had a baby in the NICU, but I have worked in one for 11 years now and love reading you guys' stories. It really helps me put my work in perspective. And it's also nice to read stories from moms with babies in there who have similar philosophies as me, IYKWIM Feel free to kick me out if you need to.
post #167 of 284
Quote:
Originally Posted by crysmomofthree
yeah I know it has a lot (maybe most) to do with personality traits, Its just 8 years later those feelings around having my newborn born blue and limp and then having him torn from me for two weeks are still so raw, I wonder if there will ever be a time that it won't effect my life like this.

I know that feeling.
I never intended to only have one child but, I just dont know if I can do it again. There are so many variables.
post #168 of 284
Hi Mamas,

Jumping in here, didnt read entire thread but wanted to subscribe.

I had a normal delivery w dd1 brought her home, nursed etc. But I was on bedrest for 7 weeks from PTL. Having to go thru this, we were gunshy to start trying again until she was 3 just in case of bedrest etc down the road.

No worry about bedrest, never made it that far along w dd2. Maggie was born 2/15/06 at 24 weeks, 6 days and 1 lb 12 oz. or 810 grams. So if she was 12 hours later, she would be a 25 weeker but they call her a 24 weeker. A big 24 weeker! My due date would have been next week. But after 13 weeks, she is home now and on monitors, O2 and is nursing like a champ. I am hoping we can stop the breastmilk w enicare in it to stop soon and just straight breast milk.

As far as NICU stays, hers was pretty uneventful from what I have seen. She closed her pda w meds and had 2 staff related infections but that was about it. She has the normal stages in her eyes, negative on brain scans, has a touch of BPD (all micros get it as well as a bit of reflux) but thats the result of a nicu stay. She will be on caffiene for a while as well as zantac, amoxicillion (for kidneys, again another issue for micros). But she is tipping the scale at 5lb 7 oz and is in the NB size now and soon the 0-3 size.

Thanks for reading and look forward to chatting w you ladies!

As far as having more- I am 34. We would have to start trying asap since I do not want to do this at 40. But from my c section like pp said, I have to wait at least 24 months before hand and no way for a vbac. (this coming from my not so fond of c sections OB). also like has been said, we cannot go thru this again and be in this much pain of not being w our little girl for so long. The issues are long but we are very happy with our two girls and feel blessed. We had said, we would decide in a few years but after this, we just want some quiet to raise our family.
post #169 of 284
Kimberly-
What hospital do you work at? My 3 boys all spent time in the nicu at Ogden Regional Medical Center.
post #170 of 284
Quote:
Originally Posted by mara
BTW, I hope you all don't mind that I'm popping up here, I have never had a baby in the NICU, but I have worked in one for 11 years now and love reading you guys' stories. It really helps me put my work in perspective.
Welcome, Kimberly! I, for one, love to have NICU nurses around to talk about stuff like this. When my DS was in the NICU, there was a NICU nurse on my due month list, so she'd answer questions and such. It was really handy!
post #171 of 284
Thanks!

I am up at the U.
post #172 of 284
At the U is where my friend's baby spent almost 3 months last year, July until October.
post #173 of 284
Quote:
Originally Posted by nathansmom
At the U is where my friend's baby spent almost 3 months last year, July until October.
How funny! I had my baby in July '05 and took some maternity leave, but I wonder if I knew her. What was the baby's first name? Obviously I don't want to ask for private info on a public board, but maybe I'll know who they are by the baby's first name. I was not working alot during that time, I came back to work slowly starting in September after having my baby, but maybe I know them. I try to figure out the natural mamas LOL!
post #174 of 284
Kimberly check your messages I pm'd you.
post #175 of 284
Hi mamas! Jumping in here...

I haven't had a chance to read the entire thread, but I wanted to subscribe as well. At last, I have found a place with other moms dealing with this issue! I KNEW it wasn't just me.

Looong story short: dd was born at 41+ weeks in August 2004 with severe meconium aspiration. She was in the NICU for a total of 13 days before being transferred to the "floors" for another week before we FINALLY brought her home. (I still remember the idiot intern telling me that once she was weaned from the morphine she would be "ours to take home and keep forever and ever." wtf? Silly me... I thought she was mine already?)

Even though this was all 21 months ago, I find, like some of the posts I read here, I am still processing this. Dh and I know we want another, but all the usual feelings come up, and I know there will be some fear there if/when we conceive again. I can totally identify with what the other mamas here have said about the feeling still being so raw.
post #176 of 284
Hi, mamas. I subscribed to the thread and wanted to add my story if y'all don't mind.

My pregnancy was 100% textbook until 27wk6days when I went in to PTL for no apparent reason. I started having intense contractions while I was at work, and called my OB just in case. I was told to go home and lay down, drink water, see if they stopped. Then the doctor called back when I was about half way home and asked how quickly I could get to the office. He had reconsidered everything the nurse relayed to him, and wanted to check me just to be sure. I went in and was found to be 2cm dialated and 50% effaced. Not what I wanted to hear! I was taken to the hospital by one of the midwives and started on magnesium. I was then transported to another hospital 90 miles away because our local hosp. can't handle babies younger than 32wks gestation. Once at the second hospital, I was sent to bed still on the magnesium for about 48 hours. My labor finally stopped for good, and after four days I was sent home on strict bedrest. The following Thursday (one week after discharge) I had a regularly scheduled OB appointment, and was found to have dialated another centimeter, and my membranes were ballooning. I was again put on the magnesium, and this time I was helicoptered to the second hospital. This time, they planned to keep me in the hospital until I delivered. This was April 13...I was due June 27. Not my idea of a good time. On the 18th, my labor started again hard and fast, and I was put on magnesium for a third and final time and rushed down to L&D, just in case. My labor started around 5pm, and at 11am Wednesday, they realized I had progressed another 2cm (now 5) and my labor wasn't stopping. They turned off the magnesium at about 11:30am, and told me I would have my baby later that day. Since I was 30wks, and had received the steroids for her lungs, they weren't overly concerned. After 14 hours, I asked for something for the pain so that I could try and get some sleep, as I hadn't anticipated being in labor for that long, and didn't get sleep when things were "easy." I was given 1mg of Stadol, which was absolutely fantastic, but wore off after about 20 minutes. 2 hours later, one of the doctors came in to check me and found out I was completely effaced and dialated. My water still hadn't broken, however, so she said she was going to break my water and come back in about 10 minutes to check on me. She broke my water, turned around to put the instrument down, and when she turned back around, she yelled "HEAD!" and the birthing team came rushing in. I pushed twice and my baby girl came flying out. It took both doctors to catch her. She cried immediately, and was rushed out of the room to be checked. She was 3lb, 5oz, 17" long, and her Apgar scores were 9/9.

My DH followed her out of the room and was with her the entire time she was being cleaned up and transported. He got to follow her to the NICU and make sure she got settled in while they got me cleaned up. I didn't get to touch my baby until 8 hours later when I felt strong enough to go down to the NICU and see her. I ended up with a first degree tear and two stitches, I think because the docs told me not to push, so I tried not to, but my body was pushing anyway.

Samantha was in the NICU for 8 days, and the satellite nursery (feed 'em and grow 'em) for 19 days. The only thing keeping her in the hospital was her inability to eat. I too was told that I was not allowed to pump in the nursery, and that if I "insisted" on trying to breastfeed, I really had to cover myself with the screen so as to not "offend anyone." There were 2 LCs for the entire hospital, and about 200 babies at any given time. We got no assistance or encouragement, and I was told that things would be easier once we got home. That's a load of crap. She has never nursed, and I've been pumping every 2-3 hours for 45 days. She is too small to latch, and I have large, flat nipples, plus I basically have no idea what I'm doing. At least my milk came back and I can give her the milk she needs instead of that revolting formula (couldn't they make it smell even remotely pleasant?) which she hates.

A heart murmur was detected and she was found to have a VSD (ventricular septal defect) and a PFO (patent foramen ovale), both of which should resolve on their own. In addition, she inherited a kidney disorder from me. Her ureter didn't implant correctly, so she has kidney reflux. There is a 50/50 chance it will resolve on its own, and if not, the surgery to correct it is much less invasive than it used to be. She came home on Amoxicillan, Cafcit, and a heart monitor, which we have since stopped using. The docs still want her on the monitor, but she hasn't had an episode in a week and a half, and she hates the damn thing so much that she pulls the leads off her chest every time we put them on. Plus, she doesn't sleep very well when the leads are on, and since she's still supposed to be "cooking" she needs all the sleep she can get in order to get bigger.

I'm bitter, and angry, and feel incredibly cheated. My DH doesn't understand, because we have a beautiful, healthy albeit small baby girl. I'm glad he can be optimistic, but it's hard for me to. Yes, I am lucky that she is mostly healthy, but I missed an entire third of my pregnancy. I was just starting to be noticeably pregnant to strangers, and I loved feeling her move around. I loved my belly. I loved planning everything I would do with her birth. I wanted a homebirth, and imagined being able to pull her up on to my chest and nurse immediately after birth. I missed ALL of that, and still can't feed my child the "right" way. I'm tired of the dirty looks strangers give me when I give her a bottle, never mind that said bottle is full of breastmilk. It's infuriating, and devastating, and makes me feel like I've totally failed at this parenting thing already, and she's only 6 weeks old!!

Sorry, mamas. I know all of you have been through this as well, so it's not fair for me to gripe so much! I've just got a lot of unresolved anger towards the entire situation, I guess.
post #177 of 284
Oh, Sarah, my heart goes out to you. to you.

I can totally understand how you feel cheated by your birth experience. It is so hard when you eventually bring home a beautiful baby and people just expect you to be "over" all the weeks of trauma. I have a wonderful, understanding therapist who helped me through a TON of the after effects of my dd's birth, and I would highly recommend talking to a trained professional if you can.

Also, I would STRONGLY recommend you get ahold of la leche league ASAP and get some help getting your baby girl to nurse. I can say from personal experience that the sooner you get her nursing the more normal you will feel and the easier it will be to start to leave the hospital behind you. I was very fortunate to have great support from a good lactation consultant the day after we brought Sofia home. Thanks to her, I had the courage to remove the nasogastric tube and start feeding Sofia through a syringe, and within a week we were nursing competently. It would have been much longer had I tried to go it alone. You can find your local LLL chapter at http://www.lalecheleague.org. The women there are incredible, and will be a terrific resource to help you get your dd nursing. They will come to your house if you need them, too.

All the best to you.
post #178 of 284
Thanks, Dena. We went to LLL last Thursday, and I did feel slightly better, although no one there had ever tried to nurse preemie, so all they were able to do is throw out ideas. I'll see if our home healthcare system will send an LC out to the house.

Sorry so short. PAK (again!) :
post #179 of 284
Quote:
Originally Posted by sehbub
Thanks, Dena. We went to LLL last Thursday, and I did feel slightly better, although no one there had ever tried to nurse preemie, so all they were able to do is throw out ideas. I'll see if our home healthcare system will send an LC out to the house.
If I read your post correctly your dd is about 36-37 weeks now. You are doing great to be providing her with your milk by pumping all this time. I remember from our time in the NICU that some babies have a hard time learning to nurse until 36-40 weeks.

I know how hard it can be to try and get a baby to nurse in the NICU when they are not supportive. It sucks that they were so discouraging to you at the hospital.

If you want to talk about it many of us here would be willing to try and help.

I totally feel you pain. I keep typing things and them erasing them 'cause they sound dumb.

My dd was born at 30 weeks (2 lbs 4 oz), spent 8 weeks in the hosp. 6.5 of that in the NICU. A year and 6 days after her due date we are still nursing strong. I really want to reach out and help you any way I can.
post #180 of 284
Wow, I never dreamed there would be this many mamas in this situation.

DH and I got some bad news at our u/s last week (I'm 24 weeks now). They said they still couldn't find the baby's bladder, there is definitely something wrong. They are monitering fluid levels closely. They are concerned that the massive swelling caused by the urines abnormal excape route may cut off the path altogether, causing the urine to back up into the kidney. That would mean kidney failure and ultimately death if there were no intervention. They won't be able to tell the exact problem until after birth, but that looks like it will have to come much sooner than planned. I've been told to be prepared at every appt to have to stay for monitering. I get the impression I will be lucky to make it to 28 weeks. I really hope I do. After birth this won't be life threatening as they can catheterize her. They can even go through the abdominal wall if necessary. But now it is a huge problem. I'm not even sure what all to do to prepare. I've arranged childcare for my other two girls and read up on Kangaroo Care. I've also found some patterns for gowns and diapers in various preemie sizes. I'm not quite sure what else I can do to prepare. Any suggestions?
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