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please tell me i'm not going crazy, longish  

post #1 of 22
Thread Starter 
i think i'm having a problem with chemical sensitivities and i'm trying to assert i'm not losing what's left of my alleged mind. the last 2 or 3 weeks have been like something out of a nightmare and with the exception of my husband and my mother i am not getting much support. i have always suspected i have allergies. i mean i have this sneeze that everyone makes fun of that sounds something like several firecrackers going off in quick succession, i break out in rashes after using a lot of soaps and shampoos and lately even after showering in heavily treated unfiltered city water. once in a while i have a reaction to a blood pressure medication. but about 2 weeks ago all hell broke
loose, and we are still trying to figure out what happened, although we have a few guesses now. this is just a hypothesis:

a few years before ds was born i was lving by myself in this scummy shoebox studio apartment, & while i was in the process of moving to a new place (sleeping elsewhere, most of my stuff still at the old place) the slumlord who owned the building bugbombed it without my knowledge or consent, and when i came to pick up a load of things to be moves, i walked right into the chemical mist.

fastforward many years to now. i'm away from the scummy slumlord. things are a lot better even though i'm still broke, i've got 2 super-wonderful kids, an awsome husband, and am living in a totally different neighborhood. i've been shopping mostly organic at the local co-op, less than a block away, but, as dd has recently arrived, we decide to cut costs by shopping at the public market. i buy broccoli, cauliflower, zucchini, orange pepper... i figure, broccoli is probably safe right? i'll wash it.

well, the broccoli and the cauliflower at least were sprayed with something, in spite of what stats say about them being a safer crop. a lot of something, something oil-based that didn't wash off. (i guess this grower didn't read the statistics.) because after that, my body just went crazy...

i the evening i first ate the broccoli i got an all expense paid vacation for one to the hospital's ED for hypertensive crisis (i have a family history of high BP, both my kids were born early by emergency c-section due to high BP, and at 30 i've already developed chronic, VERY high blood pressure, but i have never been to the emergency room for it before!) following a severe bout of the runs. the broccoli was in a sauce, and i didn't notce it tasted funny then no one thought to ask what i'd eaten.

immediately after i developed these horrible symptoms, tingling in the hands, feet, and face, swollen glands, post nasal drip, numbness, dizziness, inability to focus on anything at all, anxiety, nervousness, loss of sleepnausea, just to name a few...i called my doctor's office several times a day and the nurses kept telling me it was stress or generalized anxiety (but i wasn't anxious until i got the symptoms!) i got hit with a horrible flu at the same time, and also began to experience a nasty reaction to my blood pressure medication, which i have been on for a while, although have difficulty remembering to take. (forgetfulness is a listed side effect, i found out yesterday.)

my doc did tell me to go back to organic because she says that pesticides have additives that act as stimulants, and that's probably what landed me in the ED. it took awhile for us to figure out there might be pesticides on the broccoli. when the symptoms worened everytime i ate something from that vendor my doc told my husband and me to measure my bp and pulse every time i ate a suspected food and sure enough, up it went. however, she is turning a deaf ear to the possibility that i could be having an allergic reaction to my toprol xl due to a recently triggered sensitivity.

i did a little homework - thanks to the help of a friend who had similar symptoms and got help. i'm wondering if the pesticides in the bug bomb and the broccoli could have contained toluene and if those exposures could have triggured a sensitivity? does my medication contain toluene? i'm trying to find out. i called the pharmacy, and it's not listed as an active ingredient of course, the manufacturer's web page wasn't much help & when i called their 800 number i found that they're closed for the thanksgiving holiday _until tuesday_ (probaly because they must have so many turkeys working for them they'll be short-staffed.)

i talked to my doctor about a referral for an allergist & she doesn't give referrals for allergists. no big whoop. the priestess who did our handfasting was allergic to everything up to & including air & now she has a cat & eats at diners so i'll just ask who she saw. I AM NOT LETTING THIS GO. i can't let this go. the dizziness got so bad wednesday that, when i was stooping to pick something up at the co-op, my baby tumbled right out of her sling!!!! my head was humming like a swarm of bees, i still feel like it was all my fault, and that i'm an awful mommy! i mean, i thought i had my hand there to hold her in, but i was so out of it from the med i really wasn't sure wherewhere my hand went. i feel like it's all my fault. i should never have let it get this far. i shouldn't have even been at the co-op. i should have just canceled thanksgiving dinner instead. it's just that no one seems to believe me about this, and i keep wondering if they might be right & its all in my head.

i have had enough of this, i can't stand it any more. i'm cutting the toprol in half & tapering off, & demanding something else for my blood pressure - like the hydralazine. i have to take it more often, but maye without the toprol meking me dopey i'll be more likey to remember. that's safe for nursing & has almost no side effects. i'm planning on switching docs, this one's been my doctor since i was 10 and i don't think she sees me as an adult yet even though i'm 30, married & have 2 kids. and i call a woman from the co-op for better instruction on the use of the sling.

i also called poison control, and told them it was a non-emergency that, i was requesting information aboout chemical sensitivities to pesticides found in foods. i was told, by a rather emotional woman, that it was impossible to get exposed to pesticides through foods, that all the poisons used in pesticides were "safe" amounts, that anything sprayed on broccoli would come right off if held under a steady stream of water for a minute or two, and that i was only trying to get her to tell me there was a government (or terrorist) plot to put formaldehyde in my broccoli. she yelled at me until i was in tears. i hung up. citizens of rochester, ny, this is the same woman responsible for helping you save the life of your child should he or she eat some weird berries or swallow a household cleaning product or something.

am i crazy? does anyone here think i might have a shot at being right about this, or am i just coming up with crazy convoluted rationalizations because i don't want to take my meds, which is what my doctor thinks. my body still feels pretty miserable. please tell me i'm not just cracking up !
post #2 of 22
It sounds like the first course of action is to get your blood pressure under control with new medications, with a new doctor if necessary. Whether it is caused by chemical sensitivities or not, your doctor should recognize and respect the new reactions to your medications. There are so many different bp meds to choose from out there, that you should have lots of options. Uncontrolled blood pressure can cause many problems, including kidney failure, so I'm not sure you should change your quantities by yourself.

Go back to all organic, no questions asked.

Check out this website for info on allergies and a little info on chemical sensitivities. www.drrap.com She also has lots of info on food sensitivities

If you do an search on chemical sensitivity, you may be able to find a lot more info.
post #3 of 22
Thread Starter 
for some reason that link wouldn't display.

i did some searching on chemical senitivity, and what i found was a lot of religious stuff. i really, really don't want to cause offense to anyone on this board, but i'm neo-pagan and i fail to see the connection between jesus and chemical allergies.:

isn't there anything a little more practical out there?
post #4 of 22
You need to see a doctor that specialize in environmental medicine.

I will see if i can find some websites for you.
post #5 of 22
I just noticed that you are in western NY state. There is a doctor in Buffalo, Kalpana Patel that is a pediatricain and environmental doctor. Maybe she can help. She is a friend of Dr. Doris Rapp.

Dr. Patel phone number is (716) 837-1320

She may have a web site too.
post #6 of 22

You're not crazy!

You have some health issues that need addressing though. You may have an allergy to broccoli itself, too. I know that ingesting food you are allergic to can raise the bood pressure. it is one way to test for allergies, by checking bp after ingesting certain foods. Allergic reaction can be traced ultimately to the liver. The liver cleans all our blood, processes hormones & has many important functions. When it is toxic & sluggish, exposure to chemicals, meds, etc., it is common to have your kind of symptoms. There are some good herbs for controlling BP, skullcap, passionflower, valerian root, -you may want to wean yourself onto something more body friendly. Cucumbers are also recommended for helping control BP. In any case, you might want to consider doing a liver cleanse. Milk thistle seed is an excellent place to start. It comes in a capsule & is very cleansing & nutritive. Also fresh carrot, beet, parsley juice, or just fresh grated carrots & beets with minced parsley. Super greens, like spirulina, chlorella are wonderful antioxidants too. See if there is a chiropractor in your area who does applied kinesology(sp?), it is a non-intrusive way to find food allergies. Also take large doses-to bowel tolerance- of Vit C-ascorbic acid, to help detoxify. It is a key element to contolling high BP. You have to keep the bowel moving while cleansing or you will auto-toxify youself as you cleanse. Diarrhea is the bodies' natural reaction to quickly removing toxic matter & should rarely be suppressed or treated with anti-diar over the counter products. I have an idea what you are going through & I feel for you! I had these kind of problems years ago, before I learned about herbs & cleansing. I had marked intestinal candidasis that made me sensitive to perfume, exhaust, smoke-to the point where I would practically go nuts when exposed to these toxins. I had body rashes too, thinning hair, it was very unpleasant. I was willing to do ANYTHING to feel better & got Dr. William Crook's book The Yeast Connection. It turned my symptoms around-rash gone within 3 days of sticking to the diet. It is a very strict diet and not easy to maintain, but worth every effort. I wish I could be there to cook for you & nurture you in this healing crisis you are having! Let me know if you want any other suggestions!
post #7 of 22
No help here Frodo, but I wanted to send big your way and hope you find a good doctor, get better meds, and feel better VERY soon!

You must be miserable right now, all those symptoms! You're not crazy, your doctor just isn't giving you the help you needed, and the poison control lady is going to believe what she learned as gospel from the goverment (well I'd assume the goverment is who pays for their training : )

Trust yourself and get some help! At least your husband and mother are supportive, right?

Get better soon!!!
post #8 of 22
Here is the web site for Dr. Patel, Allergy and Environmental Health Center of Western New York.

www.medical-library.net/doctors/patel/
post #9 of 22
Thread Starter 
i tried controlling my blood pressure with herbs before i was put on the meds. they helped some, but it was far too high.

is broccoli a common food allergen? i should think it would be more likely that i'd react to the junk that was sprayed on the broccoli. and i know it was sprayed with something, because when we tried it later, without the sauce, i could taste it, it was horrible and didn't wash off. it was on the cauliflower, too, and the cabbage i think. everything we bought from that vendor.

it is high time i see an allergist. there have been a lot of things that have needed explaining for years. my doc has avided the issue. well, it's not going to get avoided any longer. i've never switched doctors before. what questions do i ask of an allergist once i find one? i mean, s/he'll obviously have to take our insurance, but how can i be sure our lifestyle choices will be respected & i won't be treated like a total new age flake for even asking about chemical sensitivities?

the reason why i posted to this board instead of the health board is because i hope to figure out how to cut down on toxins and allergens in the home. the challenge: we are lower-middle income renters. the plumbing's not ours, nor are the appliances, ditto for the washers. we have a britta filter for drinking water, i'm not convinced that's enough but for the sake of affording wild luxuries like food it'll have to do for now. we may eventually be able to get filters for the shower, and maybe even the tub, and probably for the kitchen sink, but that may take a while. the washers down stairs - what do i do about laundry water? am i being too paranoid about this?
post #10 of 22
I went to Dr. Rapp's site and copied the link directly.
http://www.drrapp.com/
It sounds like Dr. Patel is nearby and along the same lines as Dr. Rapp. That should work out well for you if it is covered in your insurance. Maybe they can recommend a general practice doctor for you that is respectful of the allergies and chemical sensitivities.

Under the circumstances, I don't think you are being paranoid. You don't know what exactly is causing your symptoms, so you have to suspect everything.
post #11 of 22
Frodo, I don't think you're being paranoid; you obviously feel rotten and you should listen to your body!!

In this country unfortunately all chemicals are "innocent until proven guilty," so there's no approval/regulatory process for the vast numbers of untested chemical substances out there. Not to mention no one's studied what happens when we're exposed to all these chemicals in combination. There are way too many people out there who suffer from chemical sensitivities for this to be paranoia or new age flakiness! In my opinion, people who accuse sensitivity sufferers of paranoia are just in an advanced state of denial.

I don't think you need to spend a lot of money to try to lead a healthier lifestyle. Organic food is obviously more expensive than non-organic, but if you cut down/cut out processed/convenience foods and buy organic fruits/veggies/whole foods instead, that's a cost savings. It's also cheaper to eat lower on the food chain organically. Try to eat seasonally, because what's in season is usually cheaper. When spring and summer roll around, look for local farmer's markets and CSAs (community sustainable agriculture, where you pay for a share of a farm's produce - often cheaper to get a weekly "veggie box" of a local farm's produce than to buy at an organic foodstore). Look for coops, etc. where you can get bulk beans, grains, etc. Make your own bread, etc.

In terms of cleaning your house, too, it's cheaper to make your own cleaning supplies from baking soda, vinegar, borax, etc. than it is to buy the chemical crap from the supermarket. These boards have great cleaning ideas as does the book Clean House, Clean Planet which you could check out from the library. If you do buy commercial laundry soap, etc. get the stuff that's free and clear of perfumes and dyes, which are huge sensitivity triggers.

We bought fairly inexpensive shower filters that are an all-in-one type showerhead/filter, with replaceable filters. It makes a big difference. You can get a Pur water filter that fits on your kitchen sink faucet; I think they're cheaper than replacement Brita filters in the long run plus you can use filtered water for washing veggies, etc. A whole-house water filter is pretty expensive, but maybe you could hang your clothes out to air outside after you wash them to help dissipate any chlorine residue.

A HEPA air filter for your bedroom is a great investment. You can also get HEPA bags for your vacuum cleaner if you have one. Getting rid of carpets is a great way to help detox your home if possible; not only do they offgas chemicals but they're breeding grounds for dust mites, molds, etc.

I would start keeping a journal of foods/meds/possible triggers and write down how you feel when, to have a record to discuss with the allergist/environmental medicine specialist. This may also help you find patterns to identify for yourself what makes you feel sick and what makes you feel better.

I know it's so hard for you right now, feeling so sick with little babies to take care of, but you need to take care of yourself and be strong in your belief that you need help, so that you'll be healthy and strong for your kiddos. I hope your husband/partner can step up and take over some of the childcare responsibilities right now to give you some rest and recuperation time.

OK, I've just written a novel, but I hope there's something in here that helps, and I hope you feel better and stronger soon!
post #12 of 22
You aren't crazy, you aren't crazy, you aren't crazy. I'm so sorry you've been made to feel crazy, but this is your body you're living in and you're the resident expert! What you're experiencing is real and you deserve a doctor who will take you seriously.

Wishing you good luck in your detective work, and good health ASAP!!
post #13 of 22
Thread Starter 
does a pur filter do a better job than a brita? the pur is a little cheaper, but not by much, they're really about the same. my biggest concern is what works best. is there a filter that will remove flouride from the water as well as other toxin? i know that britas and purs do not. i don't know if i have i sensitivity to flouride or not, but i hate having it in there. ds's doc told us to switch to a non-flouride toothpaste because he was showing signs of flouride overdose. we already _were_ using a non-flouride toothpste!

whole-house filters are wonderful, my parents have one, and if we ever own, we'll definately make it a priority, but we live in a dinky apartment, which we rent. our wonderful landlord's already given us permisson to rip up carpeting if we want, just because it's ugly. not that the flooring's more attractive. there's a shop up the street that sells rebuilt allergy vacs for $80 & up. which should be the first priority, the water filter, or the vacuum?

my wonderful idiot husband brought home this cheap bag of garbage sacks - scented. the angry swarm of bees in my head just got angrier. he didn't know, he didn't think, but...argh!

we're already lacto-ovo vegetarian, and this whole thing got started because we stopped shopping organic in the first place to save money. there's a co-op less than a block away, where we shop regularly. we usually buy bulk etc. & recently we picked up a pamphlet on CSA. i guess we just have to make things stretch a little further, like buying more bulk pasta instead of getting ds annie's every week, and using millet or barley instead of brown rice or quinoa, and making my own red sauce...it's already pretty tight...
post #14 of 22
Thread Starter 

make it stop make it stop make it stop

*whimper* i'm so miserable. it feels like my body's going crazy right now. i went out to eat at an almost-totally-organic restaraunt. everything i had was organic, except for the tortillas...i don't know whether it was something i ate or whether it was hubby's scented garbage bags or whether it's the tons of stuff that still need to be cleaned up and thrown out around here but i am so-o-o-o miserable! i just want to curl up in a little ball and cry! i can't even go on a cleaning rampage because the only garbage bags in the house are the scented ones and i daren't touch them! should i just give in and pop some benedryl? i think that'll mess with my milk supply and dd is going through a growth spurt but this is so awful!

sorry i'm whining...i'd like to say i don't whine often but truth be told i could whine for the US & bring home the gold if they made it an olympic event...
post #15 of 22
First of all, go outside and breathe some fresh air. See if that doesn't make you feel better.

Throw those scented garbage bags away. Your health is more important. Get rid of anything scented that bothers you, detergents, dish soap, shampoos, dryer sheets, etc.

Ask your dh or landlord to check for a gas leak. Maybe in the furnace or stove or hotwater heater.

Eat simple stuff like plain rice with butter or things like that, avoid sauces, spicy stuff, casseroles that you do not know what is in it.

Go to the library and get some books on chemical sensitivity.
Like books by Dr. Doris Rapp, Lendon Smith, um I can't think of the others, maybe look up allergies and environmental medicine.
Nontoxic and Natural is a good book.

If you have the money buy an air purifier.
post #16 of 22
Thread Starter 
ok...i feel better now...i found a web page that told me how to do a "scratch" test to check & see how high my body's histimine level was & i guess it was pretty high because that little line hung around for awhile. i dug up the april issue of mothering & looked up the dr. hale article on medications & breastmilk & found out it was the decongestants that mess with milk supply, not the antihistimines. i called a la leche volunteer just to be sure, and then sent hubby marching out for some benedryl. because its sedating dd slept in the crib & i felt guilty about that but i feel so much better now. when i find an allergist i'll see about getting a script for a non-drowsy med - in fact there's one that might even work for my blood pressure too! still kind of "buzzy" today, but no where near as bad.

an air filter is out of our reach at the moment, but i might be able to get the relatives to chip in together for the holidays. i was going to ask for an allergy vacuum first, tho, then a shower filter. we're probably going to need filters. we're in rochester, and two words: "eastman kodak".

we're throwing out anything containing tolunene. my husband and i were into the goth scene when we met, so i spent a minute saying godbye to my aqua-net. : (pathetic) i did another scratch & i think my histamine went up JUST HOLDING THE CAN! the cheaper nail polish has got to go, but i think my tish-n-snooky's is safe. we're also getting rid of anything with sodium laurel sulphate, since i strongly suspect that's a problem too. should i allow hubby to keep his shaving foam even though i don't use it or should i snatch this opportunity to force him to keep the fuzzy adorable sexy teddy-bear beard he's been growing?

the perfumes are a little confusing. i haven't used commercial perfumes for a long time, not because i suspected alleries but because i am a vain pretentious princess. i have a lot of pure all natural perfume oils in vegetable bases, which i scrimped and saved for, and many i mixed up myself from essential oils. toss or keep? i'm afraid to open for a sniff test. maybe stash them in a box and when everything else is cleared up do patch tests?

what about the craft and art supplies??? how can i tell what i can keep and what i can toss? do they make allergy free craft supplies? do they make allergy free professional grade art suplies, specically chalk pastels? ds's play chalk has to go, though, the dust is driving me crazy, but i know they make allergy free chalk, right? they have to have it for schools, don't they?

we don't use toxic cleaning products, so there's nothing to throw out there...anything i'm missing...

as for what made me so miserable yesterday at the organic restarant, one might be tomatoes, and the other...oh, it's too awful to tell...i might be allergic to organic chocolate! i hope i don't have a problem with wheat too. how am i going to live without my bread machine? what are the major food allergens so i know what to watch for?

thanks for your help everyone!
post #17 of 22
Frodo, You can move to Arizona, live in a adobe hut, not have anything unnatural or scented around you, organic food and drink, hepa vacuum and air purifier, and you will not feel better until you clean up the polluted environment that is present in your body. You are overloaded & toxic right now and no amount of housecleaning is going to undo or detoxify your body. The filters & organic food will help by not contributing to more accumulation of toxicities in your body, but you will not get relief from your maladies until you address the issue of cleansing your blood & liver & restoring some balance in your gut. Benedryl is only helping your symptoms and supressing your livers' ability to make histamine-which is a natual reaction to chemical overload. This will not address the issue or solve the problems or give you long term relief like detoxifying will. Major food allergens are corn, wheat, oranges, beef, peanuts, milk & dairy, aged cheeses(molds), yeast, mushrooms. there's more, I just can't think of them right now.
post #18 of 22
Poor, poor frodo! What a lot of work you need to do to feel good. Wears me out just reading it, and I'm not the one with the symptoms...

You aren't whining, honey. In my book, whining either means you don't have anything to complain about, really, or that you aren't doing anything to help yourself. Complaining when you have plenty to complain about and while you're working your butt off to feel better? That's not whining.

Looking at the websites, it seems like the Pur filters remove a few more contaminants than Brita. Don't know if it makes a lot of difference, but I have a few Pur filters (the kind for the fridge pitchers, not the faucet kind) that I would be glad to send you. I recently dropped our fridge pitcher and broke it, and we switched to the faucet kind. Just pm me if you want them.

Also, we have a hepa vac that we bought new for $80 something - the 'Hepa Shark'. It's a really lightweight canister that works really well.

Don't have any other ideas or help for you. I don't know anything about environmental illness. Just want to voice my support... Hang in there.
post #19 of 22
Thread Starter 
can i safely detox while breastfeeding?

i might have to take the benedryl just to be able to [i]function[i/] long enough to get the toxins out of my home. it's not going to get any better at all if i have to go on not feeling my face. then i can worry about detox. i have been trying to read a little about that to, but this has all hit me like a freight train and i can only handle so much at once, especially feeling like this. there's a natural hygiene group in town, and i was thinking of trying to contact them, but only after i have all this garbage out of my home, have found a new doctor and an allergist.

actually to be honest, usually the woman makes me crazy but right now i kinda want my mommy... my poor husband. i hope this isn't going to get to be too stressful on him. he's already pretty wonderful and puts up with so much, even if he buys toxic garbage bags. (hope he keeps the beard!)
post #20 of 22
I know I say this to everyone - but you need a homeopath. an alergiest could be helpful. and esp that environmental person someone mentioned - so I'm not saying don't go to anyone else. Just see a homeopath. A classic one. And if they have experience with alergies (most homeopaths are familar with alergies and food issues), that would be great. These symptoms are very familar to homeopaths. It's not in your head, you need to get help. They can help you lessen your meds without stopping them cold turkey, and then resolve your issues to get you off the meds.

If you're concerned about insurance, most homepaths are considered general practitioners and you can have them check your insurance coverage before going in. And a lot of them are willling to work with you for payment plans, etc.

If you can't find someone in your area, PM me and I'll refer you to mine, she does some remote counseling and works well in this area.

Take care.

Lori

ps, I don't know what you're considering for detox, I didn't read that part. But I believe it's contraindicated during breastfeeding.
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