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Healing the gut tribe : September

post #1 of 139
Thread Starter 
Hi ,

If you are new to this tribe please check out our original and previous threads :

http://www.mothering.com/discussion...12&page=1&pp=20

http://www.mothering.com/discussions...=320840&page=1

We are mamas who are on a gut healing path for ourselves or our little ones through diet and natural supplements. The diet most of us are using is the SCD diet (again refer to the above link for explanation) or the Maker's Diet. Some are using the SCD with adaptations from the Maker's Diet, but still SCD legal. We're learning as we go and offer support and our experiences. To view some of our children's stories visit :

http://www.mothering.com/discussions...d.php?t=260393

http://www.mothering.com/discussions...d.php?t=313758

http://www.mothering.com/discussions...hlight=autism&

Healing the gut is SLOW , but it can be achieved.

I hope some of you may find this thread helpful .

Peace,
post #2 of 139
Wondering if anyone here has had true success with either of these diets for colitis? I have searched for this here and found nothing.
post #3 of 139
Subscribing
post #4 of 139
Quote:
Originally Posted by tayndrewsmama
Wondering if anyone here has had true success with either of these diets for colitis? I have searched for this here and found nothing.
Check out the support groups, there should be a lot of experienced SCD'ers with colitis there.
http://www.breakingtheviciouscycle.i...rt/support.htm
post #5 of 139
Hey everybody, I finally found this thread, I forgot it was September already!

I think I found a cheap yogurt maker, it costs $27 on Amazon with shipping, but I might get one through craigslist for $9 (I hope). It's here if you don't want to mess around with your oven like me:
http://www.amazon.com/exec/obidos/tg...arden&n=507846

I hope this machine will work with the 24 hour yogurt, I'll let you all know how it goes. I'm also going to try making yogurt from room temperature milk w/out scalding. In Japan we had some starter that someone gave us and we just mixed it into a 1/2 quart of milk and set it on the counter overnight. No boiling or anything required, and it always made great yogurt the next day. And we just saved a bit of the yogurt to make the next batch, and never had any problems with the starter dying or anything. It lasted for months. Wonder what the big difference is? I think the pasturization milk process is a little different in Japan also, the milk there tastes different.

I've been so excited with Micah's poop, they are yellow, pasty, and curdy. I am starting to come around to this whole SCD thing, slowly I have stayed away from breads, white sugar, and potatoes and it is not as bad as I thought. I think we will start after I get back from my trip this month. Micah has been getting really itchy after sitting on the couch (it has dog dander all over it) so I am hoping the SCD will help heal her of environmental allergies as well.

Looking forward to hearing updates from everyone!
Liane
post #6 of 139
Yay for Micah! So glad to hear your good news Liane.

As for me, still waiting on the book, Amazon just shipped it out today. I should get it next week.

In the meantime, I've been using up the illegals in the house. Not all at once mind you! :LOL I've been trying to get into the habit of eating mostly legal foods, to prepare for when we start the diet. I can really notice a difference when I stay away from the bread, pasta and potatoes. I feel less bloated/stuffed

So far, DD has been pretty good with the choices. When she asks for something, I can tell her truthfully "I'm sorry, honey, we don't have anymore." She's pretty good about then asking for something else, or choosing one of my suggestions. Hopefully, this will ease the transition.

I can notice a difference in DD's poops when she eats the SCD legal foods too. We had some tuna and her bm's from it were well-formed but soft and yellowish. She passed them with ease. This is different from her normal bm's which are much darker, harder, although well-formed. She's usually constipated more often than not. Poor dear.

So the SCD may be a really healing thing for both of us. Amazing.
post #7 of 139
Hello all. I have said before that I am going to be scarce as I have computer access maybe once a week, but I hope that changes soon! I was wondering...I started kiddos on the diet about a month ago. Two weeks into it we got allergy tests back and found that many of the things I was giving them, they were reacting to. It has been two weeks since I have taken all of the allergens out of their diets, and as a result strayed a bit from SCD. There are so many things that SCD allows that they can't have... it is a real challenge. That said, I have noticed a definite backslide. I want to attack the diet again and really do it properly (their guts are SO bad) but I'm wondering what to do about the allergies? Elaine doesn't really go into it in that much detail in her book. The reactions aren't severe do reintroducing the foods wouldn't really tell me all that much. I guess my question is that if the SCD really does heal the gut, do I need to eliminate the offending foods? The doctors said to wait several months before reintroducing them, but If I'm truly healing them, is that necessary? Is it possible to talk to Elaine? I just need some guidance so I can start knowing what I'm doing is "right."
post #8 of 139
Elisabeth, It's difficult when you need to avoid certain foods.

You may want to try the lists, especially Pecanbread. The mamas there have children with multiple food allergies and may have much first-hand advice to offer you.
And of course, rant here with the tribe when you need to. We support you!

From what I have read on a few of the lists (Long Island listserv, Pecanbread, and Healing Crow), it seems it is best to take it slow when reintroducing food. Even though the allergies may not be true allergies and may subside once you heal the gut, I think you will need to take the time for the healing before introducing the food.
If something is still causing a reaction 2 months into the diet, try again at 4 months, etc. Good luck, mama!


As for talking to Elaine...sadly, the news on the lists is that she just passed away yesterday.
post #9 of 139
Elisabeth,

I thought this info might be helpful. Elaine participated on the list ElainesChildren. While the list is no longer active, the archives are searchable for information. A quote from a message in the Pecanbread list:

Quote:
The ElainesChildren list archives are full of wonderful info about SCD.
It is the only searchable list where Elaine Gottschall participated.

How to use the search engine:
http://lyris.dundee.net/read/search/...laineschildren

If you are interested in egg allergy you type :egg allergy Then click on
"all". If you do not click on "all" you will get every post about eggs
and every post about allergy.
--
post #10 of 139
Thread Starter 
Hi everybody !

Sorry that I've been so absent. Bear had a backslide of vomiting again everyday for about 3 weeks so this mama had to go back in the research cave . Hard work does eventually produce results . We are now on our 6th day of being vomit free . Had nothing to do with the diet. Seems Sierra might have gastroparesis (literally means paralyzed or partially paralyzed stomach). She was vomiting undigested food she had eaten 8 hours previously despite taking two Houston's enzymes with meals and snacks and lemon juice 30 min prior to eating. This could have easily contributed to her dysbiosis. Her chiro believes that her subluxations could have caused possible gastroparesis. I found a support site for patients with this diagnosis. Very few doctors even recognize it as a diagnosis. Our two GI docs never mentioned it :. Sierra fit the profile perfectly. My resource for herbs that promote gastric motility led me to ginger. It also stimulates appetite. I bought some pure ginger extract from the HFS and she takes it no problem three times per day. It is SCD legal. I found some info that acupuncture and chiro are helpful so she started going for acupressure on Saturday. Enough about us .

Zanlee - Foul or putrid smelling poo indicates bacterial overgrowth. I would get the CDSA stool test to be sure on one so young. www.gsdl.com .On a SAD diet bananas can fuel the yeast overgrowth in the same way as sugar and white products.

Sassykat - I only bought one MD supplement and found that it was not beneficial for Bear. Elaine does caution against using the Primal Deffense because there has not been research to determine what the HSOs do in humans. The only other thing I would suggest is calling the company, but you may receive a biased answer .

Liane - YEAH ! You are journeying down your own path to discovering what is best for you and Micah. You are coming along much more quickly than I did. I hope that your yoghurt maker holds a temp better than all of mine did /

Loon13 - I'll be excited to see your post after reading the book. You seem so ready to "jump in".

I want to share what Elisabeth and I discussed last night. Selkie was doing great on the SCD ( eating had dramatically improved and attitude had also been an area of change). Elizbeth introduced potato back into her diet and her appetite diminished. She was wondering whether she had to keep all the offending foods out of her diet as she felt they were not "allergies", but foods that Selkie did not tolerate well. My best thought was to place her back on the SCD 100% since she had been doing so well and keep her on a diet free of all offending foods for 2 months and to watch her progress in all areas very carefully ( stool appearance and smell, attitude, amount eaten, sleeping patterns, and speech). After the two months (if all is going well and progressing) start to introduce only one SCD legal offending food at a time and give it for a period of at least 7 days before starting another. During this time look for changes in all areas that might indicate she is not doing well with the food.
Let me know if anyone disagrees with this .

Peace and happy diapers!
post #11 of 139
Update on us: DS is currently raging against the night... I think we may have gone a little too fast on enzymes and it is either causing die off or hyperactivity or who knows what. His sleep is back to being total crap.

Just had a lovely conversation with Elizabeth tonight though

She is noticing tremendous changes in herself and in Selkie and Quillian with SCD and will pick up the 'Enzymes and Autism' book. We also discussed the fact that Rotation Diets are next to impossible with so many restrictions. But since SCD is predicated on easily digested foods that minimize further damage, plus probiotics and then maybe enzymes will heal the gut enough so that a classic Rotation approach to allergies/leaky gut is not the only answer.
post #12 of 139
Hey good news here! Micah's poop analysis came back and she does not have any fungi or parasites. Yay! So we are going back to the naturopath next week and I will see what she suggests next. Since her poops turned yellow right after I cut a few more things out of my diet, hopefully she will do a bit better from now on. Should I mention the SCD to my NP? I know the book says to do the diet after "talking with your doctor" but how many people actually do that? Doesn't the diet just sound hokey even for NPs or people not familiar with the diet? I want to start after we come back from our trip. I'm not sure how it will go for 2 weeks without probiotics, should I try to find some that are ok at room temperature? Or just bring a softpack with ice in it and hope they stay cold? I kind of don't want to go 2 weeks without my CLO either...fish caps just don't seem the same... What would you all do? Micah's poops are so much better when I give her 2 or more doses of probiotics a day. And one more question, can you give flax oil to a 7 mo old? How would you administer it? She drinks water out of a cup, but that's about it, maybe with a spoon? She has some dry skin on her back and I think the flax oil would help a lot, what do you all think?

Hope your babies are all doing well!

Moneca, how is it going with the ginger extract? Is it hard for her to take?

So sorry to hear the news about Elaine...

Jane, hope you guys are sleeping again soon, it's so hard to be sleep deprived and worry about your diet.

loon13, hope your dd's constipation is helped with the SCD, it takes some getting used to, doesn't it!

tayndrewsmama, did you find the info you needed?

Jennifer, where did you go?

I finally got my head out of the computer and we went to take 6 mo family portraits the other day, I'll post a link after I get them so you can all see what we look like!
post #13 of 139
Liane,

More good news! I love it!

Depends on your relationship with your NP whether you feel comfortable talking about it. I think emailing or printing out these links for them would explain it very well....and I think you would be doing them and any future patients a favor!

I know it's hard to feel like you are saying you know more than medical professionals. But the SCD isn't hokey, it's backed by serious scientific research. Dr. Hass was one of the most well respected nationally known peds of his day for his work.... and the diet was recognized as the cure for celiac disease as he was one of the original researchers to study it. Elaine Gottschall went back to school after her daughter recovered from the diet, got master's degrees in nutritional biochemistry and cellular biology and spent many years studying why it worked.

http://www.breakingtheviciouscycle.i..._the_diet2.htm
http://www.pecanbread.com/scdscience.html
http://www.breakingtheviciouscycle.i...ac_disease.htm

I would bring the probiotics in a small cooler pack, that's a great idea. Then just refrigerate them or refresh ice or packs when you get there. As discussed before, they don't go bad quickly when not refrigerated, refrigeration just prolongs their life and quality. I don't know exactly how long they can stay at room temp. It depends on the formulation. For ex. I use Yogourmet yogurt starter, and that's always been unrefrigerated and never had a problem with quality yet (and I've kept it in cupboard for over 8 months, still going strong).

Nordic Naturals makes single dose packets http://www.omega-dha-epa.com/productcod_singles.html

When DS was 8 mos old our naturopath px'd 1/2 tsp. of flax and 1/2 tsp. of cod liver oil a day. I just taught him to use a spoon, but you could probably mix in food too. And according to "SuperImmunity for Kids" if flax doesn't help dry skin, replace with evening primrose instead. Something about how kids process the oils differently, there's a conversion process that needs to happen with flax that epo doesn't require.

Thanks for the good sleep wishes
Last night he slept through (woke up at 6:30AM tho). Thank goodness it's now the weekend and DH's turn
post #14 of 139
post #15 of 139
Thanks again for the info, Jane, I'll write down those links and give them to our NP next Tuesday.

Your pictures are lovely! You have a beautiful happy family.

Since we won't get our pictures until forever, here are some for now :

here

and here
post #16 of 139
Thread Starter 
Liane - Glad to hear the good news . Great pics. I love seeing what all of you look like after corresponding for a while. I would take the probiotics and clo in a cooler pack. Two weeks can make a difference. Actually, I just mix a little ginger extract with a tsp. of lemon juice and an oz of h2o. She takes it from a bottle no problem. She has never had sugar and likes tart tastes. My ND actually knew what the SCD was.

Jane - OMG :LOL I always imagined you as this tall blonde studious looking hippie mama :LOL. I figured you had Luke's coloring. Wonderful family pics. I need to update Bear's site since those pics are almost two years old . Thanks for the Tropical Traditions link. My order arrived yesterday. Mercola also suggested TT yesterday. He's obviously behind you on the research :LOL.

Peace,
post #17 of 139
Hey Liane, I'm here, just took awhile to find the September thread. Also, ds hasn't been napping lately, or when he has he's needed me to hold him, so I hadn't been able to get on the computer much. Oh, and we went camping last weekend, and I'm still tired from it! It was our first camping trip as a family, and boy was it hard to sleep on the ground after all these years! I'm getting an air mattress.
Where can one find good recipes and menu ideas for the SCD? I'm wondering how to make a well balanced meal for ds (and myself).
post #18 of 139
post #19 of 139
Okay, ladies. I'm sold. Haven't gotten the book yet (it shipped though) and I want to get started on a digestive enzyme. I'm hearing Houston is the way to go, but which enzyme specifically? Thanks for your continued help! I feel like we're one step closer every time I read this thread.
post #20 of 139
Thread Starter 
Elizabeth,
Houstons enzymes are used by a good portion of the autism community on pecanbread.com I started out using Zyme Prime SCD. The SCD versions are made from aspergillus and do not contain any illegal carbs. After visiting pecanbread and healingcrow yahoo groups I noted that Andrew (happens to be an adult on the spectrum) suggested Zyme Prime HN and Peptizyde. I remember reading that Elaine respected his opinion in one of her posts. He stated that these two non SCD versions were legal despite the rice bran ingredient. He claimed that rice bran oil was the real ingredient. I called the company and talked to Dr. Houston himself to verify. He stated that they were in fact SCD legal, but Elaine had asked them to come up with a different formulation so people would not get confused and think that rice bran was acceptable for the diet.
If you are not interested in this brand of enzymes pecanbread.com has a list of legal supplements that include various enzymes.
Good luck .

Peace,
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