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Healing the gut tribe : September - Page 2

post #21 of 139
Quote:
Originally Posted by moneca
Jane - OMG :LOL I always imagined you as this tall blonde studious looking hippie mama :LOL


No, I'm most definately short, dark and girly!

And I've pretty much been that way all my life :LOL

But I am studious looking when I'm wearing my cats eye glasses. (I'm also blind as a bat.)
post #22 of 139
Hey Elizabeth

DS is using HN Zyme Prime and No Fenol right now and will start Peptizyde this week I think.

Zyme Prime digests everything. Peptizyde is for proteins (can replace the GFCF diet b/c it breaks down proteins so completely). No Fenol is for yeast or phenol issues. Phenols are in fruits and veggies and can cause hyperactivity, red ears and cheeks. I still don't know if DS has phenol problems but I figured I'd just as well assume he does and he eats a lot of fruits and veggies and of course there's the sleeping problems he has.

The thing is that I've read that starting enzymes in general can cause hyperactivity too. (where's the Exploding Head Smilie??!!)
post #23 of 139
Thanks, Moneca-I'm on it. Also I wanted to say that my book arrived yesterday. Thank you Jane! Enzymes for Autism and Other Neurological Conditions is a must read for anyone on this list. I am only a third of the way through, but WOW. I will post more when I get a chance.
post #24 of 139
Subscribing
post #25 of 139
Well we went to see our NP today again, and came out with a prescription for nystatin. I don't know what to do--I've been reading about it on the internet, but is there any reason I should not give it to Micah? She wants me to give it to Micah for 5 days and then see how she is, our NP says Micah has a yeast overgrowth. I also asked about the SCD and what she thinks, but she says she has not read too much on it. She said it is ok for us to start, if I wanted to. Well, I was going to do that anyway, no matter what she said so I guess that is good news! Any advice about nystatin greatly appreciated!
post #26 of 139
Is it the plain powder nystatin or the liquid with flavor? The liquid has a lot of sugar and totally defeats the purpose of killing yeast in the digestive tract. I've read that it isn't all that super effective. Maybe for a little one maybe it will be gentle? I think I also read that it is "natural" not a synthetic chemical (not sure what it is exactly tho).
post #27 of 139
Today's Must Read Article

Be Kind to Your Grains
http://www.westonaprice.org/foodfeatures/be_kind.html

Now of course DS and I are off grains right now... but I have no doubt that our eating oat bran cereal regulary contributed to worsening our poor gut condition. (Oat bran has the highest phytic acid of any grain, see below).

It wasn't until I received "Nourishing Traditions" for Xmas that I read about this and started soaking our oatmeal and rice to good effect. And previously I was vegetarian and eating a lot of whole grains... which I thought were healthy. As my digestion gradually got worse. :

Quote:
...whole grain and bran products are being promoted as health foods without adequate appreciation of their dangers. These show up not only as digestive problems, Crohn's disease and colitis, but also as the mental disorders associated with celiac disease.

Grains require careful preparation because they contain a number of antinutrients that can cause serious health problems. Phytic acid, for example, is an organic acid in which phosphorus is bound. It is mostly found in the bran or outer hull of seeds. Untreated phytic acid can combine with calcium, magnesium, copper, iron and especially zinc in the intestinal tract and block their absorption. This is why a diet high in improperly prepared whole grains may lead to serious mineral deficiencies and bone loss. The modern misguided practice of consuming large amounts of unprocessed bran often improves colon transit time at first but may lead to irritable bowel syndrome and, in the long term, many other adverse effects.

Other antinutrients in whole grains include enzyme inhibitors which can inhibit digestion and put stress on the pancreas; irritating tannins; complex sugars which the body cannot break down; and gluten and related hard-to-digest proteins which may cause allergies, digestive disorders and even mental illness.
Digestive and enzyme inhibitors. Sounds somewhat familiar huh?

Doesn't it make more sense that we have an epidemic of digestive problems now?

Someday we will be healed enought to fully eat NT because I'm absolutely convinced of its benefits. :
post #28 of 139

Crohn's disease, MAP, raw dairy products

Ooops, I accidentally posted this as a new thread:

I read about a new theory that Crohn's disease is caused by a bacteria, MAP, that can be transmitted by meat and dairy that is not ultra-pateurized. Since many here are doing raw dairy, what about the dangers? See: http://www.crohns.org/
post #29 of 139

SCD diet and constipation

I know the SCD diet was originally made for people suffering from diarrhea, thus all the binding foods in the intro diet, but what about those who have the opposite problem? For ds and me, our reactions tend more towards constipation. What legal foods would be good to start with?
post #30 of 139
Quote:
Originally Posted by Pookietooth
Ooops, I accidentally posted this as a new thread:

I read about a new theory that Crohn's disease is caused by a bacteria, MAP, that can be transmitted by meat and dairy that is not ultra-pateurized. Since many here are doing raw dairy, what about the dangers? See: http://www.crohns.org/
Much less concerned than I would be drinking milk from large dairies. Raw milk farms monitor their cows for sickness much more closely. Also, who's to say that the probiotics, lactoferrin and enzymes in raw milk don't kill this.

Crohns.org doesn't even mention the SCD, which has sold over a million copies, and has clinical research behind it, and thousands of people cured by it...not even a "new theory". So they are not exactly at the forefront of nutritional education.

I also think I read that ultra pasteurizing even further damages milk...

Reminds me of H. pylori, the bacterial cause of ulcers. Which is killed and kept in control by probiotics by the way.
post #31 of 139
I don't feel that the SCD was designed for diarrhea OR constipation...it was designed for gut problems which can result in either. As for the dairy question...ultra-pasteurization of dairy not only strips it of the enzymes necessary to process it, but the by-products of pasteurization (heating dairy to ridiculously high temps.) are equivalent to formaldehyde. Not great for daily (or weekly!) consumption by any human being.

I ordered my enzymes. I got peptizyde as well as zyme-prime. We seem a bit stuck and Selkie isn't really absorbing alot of her fats still so I am anxious to get going on them. I'm going to take a cue from Jane and go slow. We aleady have issues with hyperactivity in my household...no need to add fuel to that fire! Reading the Enzymes for Autism book really changed alot of my beliefs about healing the gut. It provided fabulous supplemental info to SCD and I think will really influence our outcome. BTW Jane, what did you think of being able to go "off" the diet and using enzymes as an alternative? Clearly they weren't discussing the SCD, but the implications are there... What are your thoughts? I am not even going to attempt it, because I feel doing the two will help facilitate the process, but I am hoping to add allergens back rather quickly with their help.
post #32 of 139
Quote:
Originally Posted by Pookietooth
I know the SCD diet was originally made for people suffering from diarrhea, thus all the binding foods in the intro diet, but what about those who have the opposite problem? For ds and me, our reactions tend more towards constipation. What legal foods would be good to start with?
Maybe these links would help...

http://www.breakingtheviciouscycle.i...nstipation.htm
http://www.breakingtheviciouscycle.i..._continued.htm
post #33 of 139
Quote:
Originally Posted by elisabeth
BTW Jane, what did you think of being able to go "off" the diet and using enzymes as an alternative? Clearly they weren't discussing the SCD, but the implications are there... What are your thoughts? I am not even going to attempt it, because I feel doing the two will help facilitate the process, but I am hoping to add allergens back rather quickly with their help.
That is the most interesting thing to me! It seems like healing will probably occur quicker than not using enzymes. Because not only will you have the food better digested but also the healing properties of enzymes themselves.

However it is often difficult to know *when* you are healed. And that's from someone who first thought we were healed a year and a half ago only to regress and regress... I'm going to be very strict this time.

We added things back after our Elimination Diet slowly...tolerated them all at first. But the gut imbalance just built back up again slowly and we couldn't pinpoint exactly what the issue was until we were deep in a mess again... drove my naturopath insane (and myself) b/c she will still believing the food allergy theory, which she said would give you immediate reactions.
post #34 of 139
Mmmmmm. So, again, proceed with caution. That's okay though, SCD is totally tolerable for me. Thanks again for the book. I'm such a geek-the more I know about the gut the better!
post #35 of 139

Hyperactivity after switching probiotics ?

My 2.5 yr old son is showing marked hyperactivity after starting a different brand of probiotic this morning. It is free of all the things he is allergic to, but I think it is more potent than the one we were using before. It is normal to see a reaction like this ? Does it have something to do with the die-off of yeasts and bad bacteria ?

Thanks,

Linda B
post #36 of 139
I need a

I just posted this http://www.mothering.com/discussions...2&postcount=13

I'm truly upset right now. I've been re-reading my two most treasured books on nutrition: "Nourishing Traditions" and "Nutrition and Physical Degeneration" and I'm bawling my eyes out here. Too many stupid thoughts going through my head... I want to do the best for DS and I cannot do that right now b/c I caused the damage to his health and digestion. I'm too much a perfectionist sometimes. So many people wouldn't understand, but I thought you all would
post #37 of 139
Quote:
Originally Posted by llp34
My 2.5 yr old son is showing marked hyperactivity after starting a different brand of probiotic this morning. It is free of all the things he is allergic to, but I think it is more potent than the one we were using before. It is normal to see a reaction like this ? Does it have something to do with the die-off of yeasts and bad bacteria ?

Thanks,

Linda B
I feel like Hermione here.

Yes, it's die off. The reason why die off causes hyperactivity is that when the yeast and bad bacteria die, they release even more toxins into the system when they pop. Toxins that are chemically structured like alcohol, producing excitable behavoir and poor sleep.

Magnesium in the form of epsom salt baths or epsom salt cream or activated charcoal are suggested.
http://www.pecanbread.com/badreaction.html

We are trying magnesium supplements 10 mg per lb divided into 2-3 doses a day. The bath or the cream doesn't seem to be helping us. Then we are adding zinc that is good for seratonin synthesis and sleep and gut lining. If that doesn't work I'm moving to tiny amounts of melatonin for sleep even though it scares me to supplement this but it will hopefully only be for the short term. ( I know you didn't ask this but thought I'd mention it for posterity.)
post #38 of 139
Quote:
Originally Posted by JaneS
I feel like Hermione here.

Yes, it's die off. The reason why die off causes hyperactivity is that when the yeast and bad bacteria die, they release even more toxins into the system when they pop. Toxins that are chemically structured like alcohol, producing excitable behavoir and poor sleep.
Well, then I know what's causing it then. I guess the old probiotic probably wasn't doing much compared to this one, so I'm glad I switched. How long does a die-off reaction usually take to work through ?

Can die-off also produce cold symptoms ? He hasn't had a hint of any cold or respiratory symtoms since March. All the sudden he has a runny nose, sounds congested, and feels a little warm. It could just be a cold. We were at the library two days ago and he was putting toys into his mouth (yuck). But he *always* does that. So I wonder if this is just a coincidence or if it's related ?

Thanks !
post #39 of 139
llp34 : Stuffy nose and congestion --or anything that is similar to a nasal or sinus infection/reaction really -- *could* be a symptom of die-off. If you believe the probiotic you are using is more potent, could you cut back the dose until the symptoms subside?
If it is only a cold, I think the probiotics can only help, not hurt. But again, maybe just adjust the dose a bit?

Jane given!
I do understand how you feel. We want what's best for our children and then realizing that we have possibly caused them harm, however inadvertently, is extremely painful.


My dd is vaxed
() AND has a huge cavity in one of her molars that we can no longer put off getting it fixed at the dentist. It sucks. I could easily sit and drive myself into a crying jag (and I have done that) when I sit down and realize all the implications.
I need to be grateful for the health that she does have and continue to strive to make improvements.

I think all we can do is move on from this point forward and do what we need to do. Allow yourself to feel whatever bad feelings you are feeling, rather than letting them fester. They are there for a reason and will only help you be determined to follow the course you need to take.

What is that saying : "When I knew better, I did better." ?


Everyone:
I'm working my way through the book and it's fascinating reading.

I ordered some more cookbooks too, at the suggestion of my dh. My dh is still hesitant about following the diet because we are just hindered by what foods are available to us. I can get the fruits and veggies and meats locally (wish there were more organic available!) , but all other things I will need to order in advance by mail and of course that makes things even more limited. Packages take at minimum 2 weeks to get to us by priority mail, so I can't get anything that will go rancid.

He suggested that I get the cookbooks, find the ingredients as best I can and start cooking more SCD legal meals for all of us. He feels that as we get more used to eating the SCD way, we will be better able to be 100% compliant to the diet. While my nature is to jump in and start following it all exactly from the beginning, I see the logic in his thinking. I'd rather "taste-test" the recipes beforehand, than in the midst of the diet. Because if they backfire, we'd be too tempted to stray to the non-allowable foods.

I realize we are fortunate that our gut issues will allow us to ease into the diet. The issues still need to be fixed, though. But I'm not going to come here and say "it's not working" if we're not doing the diet correctly. No worries about me doing that.

I need to have DH on my side in this and working with me rather than doing his own thing. I can definitely see (from my own personal small trials with SCD eating) that we can benefit from it, and if I have to be less than 100% before I can get to 100%, then so be it.
Thanks for listening to me
post #40 of 139
deleting a double post. Sorry about that!
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