Can I please get some feedback from you ladies??
just found this thread and I have a few questions I'm hoping you can help me with.
I am 39, mother of a 5 month old DD and I'm pregnant again (not planned, it's kinda sooner than we thought we would try for, but we are happy it was so easy - DD was an 'accident' as well, so I guess we're much more fertile than we thought
Anyway, after planning for a HomeBirth, DD was born at 36 weeks via emergency C-Section because at my weekly NST the Dr found she had no diastolic flow in the cord between us. He had been monitoring her because she was small and he was concerned about IUGR, but once he saw that on the ultrasound we raced over to the hospital and she was out of me within 20 minutes. After 1 month in the NICU (she was 3lbs 11oz and she was seizing when she was born due to the restriction of blood flow) we came home and she's now doing well, with only a few residual effects.
Bottom line, we were TOTALLY taken by surprise with the circumstances of her birth and we had no idea she was in trouble until that very day. The pathology report on my placenta came back saying that it was only half the size it should have been and that it was 80% clotted!!
A hematologist I took my results to made the comment that "a placenta like this usually results in a miscarriage during the second trimester". So you can imagine how blessed we feel that our baby girl pulled through and fought so hard to stay alive.
As you would expect they took tons of tests and the only thing that came back was that I was positive for Heterozygous MTHFR and my OB told me I'd probably have to be on blood thinners for any subsequent pregnancies.
But he also said that Heterozygous is a very mild version of MTHFR and he wasnt sure that was the ONLY cause of the problem because he's had other patients who were hetero and they had no problems at all.
He mentioned that we may need to do additional bloodwork to check for any other thrombophilia disorders.
Well, when I found out I was pregnant again, I immediately called my OB because I didnt know how pregnant I was (never had a period cuz I am still nursing) and I was worried I needed to get on blood thinners right away. I went in for an ultrasound and turns out I'm only about 4 weeks past conception and now my OB is saying that after reviewing all my test results with a perinatologist, I didnt need to take any other blood tests and that the "current thought is that all you have to do is start taking 4-5mg of Folic Acid a day with high doses of Vitamin B and maybe a daily Baby Aspirin".
So basically he's saying I dont need to be on Heparin or any other blood thinners, just the Folgard and Baby Aspirin and that I dont need to check for any other issues even though he had previously said it's rare for a heterozygous version of MTHFR to cause such severe clotting.
Does this sound right to you?? I have another appt with him next week and I plan to ask him why he changed his opinion on the Heparin. I mean obviously, if I can control the clotting with just the Folgard and Aspirin I would prefer not to be on medications during the pregnancy. But if being on Heparin means the difference between keeping my placenta from clotting and having a healthy baby, then of course, I would rather be on the medication, even if there are some possible risks.
So what should I do? I already called the hematologist who had reviewed my previous test results and asked him what additional blood panels he would suggest for me; he responded by suggesting an A
ntiphospholipid Antibody Panel, L
upus Anticoagulant and F
actor VIII Activity. I plan to tell my OB this when I see him next. But reading all these posts about how most Drs put you on Heparin immediately after pregnancy was confirmed is making me nervous.
I did buy some Folgard AND some Folapro because I read that Folapro was actually a more absorbable form of folate for the body. I am taking those now and I have to ask my Pediatrician what he thinks about my taking the Baby Aspirin before I start doing that since I'm still nursing (Reye's Syndrome concerns). But I'm just so worried. After getting slammed last time with such a traumatic birth and finding out that my baby girl had been struggling for so long in the womb, I just want to do everything right this time for our new baby.
One last final question - how much of each (Folapro and Folgard) should I take to equal the 5mg of Folic Acid I'm supposed to take each day? I figured something like 50/50 (One 2.2mg Folgard and Two 800mcg Folapros plus the 800mcgs that are in my prenatals.) - that comes out to 4.6mg of Folic Acid, is that a good combination or should I change it up somehow or add even more??
Thanks so much!!
I am looking forward to hearing what you have to say