I finally have an appointment scheduled with a hematologist, but I need some advice!
My general doctor ran I think 4 tests last fall and just said "everything came back fine". I know from experience (12 years hypothyroid before someone checked antibodies) not to ever let it go at that.
So I told the scheduler at the hematologist that I'd had a few tests run, and that they could request records. I also told her that my insurance does NOT require a referral to a specialist, and I've already gotten confirmation this doctor is in network and the visit will be fully covered.
Today someone called me back saying "We called your doctor and he hasn't seen you since October of 2008. I need to know who we are getting records from about your blood clots".
1. I'm pretty sure I had an appointment in December of 2008. 2. if I KNEW I had blood clots, wouldn't I go to the ER, or already be under the care of a specialist and not totally fine with waiting 2 or 3 weeks for an appointment? (maybe not? I figure you go to a hematologist to get diagnosed as well as to get treatment)
I think I have a bunch of risks and symptoms, but with my experience with doctors I still always wonder if it will be enough to persuade them to test me.
I have agonizingly painful periods. (TMI warning) Very heavy flow for 5-7 days, with lots of clots, usually around the size of a smushed grape or so. I also spot for at least 7 days before my period. During that entire 2+ weeks I'm in a lot of pain, often enough to make it difficult to even stand up. For the first 24 hours at least, sometimes up to 2 or 3 days, it's bad enough that even on vicodin AND baclofen, I'm hardly able to get out of bed to go to the bathroom by myself.
I have Hashimoto's hypothyroid. Even after treatment of that and of low progesterone, the periods haven't really changed. And I know having one auto-immune problem, especially Hashi's, increases the chances that you'd have another, like an auto-immune clotting disorder.
I seem to bruise very easily. I often have bruises all over my legs and sometimes arms, and often have no idea where many of them came from.
My gums almost always bleed no matter how gently I try to brush or floss.
When I was getting blood drawn for some other tests, the nurse asked me if I'd ever been diagnosed with a clotting disorder, because my blood was clotting before she could even get it into the tubes!
I've been through one failed IVF, and 3 years TTC. I know we have severe male factor but I really think it's more than just that.
Do you think these symptoms will be enough to get a doctor to run enough tests to either diagnose me or put my mind at ease? Are there other symptoms I'm not thinking of that I might have and should tell them about? Any other advice? TIA!