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What causes autism? - Page 8

post #141 of 306
Interesting reading at the Thoughtful House website, their 2005 Conference:

http://www.thoughtfulhouse.org/confe...sentations.htm

(TH is the current home of Andy Wakefield with all his research posted on that site too... hey he's a cutie! )
post #142 of 306
Quote:
Yes, probably re: losing opiate effects with Peptizyde.
I tried the herb ginger for headaches and nausea, they worked a little for the nausea, but he didn't like the ginger trip gum. I bought a drink called ginger brew for him to try,and he hasn't yet, it delivers 17 grams of ginger. If he likes this, maybe he can drink it several times a day.

Quote:
Is white willow a natural form of aspirin? Maybe look into homeopathy?
I think white willow is the natural form of aspirin. The amalgam illness book says ginger for headaches, but I have a lot of herbal books I got at an auction, I can look up headaches in them too. Homeopathy is definately worth checking out. The owner of the healthfood store who helps me is reading a book on homeopathy and autism right now, but it is not Amy Lansky's book. I can read it when she is done, and maybe get some ideas.

It could be the tinnitus causing the headaches. For his tinnitus, we are having a fatty tumor of the ear ruled out. He is going to have an MRI, in April. Tinnitus can be caused by heavy metals, viruses, parasites, or some kind of anomaly like a tumor....so I figure by doing anti virals, and chelation, and screening him for a tumor....it is ruling out at least three of the things that can be causing the tinnitus....and is a round about way of maybe dealing with the cause of the headaches if their cause is the tinnitus....

Several people on the autism mercury yahoo group lost their tinnitus during chelation, someone around round 10, so that is hopeful.

I don't have DeFelice's book, but if anyone does and can look up what it says to do for body pain like fibromyalgia and migraines, I would appreciate it.

Yes, the antiviral protocol is supposed to include vit A. I haven't got that yet or figured out the dosage... I wonder if we should do a trial of lutein free before the antivirals, and get his pain under control.....Looks like I will ask the autism mercury list about this too.
post #143 of 306
Quote:
Are you giving minerals?
I am giving these minerals: Calcium, magnesium, and the trace minerals zinc, selineum, molybdenum.

Vitamins we are giving are: C, folic, E, inositol, and we are going to add biotin and vit A.

we were going careful on adding too many b's.

I think I was going to check into switching his Omega 3's to nordic naturals which include the Vitamins A&D.
post #144 of 306
Quote:
Originally Posted by Bestbirths
I don't have DeFelice's book, but if anyone does and can look up what it says to do for body pain like fibromyalgia and migraines, I would appreciate it.
Basically her entire book! Her experience was 24 hr. migraines every single day for most of her life. Then having 2 boys on the spectrum really gives her a unique perspective on all this. The big break thru came when she started amitriptyline herself and put her oldest (just him I think) on it for his head banging. They got about 50% better. The other 50% came from enzymes.

Her youngest was the gut damaged one, with bacterial issues.

I highly recommend getting the book... it's really a must read for understanding underlying biological reasons for sensory issues.

THE BOOK IS: "Enzymes for Autism" or "Enzymes for Digestive Health" by Karen DeFelice (they are both the same). www.enzymestuff.com
post #145 of 306
Ok, I must get that book then.

I am feeling really overwhelmed today....even with dh bringing home flowers and cooking dinner for valentines day...

Because for one, I had gotten all geared up to do antivirals, and purchased oreganol and virastop and all, then Sara's diet says no oregano oil and no vit A, and I have read other places about the importance of vit A especially with antivirals..and who is Sara's diet? maybe we can only do *most of it* and be fine...not to mention the restrictions of Sara's diet with needing to purchase rare game meat....to which my dh is drawing the line and his opinion is rare game meat for ds only, which would mean cooking separate meals...and basically cooking multiple different meals point stresses me beyond my capabilities....

then I found out the vitamin C I have been giving is all wrong....

DS is really nauseous after this latest round of chelation....I now don't know if I should be focusing on lutein free, viruses, or get uva ursi and go after bacteria first....
post #146 of 306
I can understand... we're not even facing half the issues you are and I'm

I'm constantly reading conflicting information, it's maddening!
post #147 of 306
This thread is so packed full of such valuable information. I finally printed it out so I could read it more leisurely. (broken printer since christmas has finally been replaced!)

one thing that leaves me


is the discussion of mineral and enzyme supplements.

If I read the suggestions correctly, I think Peptizyde (from Houston Nutraceuticals) is good.

but I'm still not sure about mineral supplements. MT, you had a suggestion of one brand in particular, right?

Honestly, I think our whole family could benefit but DS does have some sensory issues and I would like to support him through supplements.
post #148 of 306
this needs to be bumped to the front page.
post #149 of 306
IS AUTISM A G-ALPHA PROTEIN DEFECT REVERSIBLE WITH NATURAL VITAMIN A?
Mary N. Megson, M.D., F.A.A.P.
Quote:
Autism may be a disorder linked to the disruption of the G-alpha protein, affecting retinoid receptors in the brain. A study of sixty autistic children suggests that autism may be caused by inserting a G-alpha protein defect, the pertussis toxin found in the D.P.T. vaccine, into genetically at-risk children. This toxin separates the G-alpha protein from retinoid receptors. Those most at risk report a family history of at least one parent with a pre-existing G-alpha protein defect, including night blindness, pseudohypoparathyroidism or adenoma of the thyroid or pituitary gland.

Natural Vitamin A may reconnect the retinoid receptors critical for vision, sensory perception, language processing and attention...

Many of these children, who need natural, unsaturated cis forms of Vitamin A found in sources such as cold water fish like salmon, or cod, liver, kidney, and milk fat, are not getting this in the modern diet. Instead, they are dependent on Vitamin A Palmitate, found in commercial infant formula and low fat milk. Unfortunately, absorption of Vitamin A Palmitate requires an intact gut mucosal microvilli surface at the right PH, in the presence of bile for metabolism (12). However, many of these children already have damaged mucosal surfaces due to unrecognized wheat allergy or intolerances...

When the live viral measles vaccine is given, it depletes the children of their existing supply of Vitamin A (13), which negatively impacts the retinoid receptors. Natural Vitamin A, in the cis form, is important for activation of T and B cells for long-term immune memory to develop (14) and is necessary for natural killer cell function (15). Scrimshaw, et al. (1968) reviewed over 50 studies of infection and nutrition and wrote, "no nutritional deficiency in the animal kingdom is more consistently synergistic with infection than that of Vitamin A" (16)...

Our early experience with treatment with natural cis forms of Vitamin A in Cod Liver Oil (CLO) in these autistic children, followed by stimulation of blocked acetylcholine receptors for neurotransmitters affected with a blockage of G-alpha pathways in the cell, is promising. There are dramatic, immediate improvements in language, vision, attention and social interaction in some of these children, as evidenced by the following case reports.
post #150 of 306
I answered you by PM Tracy, but noticed you asked a minerals question above and thought I would post this for posterity.

DS tolerates the Ultra Sensitive Minerals from Brainchild very well. Thus far the only one that has not caused regression in gut issues for him:

www.brainchildnutritionals.com
post #151 of 306
I give ds 2 caps of Nordic Naturals CLO (cod liver oil) a day. I don't think it's considered "high doses" of A, but its a start. I heard that Carlsons clo was good tasting, and not expensive. We might try that for the children who can't take capsules.

Thanks Jane, for that article.
post #152 of 306
Quote:
followed by stimulation of blocked acetylcholine receptors for neurotransmitters affected with a blockage of G-alpha pathways in the cell, is promising.


is this why they are giving acetylcholine? I don't get this part. What does it mean?
post #153 of 306
bump.
post #154 of 306
What a wonderful and much needed discussion! Thank you to all the mamas who contributed. Our own journey towards healing has brought me to the same conclusions.

Peace,
post #155 of 306
lurking...
post #156 of 306
bump
post #157 of 306
post #158 of 306
8 pages of knowledge and I am still confused, I am a very busy mommy (as we all are) with a small business and a crazy life, throw in 2 children with horrible ADHD (they are screaming at each other as I type) and my life is not as blissful as I'd like it to be. I am about to go to the funny farm.

I really need the short and skinny of all of this, the book everybody keeps talking about is lost in one of the 8 pages of this thread, anybody have it now?

We have found 2 DAN docs in our area and I am looking forward to visiting them both and chosing one to start my girls on. I am hating every single medicated pill I give them to help them with their days and to help keep some sense of sanity around here. I am about to cry right now, please ignore any typo's.

Should we wait for Summer vacation to start this process or is now as good a time as any? Gosh, I need somebody to take me by the hand and lead me as my brain is fried and I feel like giving up and running away. KWIM? I'm burnt!

TIA
post #159 of 306
Quote:
8 pages of knowledge and I am still confused, I am a very busy mommy (as we all are) with a small business and a crazy life, throw in 2 children with horrible ADHD (they are screaming at each other as I type) and my life is not as blissful as I'd like it to be. I am about to go to the funny farm.

I really need the short and skinny of all of this, the book everybody keeps talking about is lost in one of the 8 pages of this thread, anybody have it now?

We have found 2 DAN docs in our area and I am looking forward to visiting them both and chosing one to start my girls on. I am hating every single medicated pill I give them to help them with their days and to help keep some sense of sanity around here. I am about to cry right now, please ignore any typo's.

Should we wait for Summer vacation to start this process or is now as good a time as any? Gosh, I need somebody to take me by the hand and lead me as my brain is fried and I feel like giving up and running away. KWIM? I'm burnt!

TIA

Keegan's mommy.... I just was re-reading this thread and I was thinking we should have a thread with Mommy's protocol...what moms here are doing who have children who were either damaged by vax/almagams/diet/etc....
let me see if I can start one.....
post #160 of 306
Quote:
Originally Posted by keegans_mommy
8 pages of knowledge and I am still confused, I am a very busy mommy (as we all are) with a small business and a crazy life, throw in 2 children with horrible ADHD (they are screaming at each other as I type) and my life is not as blissful as I'd like it to be. I am about to go to the funny farm.

I really need the short and skinny of all of this, the book everybody keeps talking about is lost in one of the 8 pages of this thread, anybody have it now?

TIA


The book is: "Enzymes for Autism" or "Enzymes for Digestive Health" by Karen DeFelice (they are both the same). www.enzymestuff.com
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