I'm glad you brought this up. I didn't know anything about the newborn screening, but had read up on the cord blood banking. I'm not sure if we are going to bank the cord blood or not. I have been giving it some serious thought though. My DH's father died of Hodgkin's when he was only 50.
But other than that, our families are pretty healthy.
It sounds like they do certain newborn screening tests anyway, like the PKU test. That is done in all states.
Very thought provoking subject... It's such an individual choice. Kind of along the lines of getting an amniocentesis. You dread waiting for the results, but are happy if they come back normal. But what if they don't? Then one has some serious decisions to make. I guess in the case of the screen test, it would help with the care if the child were predisposed to a certain disease anyway, whether you did the test or not. It would give you a chance to give your child the proper meds. and care before things get worse. But, it would also be heartbreaking, IMO to find out your baby has some sort of disease. Better armed than fighting blind...