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My grandfather is dying...  

post #1 of 18
Thread Starter 
He's had cancer in his bladder. They thought they treated/got rid of it all 10 years ago, and continued checking for it throughout the years, but missed it every time, and now he is dying. They think he has 10 days left on this earth. His liver is gone, literally, wasted away to nothing. He is jaundiced. He has lost alot of weight, but he is bloated in his legs and belly. He's in GA and I'm in MI and cant get to him until tuesday, (january 3rd).

The Dr's have advised my family to take grandpa off of all his IV medications and even PAIN MEDICATION and let him pass away. My grandpa's mind is still intact and he is angry about this. He told my mom he was mad at them b/c "you're all giving up on me." He was expecting to get some chemo, but the Dr says he's so far advanced, it wouldnt help or do anything but make him miserable in his last days. NO ONE has told grandpa this. NO ONE. Grandma is supposed to talk to him about it today. She has been putting it off b/c I think she has been in denial about it herself. and even tho no one has talked to him about this, he has been telling visitors, "I won't be here much longer. I won't be here another month," etc.

My grandpa is and was always a fighter. He is 78 years old. He is so smart, quick witted, and just a fighter.

my mom told him that DD and I are coming to see him. that seemed to perk up his attitude. I think he knows I will fight for him. Even if its futile, if he asks me to call another Dr, I will. He knows we have that same spark and fighting spirit, and I hope he can hang on for me to get there. I understand that he doesnt have long, whether he gets any other care or not, but it should be HIS DECISION.

I'm as angry as he is, I think. I dont know the full gravity of the situation, and I wont know til I get there. but what I'm hearing, I dont like. Grandpa is not being involved in his own care, he is not being informed of decisions or making decisions for himself.

I'm most angry that they are DENYING him PAIN MEDICATION!!! he gets 1 pain pill a day, that's it.

I know there must be more to this that I dont know. My mom and grandma are not bad ppl and wouldnt be cruel to my grandpa like this. However, they do listen to Dr's and do what the Dr's tell them to, even if they have doubts about it.

But that isnt why I'm in this forum. I'm here mostly to try to come to terms with what is happening and to help my mom through the loss of her 'daddy.' Its hard on everyone, and I'm not sure how to deal with it. My father's father passed away suddenly 8 years ago, and dad turned to drugs/alcohol. he is still using and is still not back to any sort of normal. (my parents have been divorced now for 18 years). I was only 17 at the time and was more worried about my own grief than my dad's/anyone elses'...plus I had just had a m/c that i didnt tell anyone about, and my very good friend died close to the same time. So I was dealing alot with my own problems and not focusing on anyone else.

I'm sorry if this doesnt make alot of sense. I'm trying to get everything out, and its hard.

I'm trying to help my own grief. I want to help my mom w/ her grief. I want to help my grandma. I'm just not sure what to do. I dont know how I can go down there and be silent about how grandpa is being cared for, to spare the feelings of my grandma, my mom, aunt and uncle.

If anyone made it thru this, bless you for reading. I'm dealing with mixed emotions about all of this, and I'm not sure what to do.

post #2 of 18
I wanted to send you a hug momma. I just went through this a few weeks ago and it is heartwrenching.
I thought my gramp seemed agitated and I asked about getting him more pain meds. They came in with iv morphine.
The waiting to travel must be so difficult on you.
I have found the healing eases a bit when I think about how uncomfortable he would physically be to still be here.
I am so sorry you have to go through this.
post #3 of 18
Hello!



Make sure you say and do what you feel you need to do. These may be your last days with him. Stand up for him if people will not listen to him. Tell him everything you wanted to and never did. Many people do not get the chance to, and if you do you are blessed. The waiting must be brutal on you I am so sorry that you have to wait so long.
My Dziadzi (grandpa) passed almost 2 months ago. I considerd him to be my father not my grandfather. I was lucky enough to be at the VA hospital with my Dziadzi for 6 out of his last 7 days. He told me "I don't want you to see me like this" so I honored his wish and stayed away. He was able to see everyone even the babies.
I am so sorry for all the losses you have went thu in such a short amount for time. If you want to you can PM me to talk. I will send you and your family good thoughts and peace and such a hard time.

Karen and Baby Joe
post #4 of 18
Thread Starter 
thanks everyone.

They moved my grandpa to a hospice house for "actively dying" patients. He has his own nurse and private room. Mom said he seemed to perk up a bit and felt a little better once they moved him from the dreary nursing home. He even ate for the 1st time in a week! mashed potatoes and 2 milkshakes, lol. This home that he's in is supposed to cater to him and he can have anything he wants, even ice cream at 3 am, lol.

He started steroid therapy today to reduce his swelling in his appendages, the Dr says that will perk him up for a week or so and make him feel better, even enhance his mood a little. but then he would relapse back into being "very ill" again.

Grandma talked to grandpa once they got him moved and expalined everything to him. He didnt want to listen, but he said he knew he had to accept what is happening, he just doesnt want to yet.

and the best part is that he is now recieving pain meds whenever he wants them. they changed from a pill to either a shot or a liquid oral...mom couldnt remember which, and he can have that at his request. they will not make him wait x-hours for another dose if he feels like he wants one.

I wont talk to mom again until later tonight, so I'll post more tomorrow.

Yes, its very hard to sit and wait to travel. the worst part is that since I'm so far away, I'm afraid that they arent telling me everything, ykwim? but I'm making do, altho I do feel rather depressed atm. My DH just got home today after working for a week 200 miles away, so that is helping, but he is sad that we are leaving him in afew days for 2 weeks. and he's upset that he wont be there to say goodbye to my grandpa, (we couldnt afford the 3rd ticket). So we're dealing. Its tough though.

Thank you for all the kind words.

post #5 of 18
Thread Starter 
talked to mom. it was a bad day. Grandpa refused to take any meds and said he was ready to go, and pointed straight up to the sky. my grandma and one of the nurses explained to him that the meds he's being given will not prolong his life, just keep him comfortable and keep him lucid so he can enjoy his family a little longer. then he decided to take his meds.

so he has accepted it. but he isnt happy about it.

the nurses gave him 2 more days. His jaundice and cancer are moving rapidly to his brain. I dont think we're going to make it in time.
post #6 of 18
Oh, I'm so sorry. I do hope you make it. My grandma died 2/2/99 and I still have a hard time with it sometimes. I wasn't there- I live in AZ and she lived in WI. I was there for Christmas before that and that helped.

But, the day she died, no one could find my mom's phone number to call her for some reason. Not my grandpa, her aunt (grandmas sister), my uncles, etc., even though my grandma had been in the hospital or hospice since the day after christmas (had quadruple bypass and never fully recovered). When they finally got hold of her, she drove there (5 hrs away), but didn't make it. My aunt said that my grandma held on until my grandpa left the room for a walk and then my aunt told her it was ok to go if she wanted, but was sorry that my mom hadn't made it. My grandma said 'what are you talking about, she's right there.' My grandma saw my mom, even though she wasn't there- she felt that connection and knew she was loved.

Even if you don't make it, your grandpa knows you love him- could you try to call him? Let him know it's ok to go if he has to, but you'd like to see him? It's amazing what the human spirit can do.

Take care of yourself and your family. I'm so sorry for your loss.
post #7 of 18
Sending you love & strength Mama...

post #8 of 18
Thread Starter 
I dont want him to hang on just for me, especially since he's in pain. My mom remided him that DD and I are coming and he acts very excited about it. Maybe he will hang on, but I dont know. He told my mom to bring him a pic of me and DD, (his fav one from his house) and he was so happy when he saw it. He said its his favorite picture.

I dont think they have phones in the rooms at the hospice house. I'll ask my mom about it tonight when I talk to her.

thank you so much for all you kind words. It means alot.
post #9 of 18
Thread Starter 
I think he will pass tomorrow.

Mom said he keeps asking why its taking so long for him to die, and keeps telling everyone he's ready to go. He can barely talk above a whisper and is taking long pauses between breaths, then gasping for air when he needs to breathe.

I'm not going to make it. the realization has just hit me and I cant stand it. everyone in the family was able to tell him what they need to tell him today, except me. He'll never know how much I love him or what he means to me. I'm going to write it all down, and print his favorite picture of me and DD to put with him in his casket. I think its all I can do.

thank you all so much for being here. it means so much.
post #10 of 18
momma
post #11 of 18
I'm sure he knows how much you love him and what he means to you. Take care of yourself. A letter and a picture is a great idea. Hang in there- it's so hard to lose a loved one.
post #12 of 18
Hello!

If there is something important you want to say to him you can have your mother tell him for you that is just an idea it may make you feel better. I am sure he knows the love you have for him and that you want to be there. Will keep you and your Grandfather in my prayers.

Karen and Baby Joe
post #13 of 18
I am so sorry.

I am glad he has accepted it (at least somewhat) and that his pain is being taken care of.

I am sure he knows how much you love him



A for your grandpa.
post #14 of 18
Thread Starter 
i missed him.

He passed away just before midnight on the 2nd. Sorry i was not able to post any sooner than this, we've been busy. We already had the funeral yesterday. it was beautiful. Everything was exactly as he wanted.

thank you all so much for all of your help. Somehow, now that I am here, (I'm still in GA utnil the 19th), it has been very healing and a wonderful experiance knowing and hearing how he was at peace. When I saw his body, i cried a little, but I got an overwhelming sense of peace, and havent really gotten upset since the viewing, with the exception of crying at the funeral, of course.

thank you all again. You are all so wonderful.
post #15 of 18
I am so so sorry Mama

Karen and Baby Joe
post #16 of 18
I am so sorry momma. Hugs
post #17 of 18
to you mama.
post #18 of 18
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