Since this is the forum I post most in, and since his rash has (for some reason... ??) been discussed here, I thought I might as well update.
Charlie was hospitalized last night. The skin on his lower legs, elbows, and parts of his face has sloughed off, revealing, well, the stuff that is under the skin. He has a major systemic infection (obviously) and is on IV abx and in isolation.
He's still smiling though. I don't know how.
Hopefully we can FINALLY get to the bottom of this. At this point, even hearing he has cancer (which is still a contender that has not been ruled out) would almost be a relief because at least we would KNOW.
He was catheterized in the ER last night. It was almost a showdown because the nurse kept insisting he MUST be retracted to clean under it, etc. But she didn't retract, although she made it clear that I didn't know what I was talking about.
She was asking me about how I keep him from getting infections and bacterial overgrowth...
He passed out while they were trying to start his lines... now I see firsthand how babies fall asleep during MGM. I watched my kid FALL ASLEEP while in intense pain. I was grateful he finally passed out though.
He's not getting out of our sight while we're there. Although they wanted to immunize him this morning!!
:
I won't update here again (but I will update my blog). But just wanted everyone to know, since several of you have expressed concern for him.
Charlie was hospitalized last night. The skin on his lower legs, elbows, and parts of his face has sloughed off, revealing, well, the stuff that is under the skin. He has a major systemic infection (obviously) and is on IV abx and in isolation.
He's still smiling though. I don't know how.
Hopefully we can FINALLY get to the bottom of this. At this point, even hearing he has cancer (which is still a contender that has not been ruled out) would almost be a relief because at least we would KNOW.
He was catheterized in the ER last night. It was almost a showdown because the nurse kept insisting he MUST be retracted to clean under it, etc. But she didn't retract, although she made it clear that I didn't know what I was talking about.
She was asking me about how I keep him from getting infections and bacterial overgrowth...He passed out while they were trying to start his lines... now I see firsthand how babies fall asleep during MGM. I watched my kid FALL ASLEEP while in intense pain. I was grateful he finally passed out though.
He's not getting out of our sight while we're there. Although they wanted to immunize him this morning!!
:I won't update here again (but I will update my blog). But just wanted everyone to know, since several of you have expressed concern for him.
Poor poor Charlie! 
:
