From last month's thread...
Originally Posted by Cmadb12
If this sounds familiar to anyone, I would greatly appreciate ANY information you may have!!! My 4 year old son has been suffering from what two different drs. have only generally described as "constipation" and a "behaviorial" issue related to his constipation. He has been seen by his own ped. and his new allergist - so far. Neither of which I am happy with b/c I feel dismissed every time we have to discuss this recurring problem.
My son has been crossing his legs when he feels the urge to poop for over 2 years (pardon the medical terms - we're all moms here, right?) and holds in - or tries to at least- his poop. He cries, sometimes screams, when he does this. My husband and I have referred to it as the "poopie dance", until something just didn't feel right, after many months have passed. He has been constipated before, of course, as I'm sure many kids have, and he did once tear his rectum and get a strep infection after. this was when he was 18 months+ - a long time ago.
My son has a major peanut allergy along with many severe enviro. allergies, but according to his new allergist, not significant other food allergies. He was tested recently for milk and soy to which he reacted, but not severely according to his dr. He has eczema that come and go and has always battled it, even as an infant. His dr. says that he cannot def. say that he is "allergic" to milk b/c his skin reacts to even the control (water) slightly. But his arms just light up when they test him for everything, pretty much.
Most recently he's been on Florstor Kids (SOOO expensive!), Benefiber powder and his allergist just told me to put him on Lactulose liquid (sp?), even AFTER I told him that my son already has major stomach pain, gas and cramps (all side effects of Lactulose) and after we discussed his possible allergy or sensitivity to milk?!? My son rarely eats a "real" meal, if at all, cries at the table over his food after he tells me he's very hungry, but just can't eat it b/c his belly hurts. My son is thin and underwight, he east NOTHING. I've stopped letting him drink cow's milk (or soy for that matter) myself, but don't know whether to cut out ALL dairy, yogurt...the allergist says we'll discuss it at his next appt....right. Can't wait.
Also I guess something imp. to note - he ALWAYS has some form of poop in his diaper. Yes, I said diaper b/c he CAN go pee on the potty and wants to use the potty, but cannot be w/o a diaper at anytime b/c there is always poop literally hanging out of his bum. There is always poop, whether it's formed, which is the case most of the time, or a loose kind of liquid in his diaper. He runs into another room to cross his legs ALL day, even in public and shouts and cries if you even look at him. He strains so hard.
I cannot tell you how frustrated we are for him. We are afraid that he will still be in a diaper when he enters school and will be picked on-or worse. As I mentioned before, I am only being dismissed by the drs. and I can only look to you all for some informed advice.
By the way, we did try craniosacral therapy once, can't really comment on what that did or didn't do, but that was a while ago. Should I try acupuncture? Diet changes? Doctor changes?
Does this sound at all like it's merely behavioral on his part? If you can, please help - I am at my wit's end and sad everyday for him.
Many thanks to you all for your precious time reading this message!!!
Oh mama, so glad you are here! My heart just aches reading your message. We will try to help any way we possibly can.
I don't know exactly what this is (sounds like encopresis) but it's NOT behavioral. And constipation always has a biological cause. His behaviors are only a result of the feelings from his body, not the other way around. I have noticed many many behavioral issues come and go depending on the state of my DS's gut.
I had to look up Florastor Kids: http://www.florastor.com/article.asp?id=2559
Sacch. boulardii is supposed to be good for yeast as well as intestinal bacteria. However, I disagree with them that the lactose in it is small. If one has intestinal flora issues, the lactose can indeed set off some gas, bloating and constipation. Just because Sacc. boulardii can make lactase, the enzyme that digests lactose, doesn't mean it's doing that in a damaged gut. Kirkman makes a Sacc. boulardii without fillers.
Lactulose is a disaccharide sugar that is very hard to digest, so it's no surprise that's a problem too.
Now what to do.... well in my experience, mainstream doctors know little to nothing about healing. There has to be a reason for the constipation, ykwim? And fixing the cause would lead to healing. But they don't seem to do that. Does your DS have a diagnosis?
Now it seems like they do think he has some sort of instestinal flora issue? Have they told you more about why this is?
Read about the diet that a lot of us are on to change intestinal flora, read these links in order and tell me what you think:
It All Began with A Child:http://www.breakingtheviciouscycle.i...th_a_child.htm
Science Behind the Diet:http://www.breakingtheviciouscycle.i..._the_diet2.htm
Yogurt for Probiotics:http://www.breakingtheviciouscycle.i...importance.htm
(I use goat's milk for DS as the casein molecules are smaller and easier to digest)
SCD and Allergies:http://www.breakingtheviciouscycle.i.../allergies.htm
Karen DeFelice's book on Enzymes talks about battling encopresis with her son: www.enzymestuff.com
Her books (they are both the same) on using digestive enzymes for gut health are a must read for understanding leaky gut, digestive problems, and food allergies.... and the behavioral issues that come with them.
Stay stong mama. I think the similar things about my DS too. It's a horrible feeling when you love them so much and are trying everything in your power to help and nothing seems to be working!