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Chelating mamas? - Page 3

post #41 of 850
Quote:
Bestbirths,
Glad to have you here. Glad to hear good news about DS less vacant look. I still have a couple of rounds of DMSA left before starting the ALA also. How long did DS take just DMSA before throwing the ALA in? Are you doing this with a doc?
We used Dmsa alone for twelve rounds, then added the ALA, this is our third round of Ala right now and we are on round 15. We are doing 50mg of each every 3 hours, 24/7 for 3 days on 7 days off, along with handfulls of supplements and enzymes. We are doing this w/o a doctor and testing other than hair testing. We have a lot of support at the healthfood store where the owner is an RN and we discuss things. We use the Andy Cutler method, and couldn't have done it without their yahoo group.
post #42 of 850
Quote:
Originally Posted by Bestbirths
I know that this could be an up, and we could have a down, so I am not too excited, but I am feeling pretty proud of my mama self and happy for ds, and needing to celebrate!!!!
:

Absolutely! Congratulations!!!!
Those are very big things for him to be doing. From what I hear of this type of chelation it's not likely that everything will completely reverse. I really think you will just see better and better.

Did you see the letter to the editor in Mothering recently about the Autism issue "not being for us" b/c her family didn't have all the $$ for specialists, etc. and her boy was 11? I sure hope she comes here.
post #43 of 850
Quote:
Did you see the letter to the editor in Mothering recently about the Autism issue "not being for us" b/c her family didn't have all the $$ for specialists, etc. and her boy was 11? I sure hope she comes here.
Yes, that comment went straight to my heart, because it is expensive. Even w/o doctors and tests, I estimate $500 a month at first, not including an extra $200 a week I was spending on gluten free foods. Then it got to a point where I had to figure out a cheaper way. I now cap 60 percent of ds supplements with a savings of about 50%, I work at the healthfood store to get another 20% off. The next thing that has to stop is the food budget. I can definately understand how not everyone can afford it. We can't afford it. But we can't afford not to.

On the other hand, what we are spending for two years of chelation is roughly the cost of a very nice car for a child, and people do that all the time for their children without a thought. It is not unheard of for even people to spend say $600 a month on a private school. I know people from all walks of life who manage to buy cars or use private schools, so I think chelation is more within peoples reach than they think.

If I had equity in my car (which is probably a little lopsided), I would sell it and walk to pay for this treatment. I cut the cable, which is just about like doing my dh in, so I understand about the cost. My dh has started working weekends, and I have three part time jobs. So much for being a SAHM...but when we see gains like this....it is all worth it. My dh quit complaining about the cable this week....
post #44 of 850
Did you hear about the family in africa that used 3/4 of their yearly income just to get a computer so they could learn how to chelate? When I hear stories like this, I can't complain.

I can't complain either that this week I have spent $100 in gas carting my teenager around. I've never carted a teen around like other parents do before...and this is yet another unexpected gain of chelation...what? suddenly I have this normal teen who is going to have his hand out for cash and be doing things that normal teens do? Who would have thought it?
post #45 of 850
No, I didn't hear about that family in Africa, that is truly humbling.

re: carting around a "normal" teen. Time for a job for him too soon!
post #46 of 850
Everyone, I made a mistake earlier and said that I had upped copper to get these big gains, but we don't even give copper. The thing I upped was zinc, and I just typed the wrong word. I edited my post. Jane, it is the zinc loading from that pfeiffer institute article you posted over in the "what causes autism" thread. Yay zinc loading!!!!

its zinc should have said zinc meant to say zinc should have said zinc: where did copper even come into my head very sorry zinc zinc zinc we upped the zinc!!!
post #47 of 850
Thread Starter 
Well, I started ALA this week. Kept the DMSA at 25 mg and started ALA at 25 mg. I only did this M-W since this was my first time with ALA. No problems as of yet. Consensus on the yahoo group is to do three rounds at the same dose before upping either DMSA or ALA. Hope this continues to go well.
post #48 of 850
Thread Starter 
BB - Did you see your DS improvement with just the DMSA or did most of it come after starting the ALA? Did his symptoms get worse with ALA? Did you start the ALA at 50 mg?

Thanks,
Moneca
post #49 of 850
Pretty amazing developments, BestBirths!

I just started my first round of DMSA yesterday at 25 mg. So far, so good. I had to wait until after my resorption was treated and healed for a couple weeks just to make sure that the mercury detox would not affect healing.

Moneca, how long were your rounds? Andy recommends 4-14 days on and off, I was thinking maybe a week on and a week off.
post #50 of 850
Quote:
BB - Did you see your DS improvement with just the DMSA or did most of it come after starting the ALA? Did his symptoms get worse with ALA? Did you start the ALA at 50 mg?
We've saw improvements with DMSA, but the big wows started coming, right around the time we added, ALA, & zinc loading. We had been giving him cod liver oil, and when we added B-50 and Enzymatic Therapy's GSE PSO w/phospydytlcholine, wowza! The cholines, I think really played a factor in these gains too. At the same time we upped the CoQ10 from 30 to 100 mg. His symptoms did not get worse with ALA. BUT, he can no longer drink a lot of soda on occasion like he could with just DMSA only....we have to shore up our yeast protocol and no funny business on ALA. We might have to go back to the yeast free diet, We started ALA when we were still using 25 mg of DMSA, so we started w/ 25mg of ALA, then two weeks later upped both of them to 50. Our rounds are 3 days on 4 days off.
post #51 of 850
Thread Starter 
Quote:
Originally Posted by toraji
Moneca, how long were your rounds? Andy recommends 4-14 days on and off, I was thinking maybe a week on and a week off.
I did 7 days on and then 7 days off for 3 rounds and then begun my ALA last week. Round #2 without any problems so far. I started ALA at 25 mg with DMSA still at 25 mg. Kirkman's had 25 mg ALA caplets.

Let us know how you're doing. I only had bad effects week 2 from starting on too high of DMSA during week one.
post #52 of 850
Thread Starter 
Quote:
Originally Posted by Bestbirths
We've saw improvements with DMSA, but the big wows started coming, right around the time we added, ALA, & zinc loading. We had been giving him cod liver oil, and when we added B-50 and Enzymatic Therapy's GSE PSO w/phospydytlcholine, wowza! The cholines, I think really played a factor in these gains too. At the same time we upped the CoQ10 from 30 to 100 mg. His symptoms did not get worse with ALA. BUT, he can no longer drink a lot of soda on occasion like he could with just DMSA only....we have to shore up our yeast protocol and no funny business on ALA. We might have to go back to the yeast free diet, We started ALA when we were still using 25 mg of DMSA, so we started w/ 25mg of ALA, then two weeks later upped both of them to 50. Our rounds are 3 days on 4 days off.
Did you have problems upping both at the same time? I just noticed that the yahoo group mentions only increasing one at a time. Awesome improvements.
post #53 of 850
Week #1 successful, no weird issues at 25mg.
post #54 of 850
Thread Starter 
Quote:
Originally Posted by toraji
Week #1 successful, no weird issues at 25mg.
Good to hear. Week 2 was when I had trouble, but I also took 100mg week one and I think it came back to bite me in the a$$.

I just finished round #2 of DMSA/ALA. Everyone on the Yahoo site spoke of feeling great while doing the round of DMSA/ALA to the point of wishing their body didn't need to rest and they could chelate all the time. They said that they felt like crap between rounds.
Well, yesterday I started getting headaches again. Same today and the chest pain came back tonight that had been gone for over a month. Andy did write that one would be sick for at least 2-6 months once starting the ALA. What I'm feeling doesn't bother me and is nothing compared to what some of the poor people in the mercury group go through! I did question the Yahoo group about the possibility of doing 3-4 days DMSA/ALA and continuing just the DMSA for another day to carry out more of the mercury that the ALA had dislodged from the brain/organs. Found out that many of them actually do this and it helps with feeling crappy between rounds. I think I'll do and extra 12 hours of DMSA tacked on to the end of this weeks round and see what happens. Happy to be the guinea pig for chelating mamas. I just hope that the rest of you can avoid my mistakes.
post #55 of 850
Quote:
Did you have problems upping both at the same time? I just noticed that the yahoo group mentions only increasing one at a time. Awesome improvements
I didn't have any problems increasing both at one time. The only big problem I have had so far with adding or upping something is MB12 increasing yeast and causing a regression. Then there was giving grape seed instead of grapefruit seed extract, and watching his yeast program unravel when he drank too much pop. Oh, and the probiotic he was allergic too, and having to get custom d-lactate free probiotics. In general chelation has gone really smooth for us . Lots of gains.

I regularly add more than one thing in a week. This is not supposed to be done, for one, it makes it harder to know what you did so you can help others, or figure out what went wrong if something is bothering him. I have less than a year though because my 17 year old says he is not taking any supplements when he turns 18. This causes me to go faster than someone with a small child might go. I added four new things this week. P5P, chromium Polynicotinate, Methionine, and TMG...based on muscle testing and the pfeiffer protocol of zinc loading/MT promoting amino acid research, which he has responded so well to so far.

I am saying some prayers this week that it goes ok with all of these new things.:
post #56 of 850
Thread Starter 
BB - You are trying a lot of new things! I'll be hoping to hear good news.

Well, I just finished my 3rd round of ALA/DMSA 25/25. I continued for 6 doses of DMSA after the third day of the round. No problems on round. Shortly after stopping the DMSA I started having sleep problems of which I had none while on round and my hayfever: kicked in full force. I haven't had any hayfever for two months. I also had one of those freak out anxiety/depression attacks that just came up while looking at the computer and lasted about 15-20 minutes and then poof it was gone. So bizarre that I feel great while on round and start all this right afterward. My symptoms are nothing compared to what most on the yahoo group go through. This just convinces me even more of how dangerous and powerful mercury is to humans and of my own toxicity:. I was hoping to up my DMSA to 50 mg next round, but on the advice of one of the Yahoo members I think I'll stick to 25/25 for a couple more weeks.
post #57 of 850
Thread Starter 
O.K. I've posted about my sudden anxiety/depression attacks that come suddenly and leave in the same manner. I had thought that this was a result of brain mercury. Someone started posting the effects of mercury in the liver causing emotional issues and my little theory got blown way out to sea. I posted the following and received such a good reply that I wanted to share it on this board :

Hi.
Just wondering if it was better to do a castor oil pack on or off
DMSA/ALA round and why. Also can someone explain to me why mercury in
the liver could be contributing to anxiety/emotional issues rather than
mercury in the brain?

Thanks,
Moneca

Mercury in the liver blocks detox pathways. These pathways should
normally lead to a smooth and symptom-free detox of ordinary,
everyday toxins (waste products in the body, hormones, caffeine,
OTC and rx drugs, chemicals in the air and water, etc). When
they are blocked, many symptoms can occur due to toxins not
being broken down normally - some of these symptoms can be
emotional.

Imagine what a eight cups of coffee would feel like and suppose you
had that reaction to one cup... That's a blocked liver pathway
leading to emotional symptoms.

Another example is PMS - one cause of this is liver detox problems
that lead to hormonal imbalances and emotional symptoms.

O.K. me again.I'm going to try one of these castor oil packs because the folks were saying that it does not act as a chelator, but as a detoxifier to the liver. The original poster was saying that she was having anxiety issues while off round and after an hour with the pack her anxiety was gone. It will be cheap and natural so I'll give it a try. I just have to by some castor oil and find some flannel to soak it in. I'll probably just cut up some of DH flannel boxersto save money - isn't he going to love me when he gets back in town!
post #58 of 850
moneca,

such good info about the liver! Makes sense. I've been trying to support my liver, I know I have some life-long issues with it that need to be treated.

I'm on round 2 of DMSA. So far so good. Had some mild headaches with the first round, and some again with this second round. I can't tell if it's the mercury detox or my lack of sleep but I've been really out of it lately.
post #59 of 850
Thread Starter 
Toraji -
Glad it's been pretty mild so far. Hope it continues.

Finished round 4 of ALA/DMSA. I went four days and then did an extra 24 hours of just DMSA until this morning. I have no complaints so I think I'll increase this week and continue to do DMSA at the end of each round. Ooh, I forgot to get the castor oil!
post #60 of 850
Ok, so DH claims that I've been more addled since I started chelating. Well, I think I have been having more problems with my thought processes lately, getting confused more easily. Hopefully the ALA fixes it!
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