Just wanted to drop in for a short (or not
) update on us.
It's been 17 mos since I got my amalgams out and I am doing much better, much more functional, overall happier. I started chelating with DMSA soon after I got my amalgams out, and 3-4 mos after that I added in ALA. I eventually dropped the DMSA and didn't have any issues with ALA alone. Right now, my adrenals are still worn down, but I am staying up too late at night and have fallen back into the soda habit; a bit more willpower and I will fix both those and then I feel like I'll do great. But even with my bad habits, I am still feeling a lot better, I'm more energetic and doing more stuff with my kids.
Big things for me: gfcf, vitamin C flushes,
and modifilan for headaches/body aches/stuff like that. "Stuff like that" didn't happen a lot, but the modifilan took care of my headache after I got my amalgams out, and a few times I've had headaches (first few rounds of DMSA), and the modifilan made them go away.
I think high or low sulfur diets are important, but since I do best on a high sulfur diet (lots of eggs, onions, garlic, though the list is much longer) I don't notice this as much. I think the people who need a low sulfur diet notice this more when they make changes. Better description of high and low sulfur diets and foods, including a food list.
The kids have been getting the usual biomed supps for 2.5 yrs now, and I should've been done chelating them long ago, but my brain was so fuzzy and impaired, everything has gone slower than it otherwise could have. This summer/fall, I've really gotten into a good rhythm with them. DS needed some rounds of DMSA alone at first, now I've added in ALA and I'm considering trying some rounds of ALA alone. Alternating between them, doing some DMSA alone, and then using both, and modifying that as I monitor how he's doing, has been really helpful.
DMSA (we use Thorne's DMSA, the product is called Captomer, it's sold in 100mg and 250mg capsules) is available online, and having it around has been great. I was scared of it at first, it's a real pharmaceutical drug, but it's a very useful tool in my toolbox.
I think I'll be half done chelating the kids by New Year's, we're doing rounds consistently now. Neither of my kids has delays compared to the typical developmental schedule, but I'm seeing subtle cognitive changes (small jumps) in both anyway. DD's moods are more even and she's more in control of herself. DS isn't having any symptoms during rounds, that probably means I can increase his dosage of ALA. I think I'm a bit gun-shy after that fateful round a year ago in the summer (>1yr ago now) but I think I just need to get over that.
I'm considering doing hair tests for all of us, maybe in February, just to have something tangible to look at to see progress. But DLS (Direct Lab Services) has a 10% off sale through Nov 30, 2009, on everything, not sure if that could be added onto the autism-mercury yahoo group discount they usually give (you need to call to order and mention the group's name). If you order, remember to get the Hair Elements test (plain, boring name) NOT the Toxic Hair Exposure profile. To get the discount, you need to order the hair test by Nov 30 (they need name/gender/age of person getting tested) but then you can return it to them whenever you like.
I think I've got about 6 more months and I'll be done. I can do 100mg rounds of ALA with no symptoms now, I feel fine, so I'm stepping more into the "detox world," stuff that would've seriously, seriously impaired me a year or two (or five) ago. It's humbling to realize the huge gulf that existed (and to some extent, still exists) between me and more normal people. I'm using a Perque detox product, I can take one or two tablets per day when I'm chelating (remember, I've got extra ALA bopping around to help with mobilized metals--I don't have symptoms/problems due to the ALA anymore so it's easier for me to do this when I'm chelating than when I'm not) and I can really feel the effects. My DH took 2/day for 3 months and felt fine, absolutely nothing. Nothing. He inherently detoxifies well (very well), and I detoxify poorly. The difference is astounding.