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Chelating mamas? - Page 39

post #761 of 850
Thanks! After my second round of just DMSA I got some mood issues and started taking clay. It's working great! I don't feel that different off rounds now, just less thirsty and hungry, than on so I added the ALA and still feel good. I appreciate your time and will start digesting all of that Eventually we want to ttc again so I feel like I have to get this right the first time. If we were done having kids I could at least chelate again later if I needed to without the same ramifications.
post #762 of 850
Tanya, I just read the back of the Emergen-C and it lists Alpha lipolic acid 1mg in each supplement powder. This just freaked me out!!

What dose pulls mercury?


thanks, Pat
post #763 of 850
Quote:
Originally Posted by WuWei View Post
Tanya, I just read the back of the Emergen-C and it lists Alpha lipolic acid 1mg in each supplement powder. This just freaked me out!!

What dose pulls mercury?


thanks, Pat
Dang. I went and looked at the package labels online, as far as I can tell, that's a normal ingredient now in all of their products (was it always? back when I used it, I didn't know to look for it).

That will mobilize some mercury, the question is how much, whether it will have noticeable bad effects, or whether it will have low-level, hard-to-detect bad effects.

Some people, when chelating, need to start at _really_ low doses of ALA, some start at 6mg every 3 hours. Assuming someone only uses 2-3 emergen-c packets a day, this is still a lot less, but still, blech. JMBG (is that an acronym? just my best guess?), this dose is unlikely to cause mood issues in most mercury toxic people (and probably not acute health stuff like headaches/body aches), but for people _really_ on the edge, really deeply unwell, who start taking several every day, then maybe it could be an issue.

And for the price, there are a lot of other vitC products, and multivit products, that are cheaper for the dosage.

Quote:
Originally Posted by kasey11 View Post
Thank you Tanyalynn for spending the time in answering my questions.

I'm sorry "later in the day" turned into "several days later."

I'll try to describe what I feel is my brain fog. It feels as though things are just not as clear as they used to be. I think it started several years ago and I had always attributed it to getting older. This seems like an unlikely explanation unless you're about 95--seriously, healthy people think clearly. This past year with the lack of consistent sleep while on mat leave it seems to have worsen a bit. There are times when I try to speak and I will either get the words mixed up or grasp for the correct word to use. So, I'm not sure if it's from my amalgams or age/sleep deprivation.

Thing is--I can't tell if your amalgams are involved, but _something_ sounds like it's impairing your body's ability to work properly. Sleep deprivation is no fun, and when it's extreme, it's enough on its own, but do you think your sleep deprivation is extreme compared to most new moms? Pregnancy itself is also nutritionally very draining, for me it was enough to start highlighting hidden weaknesses. Whatever the cause, the fact that you can't think clearly is a sign of _something_ amiss.

The only other major health issues I have are migraines (usually from change in weather pressure) and seasonal allergies. Hopefully this means I'm a good excreter, considering I have 9 amalgams.

Google migraine and MTHFR gene. It's not a 100% correlation by any account, but migraines (esp with aura) happen more in people with a high need for folate, it's a genetic variant in the population. This would be a good reason to get the Thorne multivit (Basic Nutrients, or any of their regular vit/mins), because they have folate instead of folic acid.

When I get a chance I'll read through the Curing Cavities with Nutrition sticky. Both dentists I visited described my cavity as being very close to the nerve with a possibility of a root canal. Which is probably why I feel pain on the lower right when chewing. I'm not sure I have much of a choice in postponing this. Ideally I would prefer to hold it off for 6 more months but I'm concerned with what can happen if I leave it alone too long especially in the state that it's in. Do you know of any other mamas who've held off dental work which may have led to a serious infection?

You may really need to have the dental work done, the biggest issue in my mind is how safe will this be for your nurseling. Which is healthier--weaning, or continuing to nurse several days after the amalgam is removed?

I just ordered online 2 bottles of modifilan. How many capsules of the modifilan do you think I should take daily?

If you don't wean, I'd keep it for after the removal. I took 8 when I started to get my post-removal headache, that lessened, it, then another 6 and the headache was gone.

The other shallower cavities and remaining amalgams will be dealt with later. And then after the complete amalgam removal, chelating myself and possibly my DS.

This is the start of a long journey for me. I'm so grateful for mamas like yourself who are kind enough to help those of us in need and just starting out.

Thanks!
To minimize risk to your LO (and I really want to stress, I am not sure this is sufficient to avoid harm to your LO, but it's good nutritional support for a person who is unwell and is geared toward people with detoxification/toxicity issues), if you don't wean before the dental work, I'd do this:

-start taking vitC 3x/day, slowly increase to see how much your body needs on a daily basis. I use Now foods sodium ascorbate, economical and easy on the stomach. healthy people shouldn't need huge amounts, say 4-5 grams per day (total, so 1.5 + 1.5 + 1.5 approx), some sick people need tons (I started at 44 grams per day), some sick people need only a bit, and that can take thought, I'm not sure what the answer is there (NAET maybe possibly, only a guess though on my part)

-start a good multivit, Thorne Basic Nutrients is a good one that's easy to find and affordable...

-consider a separate multi-mineral supp, Thorne again is good quality, easy to find, the products citramins and biomins are two to consider

--> the combo of Basic Nutrients citramins/biomins provides a fairly robust dosage of most vitamins and minerals,

-start a sublingual B12, B12 is significantly depleted in people with metals issues, and sublingual bypasses digestion in case your digestion is off... 2000 mcg per day is reasonable, get a hydroxycobalamin or methylcobalamin, not cyanocobalamin... I use Perque's sublingual B12, Jarrow is easily available too

-I have a quirk in my family, we don't deal with fish oils well, so I don't know what to recommend. I am, to some extent, ignoring it because I don't respond well (atypical reason, unlikely to apply to you) but overall, probably a good idea--if you choose a cod liver oil (has vitA, which isn't a bad idea) consider a vitD supplement as well, sick people tend to end up low in vitamin D (consider if this is possible, consider a separate supp for your infant, the vitamin D council website has dosage guidelines, just ignore anything they say about vitamin A )

http://www.vitamindcouncil.org/healt...eficient.shtml

-consider food intolerances, specifically gluten and dairy (some folks find brain fog, in particular, responds to gluten and/or dairy free--I had to do a lot more work to have improvements in depression/anxiety, but there's a lot of variation here)--this reduces stress on your body, allows you to handle future stresses better... if you try it, give it 3 months to see if it's helping, I felt better in 1.5 days, but some folks don't notice anything til 3 months off and then they eat a sandwich and feel BAD, and don't realize they slowly trended better

-read this doc about vitamin C flushes (I use 50% Perque vitC crystals, 50% Now foods sodium ascorbate):
http://www.perque.com/pdfs/Pt_Ascorbate_Slush_FIN.pdf

I did those while nursing, I think it was beneficial then, and I think it was beneficial to do them the night I got my amalgams out. I'd try them beforehand, just to see how your body responds. After each flush, I needed to reduce the amount of daily vitC my body needed--that directly lowered the toxins in my milk.

That's the best I can come up with, if you decide not to wean. I do not know how big the risk is if you continue nursing after the removal--I'd really wait at least 3 days, and do all this, but even then... the risk is proportionate to your susceptibility to health issues that are detoxification related. People who end up reading this thread seem to be on the sicker end of the health spectrum, so I'd proceed with caution.

Oh--one thing that may be helpful... think about your family health history, what problems are your parents and siblings prone to? Maybe both parents are similar, but if they seem very different, focus on the one you are more similar to wrt health stuff.

My family--anxiety, depression, other mood disorders, thyroid problems, fatigue, alzheimer's. Am I forgetting anything? Allergies, for us enviro year-round. That's not everything, but those are some that are typical, and some families are truly without any of that stuff.

Make sense? Best wishes, let us know if we can help more.
post #764 of 850
Thanks, ds has been drinking them for years, cause they taste good, mostly. Not sure how we started them. I'll think about that.

Pat
post #765 of 850
I guess it's not exactly reassuring, but I drank them regularly during my pregnancy with DS, and I always shared with 2yo DD. But all things considered, we're all doing pretty good.
post #766 of 850
I'm about to spend a huge chunk of change on supplements for my removal (which is scheduled for the end of this month).

Where is the best place to order ALA and DMSA?
post #767 of 850
Quote:
Originally Posted by Toolip View Post
I'm about to spend a huge chunk of change on supplements for my removal (which is scheduled for the end of this month).

Where is the best place to order ALA and DMSA?
I price-check a few places....

naturamart.com
totaldiscountvitamins.com
nationaldiscountvitamins.com

I've only bought Thorne DMSA (Captomer is the product name, it's available in 100mg and 250mg), so I don't know other places/brands. Thorne's ALA is called Thiocid, the regular is 100mg, and there's a Thiocid-300 which is 300mg. You don't want their R-Lipoic acid, it's a stronger variant of ALA.
post #768 of 850
Quote:
Originally Posted by tanyalynn View Post
I price-check a few places....

naturamart.com
totaldiscountvitamins.com
nationaldiscountvitamins.com

I've only bought Thorne DMSA (Captomer is the product name, it's available in 100mg and 250mg), so I don't know other places/brands. Thorne's ALA is called Thiocid, the regular is 100mg, and there's a Thiocid-300 which is 300mg. You don't want their R-Lipoic acid, it's a stronger variant of ALA.
Thank you! I will check them out!
post #769 of 850
just out of curiosity, are any of you trying to chelate anything other than mercury? I just found out that our water supply is mostly runoff from a serpentine mountain
post #770 of 850
It's a good time to share stores/brands/supps...

I'll share what we use and where I'm buying now, everybody else who's got stuff that's meeting their needs, you share too!

When my brain was dead a few years ago, having things easy was really important.

Supplements:

We use a lot of Thorne supplements (multivits are Basic Nutrients, several formulations are no copper/no iron... mineral supps are Biomins and Citramins and various mag-only, cal/mag-only, etc). They've also got B-complexes with real folate (not folic acid, important for some of us) and extra B-6 or other Bs if that's what you need. They have melatonin too (yay!!!).

They're available lots of places online, I check the places I mentioned above and price-compare...
http://www.totaldiscountvitamins.com/
http://nationaldiscountvitamins.com/
http://www.vitalbee.com/

Hey, I just learned that naturamart.com changed its name (and URL) to vitalbee.com

B12:
I've used Perque B12 Guard (hydroxycobalamin) happily for a long time--I buy at naturamart/vitalbee.com

I am about to order a liquid B12 from this place, per dose it's a lot cheaper...
http://www.holisticheal.com/complete-b12-list.html

I want the liquid hydroxycobalamin....
http://www.holisticheal.com/hydroxy-b12-mega-drops.html

Vitamin C:
I use Now brand sodium ascorbate, I google for the best price (which is about $40 with free shipping for a 3-pound container)... it's the most economical I've found and we use so much, I need cheap

DHA:
I'm about to order (1st time) Jarrow Max DHA from vitacost.com... fish oil based, lots of DHA, very little EPA, economical but seems good quality. My family has bleeding issues with EPA, other folks may not need this.

Cell salts (homeopathic/nutritional supp):
Coolest thing I've found this year. If you tolerate lactose (we are gluten/dairy free and seem just fine with this), bioplasma (the 12-in-1 cell salt) is really helpful... it's reduced the amount of multi-mineral supp I need, it's reduced the amount of zinc my kids need.

http://www.1-800homeopathy.com/cell-...bioplasma.html
post #771 of 850
Quote:
Originally Posted by Toolip View Post
just out of curiosity, are any of you trying to chelate anything other than mercury? I just found out that our water supply is mostly runoff from a serpentine mountain
DD's hair test showed a lot of arsenic but since it comes out so nicely with ALA, I haven't really had to consider other metals very specifically.

My focus, for good or bad, has been to get a lot of the mercury out, shore up our nutritional stores, and then consider non-Cutler-type metal mobilization approaches/products. I think I have a lot more resilience, health-wise, right now than I did 3 years ago, and stuff that would've made me sick then is helpful now.

So I don't have specifics for you. If you search mamafish9's posts (probably in Allergies, but some here too I think) you'll find more about other metals.

Right now I'm supplementing glycine with my ALA, it packs a punch (about 1000 mg glycine with my 100mg ALA--took me work and time to get up to 100 mg of ALA, that's not a starting place). I can feel the effect of the glycine on me, so I know it's helping, I haven't quantified with what.
post #772 of 850
I started chelating at the end of March this year with 25mg DMSA. I've since dropped the DMSA and have worked up to 100mg ALA (I know that's quicker than what Cutler recommends ) My bowel tolerance with C used to be 28 grams while on round. It's now 12 grams on round a month later. I never had amalgams, but that still seems like fast progress. Any feedback? I've done 3 days on and 4 days off the whole time except for 2 weeks off once. I keep thinking that either this is really great or that something is wrong.
post #773 of 850
That _does_ seem fast. How do you feel? If you're tolerating 100mg ALA rounds, then I'd say that's not a bad thing.

I haven't gone back to re-read the thread, what's the history that got you here, to mercury (and maybe other heavy metals)?

How did you feel that first round or two of DMSA @ 25mg? Good, bad, nothing?

How do you feel now on the 100mg ALA rounds? Do you notice them at all, anything good or bad?

As I was chelating, here are some of the things that improved in me (my chelation path has been longer and slower than yours):
-my body temp has increased, though it's still not normal (BBTs are a bit low, though a LOT better than they used to be, daytime temps are a little low as well, but massively improved)
-fatigue is better (it seems just adrenal now, and now that I feel better, I am not getting to bed early enough, which I think is the reason it lingers)
-my mood has improved, I was likely borderline depressed when I started this, now my mood is fairly good, sometimes great, but I can make it bad by eating gluten
-overall I can change how my body feels more easily--before, I was so worn out that doing good things or bad didn't make a huge difference for the most part, whereas now my body's more responsive


So, I guess if it were me, I'd be looking for changes in the problems I saw that were metals related. Also, if you didn't do a hair test (or other testing method), is it possible there's another metal involved? Maybe lead (which ALA doesn't do much/anything for)?

Or, if you aren't feeling better, but you're clearly chelating at high doses, could it be something other than a metal? In other threads, it seems there's a lot of overlap in people who are susceptible to metals and also susceptible to lyme and maybe other chronic viral/bacterial infections. I'm not very knowledgeable on those, but considering them may be worthwhile if you aren't feeling better.

If you _are_ feeling better, I'd say get a new hair test and see what's going on--would any metals be elevated by being mobilized by chelation? I've never been completely clear on that....
post #774 of 850
My hair test showed deranged mineral transport, and barium and aluminum were a little into the yellow. I tested because both my dd's have had a lot of food allergies. Their hair tests didn't show deranged mineral transport, but the youngest had mercury into the yellow. I haven't had amalgams, but my mother did and I got lots of extra vaxes for travel to south america as a teen. At first I felt really, really good on chelation rounds. Now that's how I feel on and off round. I still notice some difference on (better), but it's less with each round. Can't think of any bad effects. Dropping the DMSA hasn't seemed to cause any issues.

I can exercise every day instead of being too tired to. My brain is alot clearer, I'm finally able to learn and absorb things I've tried to for a long time. I'm more adept socially though I still need some help I don't think I was depressed before, but my mood is a lot better now, less cranky and more energetic. My thyroid still needs some work. My temps are gradually going up. They used to be in the 96s before ovulation and then high 96 or low 97 after. Now they're low 97 before and high 97, almost 98, after.

Our whole family has started seeing a kinergetics practitioner as much as we can afford to and I'm wondering if that is contributing. She cleared both the girls allergies because they were coming from negative energy passed down from grandparents. I'm still kind of shell shocked about it, but seeing is believing. The practitioner also does work with heavy metals including mercury so I plan to see her next month for my thyroid and mercury in conjunction with ALA rounds.

So if I get a clean hair test, my thyroid becomes healthy and then I chelate for a few extra months is that considered good?
post #775 of 850
That all sounds really good, it sounds like some combination of things is working great for you. I think you've got some choices going forward, none of which are bad, it'll depend on how you want to go. I threw out some other ideas for mobilizing metals and assorted toxins--they're helpful for me, but this whole process is taking me a lot longer than you--so maybe they won't be as helpful for you, so feel free to say no thanks.

In no particular order:

-exactly what you wrote, and then just figure out good nutrients, good food for you, and enjoy life.... Cutler's take is that you want to feel the same on-round as you do off-round, so it sounds like you're close... I've had the same pattern of feeling better on rounds of ALA than off, and eventually I don't feel the ALA rounds as much/at all...

-experiment with higher dose ALA... I've done a couple rounds at 200mg, I jumped directly from 100 to 200, and that could work well for you... some of the archived Cutler stuff somewhere mentioned it as a possibility as you get near the end of chelation to try to essentially blast out the last of the metals (they may have mentioned higher than 200mg, I don't remember exactly what number was discussed)... my first round at 200mg was similar to my first round at 50mg, so I was quite tired but functional, as a comparison point.

-try non-Cutler stuff, which is where I'm focusing now. I'm adding in glycine with my 100mg ALA, it's kicking my butt (I think via promoting amino acid conjugation, whatever weird chemicals/crap I accumulated due to not having enough glycine--a non-essential amino acid, but one way our bodies make glycine is with folate, and I was low in folate... not sure if there are other reasons I ended up low)... general recommendations are 2,500 mg of glycine with/before each dose of ALA while chelating but I can only do 1,000 mg

-I haven't used it, but R-ALA is stronger than plain ALA, I don't know how to compare doses of ALA to R-ALA so I can't help with many details here

-I've played with modified citrus pectin, it mobilizes stuff, I regret giving it to my kids before I experimented with it more myself, but I will finish the bottle we've got, I think it's helpful for me (I'm healthier than them, I've chelated more)... but it's decidedly non-Cutler (but I think I'm healthy enough to handle the metals that get dropped--better detox pathways than before, and a much lower load of metals than before)

-if you figure out how to make more progress on your body temp, can you let me know? I've seen progress, but not all the way done, and I'm not really sure why...I take Iodoral, it helped noticeably at first, now I don't notice much taking it or skipping it

And I've got to say, at such a great update. That's so nice to hear!
post #776 of 850
Yeah, I'm really excited! Thanks for listing possible options. I'll look into them and see what I think. I like a big list of things to consider since I want to cover all my bases. I think I'll try some higher does of ALA for sure and see how I feel. If I find a magic thyroid cure I'll let you know. I started upping my iodoral this past week to see if it would help after the good effects seemed to peter out. If the kinergetics doesn't help I'll try the homeopath I saw while pregnant since she said my hg was due to hypothyroid and her remedies 'cured' it. I had this feeling to keep taking my temp after I got pregnant, but didn't so I don't know what it did temp wise. After that I guess I'll try armour if it's still low after chelation is done. I don't know what else to do for it.
post #777 of 850
So why is it important to not have extra copper in the multi vit? I was just reading this about copper and it got me thinking. I really don't know much about copper, especially it's role in chelation.
post #778 of 850
Cutler says that ala can lessen copper excretion. Here's a quote from a site about his method: "ALA tends to lessen copper excretion--- so people taking ALA may have their copper levels increase. This can be a problem for people who already have high copper (which is toxic). This should be considered in deciding when to use ALA."
My hair test showed normal copper levels so I didn't feel the need to supplement especially when my body might retain more while chelating.

I had my first kinergetics appointment for mercury on Friday and my bowel tolerance for vit C has gone way up. A few days before the appointment I finished a round of 100mg ala and my bowel tolerance was 4.5 grams on and off round! I'll keep doing both methods, but may take a week break from ala when I have a kinergetics appointment.
post #779 of 850
Ok, so here's what I think I'm going to order and where. Please let me know what you think. I need to order it tonight.

magnesium citramate
Double Zinc Picolinate
Molybdenum Picolinate
Pic-Mins
Basic B Complex
Basic Nutrients III (Citrate W/O Copper & Iron)
Bioplasma
B 12 drops

I already have:
Vitamin C
Bentonite clay
Cod liver oil
Milk thistle

Does that look like a good list? What am I missing? Is there something better that I should get?

The thorne DMSA only comes in 100mg, right? Where can I get a good price on 25 mg? ALA?


Now, can someone help me with doses?

Zinc (50-100mg)
Trace minerals
Molybdenum about (1000 mcg)
Magnesium (500-1000 mg in divided doses)
B complex
Thorne multi-vit
Sublingual b 12
Vitamin C (bowel tolerance)
Bentonite clay
Cod liver oil
Milk thistle

I put the ones that I have some idea about, correct me if I'm wrong...

Thank you!!!!
post #780 of 850
First, I'll say that I don't know near as much as Tanya

Quote:
Originally Posted by Toolip View Post
Ok, so here's what I think I'm going to order and where. Please let me know what you think. I need to order it tonight.

magnesium citramate
Double Zinc Picolinate
Molybdenum Picolinate
Pic-Mins
Basic B Complex
Basic Nutrients III (Citrate W/O Copper & Iron)
Bioplasma
B 12 drops

I already have:
Vitamin C
Bentonite clay
Cod liver oil
Milk thistle

Does that look like a good list? What am I missing? Is there something better that I should get?

The thorne DMSA only comes in 100mg, right? Where can I get a good price on 25 mg? ALA?


Now, can someone help me with doses?

Zinc (50-100mg)
Trace minerals
Molybdenum about (1000 mcg)
Magnesium (500-1000 mg in divided doses)
B complex
Thorne multi-vit
Sublingual b 12
Vitamin C (bowel tolerance)
Bentonite clay
Cod liver oil
Milk thistle

I put the ones that I have some idea about, correct me if I'm wrong...

Thank you!!!!
How much mag is in the citramate? I've gone through alot of mag (also to bowel tolerance) while chelating and a bulk powder like natural calm has been the cheapest.

I got my dmsa from http://www.vrp.com/ since it was the only place I could find 25mg capsules. iherb has ALA and if you google ALA and the dosage you want various sites come up. I take 400 ius of vitamin E as well, but otherwise your list seems pretty similar to mine. I really like the Thorne supplements since they usually don't have magnesium stearate (gives me a horrible headache).

I'm not a ton of help on the dosages since I take what seems to be a good amount rather than an amount that I know is the best through researching. For instance I take 1 tsp of bentonite divided up throughout the day even though I'm not sure if that is too much. But I feel good at that dose so that's where I'm at. I take what the bottle says for fermented cod liver oil. I buy milk thistle seeds and then put them in the blender with my green smoothie, it's about 2 'pinches'.

Good luck with your removal!
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