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Help with letter of complaint against ex family dr  

post #1 of 19
Thread Starter 
The actual letter is fairly long, so I'll summarize; I can post if people are interested. I'm complaining to the state licensing board, b/c this dr was verbally abusive to us, and was so fixated on our refusal to stop bfing and start formula that he completely missed that my ds had a heart defect. The short version of the story is that around 3 wks old, there was one day where dsrefused to nurse all day, so I expressed some milk and gave it to him with an eyedropper. My dh (to his regret) called the dr to report the feeding problem; they wanted to send out a visiting nurse, and told us to stop bfing immediately and start giving formula in a bottle. My LLL leader came over, and we decided that we might just be missing his early hunger cues so that he would get too upset to eat well. When the dr's office called back, she spoke to them and said the situation was under control. We went to his 4 wk appt (on Wed) and he had not gained any weight since 2 wks. Dr ranted and raved, said bfing and LLL were killing our baby. I said I had an appt with a LC for that afternoon. He said he didn't care, it was out of his hands, we should find a dr who'd give more "naturalistic" advice. Said he'd get Children and Youth Services out "to see what's really going on at home." Ds had a heart murmur, so he did want to schedule an echocardiogram--said the office would do it so it would happen sooner and they'd call with the appt that afternoon. I decided to get a 2nd opinion at least or maybe switch drs, so made an appt at a new practice for Fri. No call then or Thurs, till I called in pm to ask about it. They asked how he was feeding, and I said still not well. Dr wanted me to take ds to ER. I didn't go b/c he hadn't given any reason that this was emergent, and we had appt with new dr for next day. When we went to the new dr, they were immediately concerned about his breathing, and put a pulseoximeter on and discovered his blood O2 levels were 79%. We got rushed to ER in ambulance, then transferred to Children's Hosp when ds was stable. Had heart surgery 3 days later.

On the complaint form, it asks for what I would want for resolution. Any ideas? What might be reasonable to ask? That he be required to have some continuing education about feeding problems in newborns?
post #2 of 19
to you,

Yes, asking that he be given basic newborn feeding guidelines would be a good start. Also lessons in how to properly present serious information to parents. (Although, you might have taken him more seriously if he hadn't been such a moron about the bf thing.)

He should also have to write a report on why formula is bad unless absolutely necessary and common reasons people give formula that are not absolutely necessary.
post #3 of 19
Poor baby. Poor mama.

I don't think I'd feel much like eating either if I wasn't getting any oxygen. I wonder what he would've try to say you were doing wrong once you'd tried formula and baby still wouldn't eat. :

Did your baby look much different at the time that the new doc picked up (right away) on his breathing problem? Or did he look about the same as when this other guy saw him? It makes you wonder if he was missing something obvious.
post #4 of 19
I would ask that his license be revoked in order to avoid a lawsuit or I might just sue him- he was so focused on getting your baby on formula that he didn't even recognize the severity of his heart condition. That is negligent.
post #5 of 19
Thread Starter 
Quote:
Originally Posted by blessed
I don't think I'd feel much like eating either if I wasn't getting any oxygen. I wonder what he would've try to say you were doing wrong once you'd tried formula and baby still wouldn't eat. :
Who knows. I mean, we'd tried expressed milk in a bottle, and he wouldn't eat that. I didn't see how formula was going to change things--except he'd probably be LESS likely to eat it. The dr seemed to think I had a supply problem. To be (somewhat) fair, my dd had a feeding tube for 3 mos when I was pg with ds, b/c my milk dried up and she WOULDN'T take a bottle. So I think he figured I just have supply issues.

Quote:
Did your baby look much different at the time that the new doc picked up (right away) on his breathing problem? Or did he look about the same as when this other guy saw him? It makes you wonder if he was missing something obvious.
I don't think much--maybe a little duskier/more mottled. We had noticed his legs being mottled, but figured most newborns have some circulation quirks. He'd also been breathing fast, and with a grunt, since birth. I think everyone noticed that EXCEPT the first dr.
And I've run across an article from the journal of the AAFP, I think, that talked about diagnosing congenital heart defects. And guess what a symptom is--feeding issues. It seems like heart murmur+feeding difficulties ought to equal suspicion of a defect.
post #6 of 19
Quote:
Originally Posted by LoveChild421
I would ask that his license be revoked in order to avoid a lawsuit or I might just sue him- he was so focused on getting your baby on formula that he didn't even recognize the severity of his heart condition. That is negligent.

I agree! This is a serious matter, and a simple class is not sufficient! I urge you to find a lawyer asap! Keep this twisted doc from passing deadly information onto other parents, ones who do't know as much as you do!
post #7 of 19
It sounds as if he needs training in diagnosis and treatment of heart conditions, training in appropriate doctor-patient communication, in addition to the BF education/training. You can also ask that he be monitored, I'm not sure what the offical term is for this. (Another doctor will review his work and have to sign off on it. He'll have to pay for the doctor's time. It would likely be someone assigned to him, not choosen by him.)

I hope your little one is doing better.
post #8 of 19
Quote:
Originally Posted by mama-a-llama
He'd also been breathing fast, and with a grunt, since birth...
This is a classic sign of respiratory distress in an infant. Even a medical strudent rotating on pediatrics should have picked up on that.

It's never, ever normal for an infant to breathe with grunting.
post #9 of 19
Quote:
Originally Posted by blessed
It's never, ever normal for an infant to breathe with grunting.
Absolutely. It's comoletely negligent that he didn't pick that up. Mama-a-llama, I'm so sorry you and your family had to endure the abuse of an ignorant doctor on top of dealing with an undiagnosed heart defect in your little one.

I disagree with some of the PPs about the doctor needing his license revoked. I'm as strong a lactivist and child activist as anyone, but I really feel that this doctor needs education and re-training on certain issues rather than the loss of his license. I think this is a mistake that he will hopefully learn something from and can use to better treat future patients.

He was obviously concerned for a newborn baby, which is admirable and, quite frankly, HIS JOB, but he missed some very important signs of a heart defect. It's maddening and scary, but if every doctor lost his/her license because of a misdiagnosis, we'd have no doctors. The medical board will hopefully take the letter seriously and hopefully something positive will come out of all of this.

post #10 of 19
Quote:
Originally Posted by deleria
The medical board will hopefully take the letter seriously and hopefully something positive will come out of all of this...
You have to get both sides of the story to ever have a real idea about what's been going on. There is not a single doctor alive who hasn't had at least one patient or family who made claims of incompetence against him or her. It's absolutely true that there would be ZERO medical practioners (of any kind) if that's all it took for someone to have his license revoked.

Almost all of cases such as this go away after some fact gathering has occurred. Not saying at all anything about this case, since I don't know anything more about it, but just by way of example, when the medical records are reviewed they might find that the doctor had documented respiratory distress and been pushing for hospital admission and work up ever since the first moment he laid eyes on the baby, but that the parents had refused. (Again, I'm not saying that's what happened here at all, I'm just trying to give an example).

That's fair and wise of you to have made that observation, deleria.
post #11 of 19
Quote:
Originally Posted by LoveChild421
I would ask that his license be revoked in order to avoid a lawsuit or I might just sue him- he was so focused on getting your baby on formula that he didn't even recognize the severity of his heart condition. That is negligent.
Yeah that.
post #12 of 19
How awful!

I think that he should have to take some LLL courses or some LC courses
post #13 of 19
to you and your DS. How is he doing? I totally agree with what LoveChild421 said about getting that man's license revoked. I am so sorry you and your family had to go through something this horrible. My thoughts and prayers are with both you and your DS.
post #14 of 19
That's outrageous! Sounds like medical malpractise to me :

to you and your little one
post #15 of 19
WOW. Your baby could have died as a result of this doctors blinders (obviously has a HUGE grudge against nursing moms if he used the word 'naturalistic' as something BAD). This is medical malpractice at it's worst because not only did he almost cause major harm to your baby immediately, had you listened to him you might have caused your baby harm long term (from artificial food). This doctor needs to be required to take sensitivity training, ethics classes (they have them for docs, lots of them!), AND the 12 hour lactation education course that is designed for doctors, nurses, etc that is available!

Get a lawyer too, it can't hurt to see what your rights are. This man was a horrible a$$ to you guys, there is NO excuse for that at all.
post #16 of 19
Thread Starter 
Quote:
Originally Posted by blessed
This is a classic sign of respiratory distress in an infant. Even a medical strudent rotating on pediatrics should have picked up on that.

It's never, ever normal for an infant to breathe with grunting.
We thought it was just a personality thing, since the dr didn't pick up on it. To my eternal regret, though, we didn't ASK, just assumed it wasn't a problem.
post #17 of 19
You're not supposed to have to ask . And even if you had, it sounds like this guy was already missing the boat.

The babies grunt in order to increase their oxygenation. When the do that little 'bear down' (uhh...uhh...uhh) with each breath, it keeps their lungs slightly popped open, so that more oxygen gets to their bloodstream. It's hard work for them .

Poor little baby.
post #18 of 19
Thread Starter 
Pulling this thread back up. We've just been at the hospital for a few days with my little guy for Rotavirus induced dehydration and fast heart rate. While there his cardiologist got a geneticist in to see him. And it turns out the heart defect is part of a fairly rare genetic problem (Rubinstein-Taybi syndrome).

Quote:
Originally Posted by lactationmom
This doctor needs to be required to take sensitivity training, ethics classes (they have them for docs, lots of them!), AND the 12 hour lactation education course that is designed for doctors, nurses, etc that is available!
Something along these lines seems most reasonable to me. Yes, he made a pretty grave error, but even ds's cardiologist says it can be hard to make a diagnosis. She has an older patient with the same defect, and said she was fine until she just crashed, like ds did.

I'm most concerned that he missed the breathing stuff, and his communication skills. He laid on the "dead baby card" pretty heavily. I didn't include in the OP the part where my MIL called him to say we weren't taking ds to the ER (I didn't want to have to talk to him at all). He told her we were negligent, and kept interrupting her, saying he'd heard it all before. And he said "well I hope he doesn't become dead or brain damaged while they figure it out."

Somehow I doubt that a sensitivity course will change his habitual communication methods, but I guess it's worth a shot. And a lactation course, so he stops recommending formula at the first sign of trouble. I don't see how it would be enforced, but I'd love for him to be required to refer to a LC first, just as he would refer to any other specialist when there's an issue that's out of his scope.
post #19 of 19
Quote:
Originally Posted by mama-a-llama
Pulling this thread back up. We've just been at the hospital for a few days with my little guy for Rotavirus induced dehydration and fast heart rate. While there his cardiologist got a geneticist in to see him. And it turns out the heart defect is part of a fairly rare genetic problem (Rubinstein-Taybi syndrome).
Thanks for the update to your whole family during this trying time.
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