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Spinoff: Talking with kids about disabilities  

post #1 of 10
Thread Starter 
Hey mamas,

My DD is 3.10 and we seem to have a pretty good grasp on discussing issues of racial, and other, differences. We are fortunate in that we live in a very diverse area, have all different types of friends, and there are countless opportunities to have these types of discussions. I would love, however, to hear from those of you who have talked, successfully or not, with your DC about people with severe disabilities. I'd also love input from mamas who have kids, or family members, etc., who face some of these challenges, and what you think would be a good and sensitive approach. I'm not talking here about someone in a wheelchair or who walks with braces - I'm thinking more along the lines of someone with pronounced mental challenges, severe CP - - things that might be harder to discuss/grasp. It's easy for me to say to DD in a matter of fact tone when she asks about the wheelchair-bound woman in the produce aisle, "she's in a wheelchair because her legs may not be very strong and thar's how she gets around." It is NOT easy for me to address someone's more "severe" disability. We were in a store the other day and a man was wheeling around a girl I assumed to be his daughter - - - her body was twisted in the chair, she had straps to keep her from falling out, straps to hold her head, she was drooling, rolling her head around and making noises. I confess I steered DD away from her because it broke my heart and I did not know what to say . . . . Likewise, I work with a man whose arms end at the elbow and he has three fingered hands. I have only known him over the phone for the past year and when we met in person I found myself wondering how I would explain it to DD.

I tend to overthink stuff but I'd love some help! Thanks in advance.
post #2 of 10
Hiya,

I have spoken with my DD about several types of disabilities. Her cousin (he's an older teenager) has several developmental delays and several dismorphic body issues. His fingers are splayed and his feet are not shaped normally, his face has a slack jaw type of look and his head is irregularly shaped. He also "sounds" like a person with developmental delays.

I waited until I saw that DD actually noticed because I just felt that she was more ready and mature to discuss it. One day I saw her on the couch with her cousin and I could just tell by her body language that she was wondering why this "grownup" was sitting on the couch and playing with a 5-year old in the way that a 5-year old would play. After the visit, I asked her if she noticed that there was something a little different about Willem and she was eager to talk about it.

I told her that when Willem was born his parents noticed that he had some things about him which made him look a little differently from the other kids. I told her that they took him to the doctor and the doctor told them that even though his body was going to grow up, his brain was always going to be "younger" and he would always seem like a younger person. She asked if he would read and do math and I told her that he would not do those things but he would always be able to play and color and he was in a school which would teach him the things that he would be able to learn even though reading and math were not part of it.

I had to really walk a fine line. Earlier that year my DD and I had talked about her starting kindergarten and she asked me if I was sad about it. I told her that a teeny, tiny part of me was sad but most of me was happy because all parents want their children to grow up and learn about the world. She then asked me if Willem's parents were sad that he wasn't going to learn and I really had to struggle with that answer. But I tried to be honest and diplomatic so I told her that they probably had felt sad about it many years ago and maybe every once in a while they are sad about it now but they are happy that they have a wonderful son who is who he is. I encouraged her to talk to me about it if she feels strangely when she sees him and told her that it is okay to feel strangely, that it is normal to feel strange when we see things that we are not used to seeing but it's important to know that we all have different abilities and nobody is more important or special than anybody else.
post #3 of 10
Thread Starter 
LoveBeads, thanks for sharing your story. I really like how you took a proactive approach (bringing it up by asking her if she had noticed something different), and your sensitive explanation about nobody being more important or special than anyone else. It sounds like you were able to highlight some of your nephew's positive qualities and gifts in that discussion.

It seems to me your explanation was aided in part by what you know about your nephew and his condition. I never want to assume what someone "has", y'know? I recently had a client with severe, severe CP - she could not communicate verbally (in a way that I could understand, I should add - her mother could understand her and would often translate), so she would e-mail me instead. She was quite intelligent and funny, but her physical appearance and inability to (clearly) speak might suggest to someone that she had some significant developmental delays.

What if DD were to encounter your nephew Willem out and about? What about the above-described client? I just dread, dread, dread the question in her little piping voice, "mummy, what's wrong with that person?"

This sort of happened the other day (out of earshot of the person she was asking about) and I knelt down beside her and said, "you can ask me any questions you want about this when we get home, but right now is not the time to talk about it since I want to make sure we don't hurt this man's feelings." I'm sure there are far better ways to handle that situation! I'd love to know more about how others deal with these things when out and about.
post #4 of 10
Lovebeads, I liked your answer. I know kids are curious and open. I want them to be able to ask questions, for me I have just said, "That person is different. There are all different kinds of people in the world" Because when you see a disabled person, you don't know what type of disability they have. I try to keep it as unemotional as possible, so they will accept there are all diff types of people, and not think one is "bad", just different.
This is a good topic, I hope there are more replies and ideas.
post #5 of 10
I don't know if this will help...

I have a dear friend with MS. She is in a wheel chair and has a list of issues a mile long. My kids have always been exposed to people that have had serious medical issues. She lives in a group home now so we see a lot on visits.

They have seen a lot with my grandparents illnesses.

They have seen stuff with my dd hearing issue and at children hospitals.

I do remember once my son (about 3) asked why that man and one leg. I just asked him why he had two and moved on. The man thought it was funny. I found that attitude with my children works and makes it no big deal. The only exception has been with burn victims. That was something I was fortunate enough to do some prep-work because of a tv program and a fire safety video I got from the fire house (thanks to my dad letting my son hold roman candles in his hands to shoot them off). Many kids burn victims can really scare them. We have been in situations were my kids were exposed to a child burn victim and the mom was so happy that my kids "didn't notice".
post #6 of 10
There was a wonderful article in the last issue of Brain, Child written by a mother who had a disfigured arm. She described how different kids related to her situation.
post #7 of 10
my ds turned 3 in March. I have the opposite issue. We live in an area where there are ONLY WHITE PEOPLE and it's making me crazy to think he'll grow up w/o diversity!

We just had a wonderful example of dealing w/ the disability issue. Our dear friends just had a baby who was born with NO EYES. She's still just a few months old and they were here to visit recently. We simply described this to my son and he understood that she had NO EYES. I have to say, I think a little one can actually wrap himself around this notion better than a grown-up. He totally wasn't shocked or grossed out or anything. He did look at her really hard and asked how she would learn to drive a car if she couldn't see (lol... he was worried about DRIVING?!?!) and that's about it. He will see folks in wheelchairs at the grocery store and mention to me that their legs don't work, so they need wheel chair help.

just our experiance. Keep the lines of communication open and your dc will reawlly welcome any experiances... it takes all kinds, right?
post #8 of 10

let them be honest

I would say let them be honest, I mean obviously we don't want them yelling in stores and things, but I would tell them that everyone is different and some people have trouble doing things. That's why they may need for example a wheelchair. But, let them look or even let them ask questions. I really hate it when a child is scolded for being curious. It doesn't bother me at all, I'll answere almost any question that is a child has for me.

Amy
post #9 of 10
Thread Starter 
Agreed, snyderjoint, that honesty is a good policy, and that kids should never be scolded for being curious.

Someone linked a good article in the thread about talking to kids about racism (sorry; I am technologically inept and can't link it for y'all), which has some really helpful (I thought) information about not discounting the questions kids ask about differences, or harping on the "we're all the same!" approach. I think I can incorporate some of that when I speak w/DD about disability-related issues.

Does anyone know of some books where disabled characters are featured? I think I heard of a book where a girl has a little brother with Down Syndrome but am blanking on the title . . .. anyone?
post #10 of 10
WOW, lovebeads What a wonderful way to talk openly about it. Like a pp said, I think being honest is best. But it shouldn't be in such a harsh way as to scare the kids.
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