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Sewing for incontinent older child with disability  

post #1 of 18
Thread Starter 
I have a beautiful 24 year old daughter with a neuromuscular disability. She is the joy of our lives. She will finish her graduate degree in May and wants to live by herself in a larger city. Scary thought for Mom! Even though she has lived in an apartment for the last few years, she has many college chums nearby and I live only an hour away.

On to my reason for joining this board. My daughter has always had minor problems with incontinence which we were able to manage with pads and quick cleanups. Recently, she began taking a wonderful muscle relaxer for rigid muscles, but it has a side effect of more incontinence. She is having much more frequent accidents which a pad will not contain and other medications won't help. The problem is that the adult disposable products are way too big and bulky (she is very petite) and difficult for her to put on and dispose. They are also ugly! And very expensive. The washable varieties are also too big, expensive, and very ugly for a vivacious young lady.

I sew many of her clothes; I have even made bras and panties from leftover fabrics. Remembering reading about the new options in cloth diapers on the sewing forum I belong to, I began to read about the patterns, fabrics, and styles of diapers and AIOs available online. So I have a few questions to ask:

1. I want to sew an decorative outer panty in a nice fabric like Malden Mills PowerDry because it breathes and looks like a silk jersey. It also washes and dries quickly which is a huge priority. I've sewn exercise wear out of PowerDry and love it. Does it sound ok to use this?

2. I am using a KwikSew pattern that has a low cut leg and will use an elastic casing. Should I use the panty fabric (which wicks moisture away from body) to make a self-casing or use something else that won't wick to make a binding for the elastic?

3. I will stitch a contoured soaker pad to the inside of the panty. I will have to experiment with size and shape to meet her needs. I was planning on using a layer of Power Dry or microfleece as the first layer closest to her body and Wazoodles barrier fabric as the outermost layer of the pad. She wants to be able to handwash and hang to drip dry. Which of the available absorbent layer fabrics are the quickest to dry?

4. I have decided to make a detachable soaker pad for sleep and times when she knows she might be more likely to have an accident. Will the soft loop side of the "other" brand of velcro feel comfortable against her skin when she doesn't wear the extra soaker pad? Or do I need to make separate heavy duty panties?

She is so embarrassed about her new problem, I would like to just hand over a stack of these panties so she won't have to worry about any more inopportune accidents. I am proud of her extreme independence-- she is very resistant to hiring personal attendants, so I spend alot of my time creating solutions to make her life easier. Thanks for any input you can offer. I know I will probably have to make several pairs before I get the fit and materials right, but I am hoping you can at least help me narrow down the options.

Thanks again,
Elizabeth
post #2 of 18
Instead of making panties, maybe something like the mama pads would work better for her? Where she can change just the pad if she needed to? Plus, you could create a pocket where she could slide in an extra bit for more absorbancy when she needs it, without the fuss of velcros or snaps.
post #3 of 18
Thread Starter 
The disposable pads she uses now are the maximum size. I am hoping that I can make a sew in soaker that is larger in size by contouring into a bottom-heavy hourglass shape. If possible I don't want to extend it all the way to the sides and waist area so she gets more air circulation. The main type of accident she has is when she is transferring from her wheelchair in the restroom, so she leaks a full bladder. The pad can't hold enough and she ends up with wet clothes.

The pocket idea would be great for someone else, but she doesn't have the hand function to pull a pad into a pocket. It's difficult enough for her to line up a sticky back disposable pad. I will probably just make up several models for her to try when she's home next. A fully lined panty may be her best choice.

I can't believe I'm posting this about my adult child-- forgive me-- but I guess it's not too shocking for moms writing about diapers!

I would really like to know about the best soaker pad fabrics for the absorbent layers. Which can absorb alot, but dry quicker than birdseye cotton?
post #4 of 18

Elizabeth...

I admire you for doing what you are doing. I plan to do the same for my daughter, who is only 2yrs old, but has spina bifida, and will likely not be toilet trained before 10 yrs, and will have incontinence problems throughout her life.

Since I am in the beginning stages of learning about all of the different fabrics, et al,and only using cloth diapers on her now, and her soon to be arriving little brother(our #10 child) I'm no help, but I wanted to commend you for helping your daughter.
post #5 of 18
Okay, I see the issues better. My dd has fine motor skills, so I am more aware of how sometimes your hands don't work the way you want them too!

As for fabrics, I'd go with hemp or bamboo. Hemp is pretty trim and very absorbant. Bamboo is supposed to be the same way. Bamboo jersey is very silky feeling but a little hard to sew with. Hemp jersey is also very trim and easier to sew with. Both will need several layers (5-6 at least.) The diapers I have that worked the best for my heavy wetter are made from hemp fleece. Also, keep in mind that hemp takes longer to dry than other fabrics, so if there is a way to make it a little more quick drying by seperating the layers in the middle but sewing them on either end, this will help cut down on the drying time. Or another way is to sew the aborbant layers on the sides, one layer on one side, one layer on the other. This way, if she needs to add more, she can just lay in something and let the sides flap back down. If you need a visual, let me know.

You may also consider a layer of fleece of microsuede on top to keep wetness away from her skin. For her, I would suggest microsuede, since it's VERY thin. (okay, went back to look at your original post and saw you mentioned fleece, sorry!)

As for a barrier, I'd go with PUL over any of the others - I've heard it works better.

Here's a fabric absorbancy cheat sheet I made -

Layers for soaker pads

Birdseye - 6-8 layers

Diaper flannel - 6-8 layers

Burley knit terry - 3 layers

Nantucket fleece - 3 layers

Stretch knit terry - 4 layers

Sherpa knit terry - 3-4 layers

Hemp Terry/French Terry/Fleece - 3-4 layers

Hemp Jersey/Stretch Terry - 5-6 layers

Towel Terry/Terry Toweling - 3-4 layers depending on thickness

Microterry/fiber - I'm guessing 3 layers (that's what Cotton Babies use and they have yet to fail me!)
post #6 of 18
Thread Starter 
Thanks for your replies. I will use the absorbency chart to help with my purchases. I really like the idea of sewing alternate sides for faster drying time.

I used cloth diapers for about a year when DD was a baby. So glad to see they have become such a creative and practical trend!
post #7 of 18
Instead of velcro, you can hire out a snap-setting for your items if you want (and don't want to spent 100+ for a snap press...but if you do alot of sewing you may love one!)
Snaps would probably work better to add soakers in this situation. Velcro can add bulk, be noisy, and generally wear out faster.


I would too disagree about the panty option. I could see if it was a #2 issue, and not just pee...
Regular pads may not be absorbant enough, but since you are sewing your own, you can customize them.

I'd go with a post-partum type pad shape for her, and either do wings or sew in gussets (this is a diaper, but it'll illustrate what I mean http://www.sewdiapers.com/showthread.php?t=21)

You don't even have to do a fastener for her in this case, even for the wings. she could just lay them in....

I'd definately use pul for the bottom layer. holds up and is waterproof.

You might want to consider a envelope style pad, where there is a opening in the bottom of the "pad" to add soakers. Especially if you have a serger.
You could do pul on the bottom, a couple layers of bamboo/hemp with a stay-dry top like fleece.
Then add absorbant "inserts" as needed for the day.
(check gladrags for a example of the envelope style pad)
post #8 of 18
Thread Starter 
Thanks Shan for your link to the gusset tutorial. I know this is a great idea for the heavy duty panties I will make with a full PUL outer layer, but I'm hoping the day panties with a sewn-in contoured pad won't need a gusset-- if I design the pattern to fit her leg really well. The Powerdry jersey I have used in other projects probably has 35%-50% crosswise stretch and little stretch on the grain. Drafting a custom leg opening shape in the pattern, and using elastic in a knit with good recovery should hold the panty in place. That's why I have used the panty pattern to draft a contoured pad, there is a small gap between the edge of the pad and the casing. This leaves a margin of the knit fabric to work almost like a gusset. If it doesn't work on the draft pair I can add gussets in the final pairs.

I really like the GladRag design for a lay in pad. I think I can modify this to a contoured shape. She sits in a wheelchair most of the time, so her wetness tends to collect in the back. Snaps and pockets wouldn't work for her, velcro is difficult but doable, but the envelope on the Glad Rag looks easier to insert. She could lay the envelope in her lap every morning and add pads. This would allow her take the pads with her everywhere, with the pad in the panty as extra protection to contain a major accident. I like that the pads can be layered for easier washing and quicker drying times.

Who knew I would be spending three or four days glued to my computer and drafting table figuring out how to make incontinence panties? I am a SAHEN (stay at home empty nester), so when DH asked me what I did today, I can just say "Oh, I sewed a little." I'm still wondering if I should tell him vaguely what I'm making (daughter doesn't want him to know her current problem) or just let him wonder why I charged over $100 at diapershop.com and another $100 at Malden Mills in the summertime!
post #9 of 18
I'd let him wonder. Or be vague. As a daughter, I'd be embarassed if my Dad knew.

I think you are wonderful for doing this for your daughter - my son has cerebral palsy and I have the upmost respect for those dealing with disabilities and making the most out of their lives (or letting their children do that if it is their children that has the disability). Many blessings to you both.

If you would like some velour (I have some turquoise) I would be happy to send some to you - it wicks wetness and is incredibly soft. If you'd like some, just pm me and I'll send a yard or so if you think you could use that.
~Julie
post #10 of 18
Thread Starter 
Thanks Birth Free for the offer of the velour. I love fabric, so of course I ordered 3 yards of velour microfleece in two colors from MaldenMills when I only needed about one yard....also windpro, and Powerdry in several colors. I will make matching bras eventually. (That's another story-- she wears a 32DD!) I really wanted to order the slipper sock pattern they have there to use the scraps.

I had to compromise on my diapershop order and bought hemp fleece instead of hemp jersey which is sold out. According to Peekyboos chart, I need less fleece because it is thicker, but I hope it is not too thick.

We are so proud of DD, she called today and has applied for an internship at a firm in her college town and put a deposit down on a studio apartment across the street from the office building. DH and I have to get over the feelings of panic we have every time she moves to a new stage in life. After six years of college, she is itching to move on!
post #11 of 18
I don't have much advice to offer, but I DID want to just give you a big ol' hug

OK, I think I know what kind of soaker you are wanting to sew into the panties... Check out the "SuperDuper Uber Mega Massive Maxi Pad" (about halfway down the page).
http://www.labyrinth.net.au/~obsidia...othpadpat.html
I think the shape would work perfectly for a soaker. Maybe that might give a visual for the other readers to know what you're thinking about doing?

I hope you can find some pretty, beautiful fabrics to make the custom panties with . Be sure to post pictures when you're done!
post #12 of 18
Just a warning on the hemp fleece - it is very soft on the fleece-y side, but after only several washes, it gets scratchy. The knit side does stay relatively soft. So if you are going to use if against the skin, resist the temptation to use the soft fleece side for that purpose.

I use hemp fleece in mama pads and I love it. I like the slight stiffness of hemp b/c it keeps it from bunching up. I tried microfiber (which I love for diaper inserts), but they bunched too much to give me good coverage. I have no idea which would be better for your daughter, though. Also, I think making a panty style may change the way the different fabrics work.
post #13 of 18
Thread Starter 
Dace, the link you provided has one pad that is shaped almost exactly like my pattern-- the nighttime one. I see the wisdom now of seperate pads, but still want something sewn in for spillover leaks. I'm making each layer a bit smaller. The final lay-in pad will be more of a conventional hourglass shape. If I can find some hemp jersey in stock anywhere, I'll make some extra pads out of that also, maybe even try out some other fabrics. I can understand what you're trying to say about the microfiber layer shifting around. Maybe I'll be better off just sewing all layers together and make a whole bunch of them. Using a rotary cutter and my serger will save time on making so many. After I spent over $200 last night on supplies, I keep reminding myself how much money I'll be saving for DD. For now spending extra money to make what will be easier for her to handle is worth the $$.

When I do finish I will post pictures. I have had a digital camera for several months, but haven't sat down to learn about uploading pictures. And I somehow managed to lose the USB cable so I ordered a new one.
post #14 of 18
heh, I understand bra issues

I'm a 34DDD, but because my boobs are "wide" I end up buying 36DDs because they fit better in the cup, but of course on the TIGHTEST setting are still a tad loose *grumble*
I need to sew a 36DD front to a 32 back

When my son was born, my 36J I'd bought was TOO small.
I wore a 36H for months, both before he was born, and after (like 2-3m to 6-7m)

I just saw a old picture of me at my sis's graduation when DS was about 4m old and OMFG....my boobs. HUGE. ugh. I want to BURN that picture!
post #15 of 18
Thread Starter 
You should investigate sewing your own bras. I am starting one this afternoon for my daughter from a pattern that I have read is adaptable for nursing if you're interested. I love Kwik Sew patterns for basic stuff because they are easy for me to fit and have great instructions-- and I can buy them at my local Hancocks instead of waiting to have it mailed. There are only a few online resources for all the bra fittings and fabrics, but sewsassy.com has been very helpful for me.

I finally finished DD's jean jacket from my favorite Kwik Sew pattern and will start working on a bra that I cut out in the midst of panty pattern drafting yesterday. I should be more excited about this jacket and taken the time to make bound button holes, but bras and panties are calling out to me. (The body of the jacket is made from a really cool Botticelli print with a textury sweater knit for the sleeves, which I lusted after for weeks last fall and finally purchased from Textile Studios website.) It will be perfect for DD's career wardrobe I am sewing.

I had some scraps left from a buttermilk knit that I used to make DD a cardigan. It is a plum paisley print from Emma One Sock that matches a cotton/spandex knit which I used to make a matching knit top. I had enough of the wild print for a bra and enough from the solid for panties with print embellishements. I'm going to mock up the incontinence padding with some polar fleece fabric scraps for her to test out in the panties. The bra will be my third attempt at fittings and closures. I have enlarged the cups a little each time, and have developed an elastic band in the back for easier dressing (pulling over her head). If I can ever get the fit right, she will be very happy. Finding a RTW bra or special ordering one is very expensive in her size as you well know. I hope to have a model bra and panty to try on her when I see her next week.

I know this; all of you that have conquered diaper making have the sewing skills you need to make anything you want. Bras wouldn't be that hard. All you have to do is find out how to make something, where to buy the supplies, and then you can sew it.

Happy Sewing,
Elizabeth
post #16 of 18
Thread Starter 
Results from first fitting of mock-up panties:

I used leftover cotton/spandex knit for outers with printed poly knit bindings, a 200wt. fleece for a shield extends from back waist to front waist, and a triple layer of microfiber toweling sewn in to the panty. After I made it, I realized there would be a drying issue, so will make the next ones a little different. They fit DD very well and she wanted me to leave them with her! "They're so comfy, Mom!" I warned her they didn't have a barrier fabric, nor a liner for the microtoweling, so she is going to wear her pad on top.

By the time I drove back home, the UPS and FedEX delivery persons had left my first round of boxes. The jersey weight Powerdry is a heavier weight than I thought, but at least I know it will support the stitching. I will be making soaker pads of varying weights from hemp fleece, microfiber toweling, and flannel. We will experiment with various attachments to the panty. Hopefully she will let me keep the finished products long enough for a few pics.


Thanks ladies for all of your help. I will continue to scan your past threads for info while I sew, so I may pop in and post a few more times with general sewing advice for those who are looking for help. All of your precious pictures make me want to sew diapers, and I don't even have an great-nieces or nephews on the horizon!

Elizabeth
post #17 of 18
Your posts are very helpful, as I had been thinking of doing something very similar for the beginning and ending of my periods when I only need something with about one layer of hemp fleece in it. I would prefer a panty w/a soaker layer to a pad for those days.

I have some PowerDry fabric in my sewing room that I received in a remnants bag from MM and had intended just for this purpose. It is very thin, and after seeing it, I had wondered if the PowerDry you were going to use would support the stitching of a heavier pad that you would be using. It's good to see the one you received will do just that. I had not (exactly) realized there were different weights of PowerDry - even though I see different descriptions of them in their database. I just hadn't thought it over quite to that extent, yet.

I have some samples from The Rain Shed - I will see if they carry several weights of it. The one I have is a "pique" fabric. Is yours a plain jersey?
post #18 of 18
Thread Starter 
Power Dry always has a smooth backing to wear against the skin and a textured weave on top (face), which is necessary for the wicking. My plain jersey has a ribbed weave with a velour texture on the ribs. One of the other pieces is labelled "double pique" and looks like my DH golf shirt fab on the face. The plum Power Dry is called "popcorn" and is a lighter weight. It doesn't have a poufy weave, more like a pointelle knit-- I wish I had ordered more to make a tank top. Last week I ordered some espresso brown Power Dry from Wazoodle. It has more of a grid weave on front. I'm using it for yoga pants, tank top, and jacket, with the smooth side out for bindings. It has become my favorite fabric for making this outfit, which is sort of my uniform these days.

If I were to order PD from another source that didn't describe its weight or weave, I would probably e-mail them for further details.
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