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Spinoff - sensory issues  

post #1 of 10
Thread Starter 
Wow I had no idea when I posted about a girl's strange eating habits, how much I would learn about kids with sensory issues!! Again, I am really sorry if I hurt anyone's feelings, I just thought it was really bizarre and had no idea that it could be a symptom of a medical problem (and I'm an RN too!! See how much they teach you...)

So if a child has sensory issues, how do you treat that? Is there some kind of therapy that has been helpful? I just can't imagine how hard that must be on both the parents and the child...
post #2 of 10
I am pretty sure that there is therapy that goes along with sensory issues. My ds has mild sensory issues but we never got therapy just worked with him at home until he outgrew it. Some kids never outgrow it though so therapy is very helpful.
post #3 of 10
I'm a certified trainer of the Wilbarger Protocol which includes a technique known as brushing and joint compression.
post #4 of 10
No harm no foul here.

Occupational therapy is used to treat sensory issues, where they do a variety of things, as well as train the parents in brushing protocol and joint compressions (those are lifesavers btw).

My son's sensory issues (which we now know are part of his autism) were initially manifested in his eating habits, so he got feeding therapy from an occupational therapist at first. She worked on things like him being able to tolerate green things in his line of sight (at first he couldn't even tolerate THAT), being able to tolerate different food textures, etc..

Now he mainly gets OT for sensory integration not related to food. A typical day of OT for him involves things like swinging, playing in a bin full of rice, climbing, and exploring different ways his body moves, different sensations, and helping him tolerate them. For example, it took over a year for him to get in the swing. Not swing in the swing. GET IN the swing. As in get in the swing without completely freaking out and bucking, forget swinging.

His OT is wonderful, I tell her we wouldn't have survived my son's second year of life without her.
post #5 of 10
Thread Starter 
Can you explain brushing and joint compression? Are they what they sound like, and how/why do they work? Does it give the babe something different to focus on, somehow soothe the irritation caused by too much stimuli?
post #6 of 10
Brushing and joint compression can be a little controversial- as some therapists don't like "making" children do anything- but most kids enjoy it and it really seems to help.
Brushing is using a plastic brush- ussuallt a surgical scrubbrush with alot of give- (much an infant hairbrush) and then brushing the limbs and back of a child. I was trained that a child with hyper sensitivity only go in the direction of the hair growth and with hypo go in both directions. Ussually I brush each limb a certain number of times and sing a song to do my timekeeping.
Joint compression is ussually done 3-5 times each joint.
What the theory behind this says is that the sensory system is like thermostat- and most people regulate their own thermostat pretty well- those that don't could have sensory integrative disorder. The brushing an joint compression wakes up the thermostat. In my experience it has been a miracle for my dd, and has been very helpful to my students with autism as well.
A great book to understand sensory issues better- would be The Out of Sync Child.
Dana
post #7 of 10
Do children with SID tend to have problems with a certain sense? I see that it can be touch, but I've also read about sound sensory issues. Does SID affect all the senses or just one? My dd doesn't have this, but I'm curious about learning more.
post #8 of 10
SID affects all the senses, some moreso than others, though. My ds is VERY tactile defensive, but is also auditory defensive to some things, and visually defensive (that one just puzzles me...but I digress).

For example, the sound of my father sneezing (very loud and obnoxious : ) and the cacophony that ensues when my parents visit (they're very loud people : ) really sends him over the edge and makes him tantrum and stim and cry a lot. He absolutely CANNOT tolerate loud places or people.

The visually defensive thing comes into play with textures. There are some textures he gets upset at just looking at them. He cries, pushes away, rubs his eyes, kicks at the object, etc.. Like a koosh ball or a bumpy toy ball...those are both big triggers for him to have a meltdown.

Tactile defensive is pretty self explanitory.
post #9 of 10
Also, we have vestibular sense (balance) and kinesthetic sense (movement of limbs). My DD's SID affected these senses as well, especially her vestibular. She was always very clumsy. OT fixed her right up!

She was sensory defensive in some areas and sensory seeking in others.
post #10 of 10
I definately have a kid that fits the bill here; not severe enough for a diagnosis of autism I'm sure, not even severe enough for a "diagnosis" but it is definately something, which we just deal with.

Clothes must be cotton, tags immediately cut off, if she says "I dont' know, this just doesnt' FEEL right" then I might as well get rid of it then, she'll never wear it.

Cotton socks, no color change on the foot, because the excess threads involved with a color change bother her.

Her room is the cleanest room in the house most days.

Showers every day, at least once.

Only eats raw or cooked plain pasta, quesadillas (with specific kind of cheese), only one kind of yogurt and granola, toast, any fruit, carrot sticks, broccoli and cheese (yellow), only one kind of peanutbutter (fresh ground), one brand of crackers, cheese sticks (white only), plain white rice, plain cream cheese on a plain bagel, and well-cooked scrambled eggs, no pepper, only a little salt. That's it. That's all she'll eat 99.9% of the time. When we go on vacation, if we can't find or make these things, she'll just not eat.

I'm not big on forcing her to do anything she doesn't want to do when it comes to this stuff--what skin off my back is it to give her crackers and peanut butter and carrot sticks for supper? It's not like it takes half an hour to fix her something. We just take a cooler on trips with the food she likes, and we rarely eat out on vacation.

Every once in a while, she'll blow me away with something that she decides that she will like. There is this spicy-as-all-get-out lentil bean soup at a local restaurant that she craves. She loves chocolate soy milk occasionally (and then sometimes loathes it). She recently decided she loved dried cranberries, but now, as of two days ago, she cannot stand how they feel in her teeth, she said, so she isn't going to eat them anymore.

We just refer to her as a freak !! We do! But we consider it a good thing. Considering my husband showers several times a day, and always carries a bag of socks and underwear with him (he cannot STAND to go more than a few hours without changing them...), I knew what I was infor when I decided to reproduce with him! We love her little quirks--the rest of us have our own, and we celebrate them, too. We figure it is not impinging upon her life right now, she appears happy, healthy, well-adjusted, and does well in school. We keep her away from situations that make her unhappy (large get together, loud and noisy places), or if we can't avoid them, we try to help her figure out a way to make them less unpleasant for her.

We figure we aren't medicating her, and she's gonna have to learn to live with this--she might as well use it to her advantage. She's a good cook (well, of certain things), she is so freakin organized she puts the rest of us to shame, and she has recently opened a "bank" for her older sister and her friends. SHe keeps all their money, and they have to ask her for it before they can spend it. Apparently this makes everyone happy--I guess, if nothing else, they are able to keep track of their money (she would NEVER lose it), and they dont' spend it as easily. Kind of funny, though.

If you dont' have a child like this, it is hard to imagine. When I just hear people talk about "she'll eat when she's hungry" or something like that, depending upon the situation, I either roll my eyes, or open my big fat mouth and demand to know why they are just so freaking disrespectful of kids because they are little. Sometimes it is just a matter of not having any experience with a child like that; sometimes it si a matter of not caring about what the kid thinks or needs, but what is easiest.

Having a kid like this has definatley made me a better person. I really try to view things from all angles now, from others' point of view. I'm also much more easy going than I used to be!

Lori
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