Dear Guinevere,

I cannot imagine the mix of emotions you must be feeling right now. It will take a long time to sort them all out won't it? It can be so hard when we picture our lives going a certain way, then suddenly we are off on a totally different track and feel that life events are in control, not us.
Some mothers have found good support from the
ICAN yahoogroup as they process their cesarian birth experiences. I would imagine that finding support for learning about what it means to be a mother to a baby with Down's Syndrome will be very important to you too - I hope that you can find it. Having hung around ICUs before, I can imagine that watching my baby's experiences in NICU would be totally harrowing.
Now is the time to ask for anything you need from anyone. Make sure that basic self-care is a priority in your life. You are strong mama - I wish for you that the Universe brings you everything that you need in this difficult period.