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Support for moms unable to breastfeed  

post #1 of 57
Thread Starter 
there was a thread like this in the Tribes section awhile back.I know there are a few of us on here, that for one reason or another REALLY truely dont produce breastmilk.

My Intro:
my name is Tiffany. when i was 15 i was sexually assaulted, i was left with SEVERE PID chlamydia and scarred fallopian tubes and uterus.
i was told my three seperate Ob's that i would never be a mother. that IF, and that was the catch, IF i ever got pregnant, that it would end in miscarriage.
I DID get pregnant, and i did miscarry, i figured, "hey, these male Dr's in the allopathic medical world sure do know what they are talking about."
so when i was 17 and the opportunity for a breast reduction came along i took it.
my surgeon warned me that if i were to have children i would have a small chance at beaing able to produce any milk, and that the milk i DID produce would never be enough to sustain a human infant's life.
well, trusting the three OB's that told me i wouldnt ever ever ever be a mother, and being 17 and not even giving adoption and BF an adopted baby a second thought, i had the surgery.
i went from a 38-ii to a 38-b/c. i now sit comofrtably at a 42-c, but who cares, cause these babies never see a bra!!!

so 11/23/99 i have my reduction.

i find out 11/15/03 i was pregnant, but this time i knew i wouldnt miscarry. i KNEW in my heart my daughter was coming to me.

i started grieving the loss of our breastfeeding relationship then.

i was determined to breastfeed, thinking that if i could just convince my own body that it was something it NEEDED to do, it would. that i wouldnt need to ever use formula.

here is where i hang my head and admit that i didnt do much research to my options of alternatives to bottles, because in my mind, i wouldnt need them.

7/15/04 Addy graces us with her FABULOUS presence. we just eat her up. she is prefection in every way. and i am instantly head over heels in love with her.

the first moment i could, i put her to breast... She suckles!!!!! hooray, success! and she has a PERFECT latch!
she nurses on both sides about once an hour for the first three days, and in between nursing i pump, because the hospital LC told me that was the ONLY way she could get any of my breastmilk, was if i ripped my freaking nipples off with a machine and caused blood blisters to form! (nope, not bitter, not even a tiny bit)

Addys 3rd day of life. her weight is 11% below birthweight.
i am bullied by the Drs into giving her formula in a bottle.
at that point both of the hospital LC's that came in told me there was no other option. that i could nurse her for comfort, but that i HAD to feed her via a bottle.

*bangs head on wall for not researching SNS*!!!!

the entire time i gave Addy her first bottle of formula i cried. it was the hardest thing i had done in my entire life.
harder than breast reduction surgery and recovery, harder than being induced, and the subsequent c-sec and its recovery, harder than loosing a loved one.
because it signaled the death of what could have been a very positive breastfeeding relationship.

at two months old Addy stopped nursing for comfort.

at 9 months old i discovered by accident online the SNS and Lact-Aid systems.
i cried almost all day, knowing that they existed, and that they could have saved me from feeding her with a bottle.

at almost a year after she was born i found MDC.
thank Goddess!!!!

so now my plans for all future children is to feed them via an SNS or Lact-aid system at the breast with as much donated mamas milk as possible, and as much organic goats milk formula that they need.

as for bottle feeding Addy. we bottle nursed, she was always held or snuggled close while drinking her bottles, we held them, and made eye contact, and bonded in almost the same way as someone who is able to nurse with their breasts. only, there werent any wonderful endorphins making me relax, just the sad depressing thought that i had failed as a woman, failed as a mother, and failed as a nourisher.

can you tell i still greive the loss of my nursing relationship?

i think i probably always will.

even after i have all the children we plan on having, even after i make strong positive loving nursing relationships with them.

i will always mourn.

as for Addy. she nurses her baby dolls.
cause thats how babies are suppoed to be fed.
or so we say around these parts.

so if you made it this far in my post, and are a mother unable to produce breastmilk, and want to talk about it. please join me.

if you use an SNS, a Lact-aid system, a home made system, if you bottle nurse, if you feel like you have to hide the fact that you ff your child on these boards (i thought i did for a while, trust me you dont, MOST of the women here are really understanding and compasionate), you are more than welcome to join me here.
post #2 of 57
Wow, I just want to give you a big . I haven't gone through the problems you have, but reading your thread brought tears to my eyes. I'm so sorry you had to go through that and your entry proves just how much you love and care for your daughter. Gosh I hope you print this off and show it to her one day. Good for you, for nursing her for 2 months anyway, that's great! You did the best you could. Gosh, lemme just give you another . It's great that you posted this so other mommies out there who are having trouble bfing can find support within you.
post #3 of 57
Thread Starter 
thanks Kat.
at one point in time there was a thread like this one in the tribes section, and it was really nice knowing i wasnt the only one who COULDNT produce much milk, if any at all.

i really want this thread to be a place where moms like myself, no matter their reason, be it reduction, true lack of tissue, hormone imbalances, Mastectomy, what have you, can come and feel welcome and safe and secure knowing that others HAVE been there.

Addy and i will prbably talk about her nursing later on in life. probably when i have more children, i am sure she will be curious why they dont get any bottles.
she knows that mamas make milk for babies, and she has seen plenty of nursing babies and toddlers to know what it looks like, and sometimes she even asks for a "sip a mama milk" so i oblige and lift my shirt and she pretend sips, not latching on. so seeing me nurse future babies wont be a HUGE mystery to her, but i hope to one day be able to tell her how sorry i am that she wasnt able to have that same nursing relationship.

but as far as bonds go, we are BONDED. so tight, inseperable.
well ok not completely inseperable, but we are bonded really really tightly. we have a very healthy attatched mother daughter relationship. and i thank AP for that.
and my guts.
doing what i felt was right for her, the snuggles, and co-sleeping. etc, things that shocked everyone else, that cemented our bond
post #4 of 57
At the moment, I'm in a similar situation.

my DD was born 10 weeks early on 4/20, and spent 27 days in the NICU. Within 6 hours of her birth (I didn't even get to touch her after she was born, and lost the homebirth I so wanted) I started pumping, and have been pumping every two to three hours for the last 40 days. Last week, the same week she came home from the hospital, my milk dried up. It just stopped. I have never breastfed my daughter, because her mouth is too small to latch, but had, up until last week, at least been able to feed her with my milk. Now I can't even get enough milk out for one feeding.

I was using a manual pump until now, and my parents just rented me an electric pump. I'm getting almost a full ounce at each session now, which for me is huge. Unfortunately, she's drinking close to two ounces at each feeding now. The routine is that I pump all day and save it up for her to drink the next day, and at night we feed her formula so that we can get a jump start on the next day. That way at most she's only getting three formula feedings in a 24 hour period.

My biggest fear in all of this is that I will never get to breastfeed my baby girl. I so wanted to nurse her until she was at LEAST a year old, if not longer, and now I feel like I've missed the boat on getting to do that. We'll try an SNS, but I'm preparing myself to pump every three hours for the next year.

Anyone have experience in nursing a preemie and having a successful BF relationship? It's heartbreaking.
post #5 of 57
Addy's mom: You are awesome. And an awesome, mother, too I'd be willing to bet. She is truly blessed to have a Mama like you. I can tell you love her so much-and I'm over the Internet- so I know that sweet girl can feel it!

Your love sustains and nourishes her. What a blessing!
post #6 of 57
Thread Starter 
thanks Beansavi, it means alot to know that others can see the love i have for her.

sehbub,
i havent been in your situation.
have you tried taking some galactogues? fennugreek, blessed thistle, Dom?
oats help too. a daily bown of oatmeal, and Barley is another helper. sounds bland but a bowl of oatmeal for breakfast, and some barley with dinner, drinking barley water, taking fennugreek, blessed thistle, other galactogues, drinking plenty of water, and some mothers milk tea, those should all help at least a little to increase your supply.
how amazing and dedicated you are.
having a preemie, and now pumping issues.
have you also visited the low supply tribe? i know ALOT of mamas over there have good advic on helping supply issues,
and a new electric hospital grade pump should help too.
big s to you mama
post #7 of 57
I too am in your boat. My dd was an necessary HB transfer, an unnecessary c-section with an unnecessary 1 week stay in NICU. Because she only has one kidney (so what?) they wouldn't give her ANYTHING by mouth for 2 days (IV only) then they insisted via threat to call CPS that she only have a bottle so they could see what she was taking in and putting out. Finally after another 48 hours of this nonsense, they "allowed" me to try to let her latch. Needless to say this was a HUGE failure. I was pumping like mad...1/2 hour each side every three hours. I worked with a lactation consultant who was very sympathetic but after 5 months of exclusively pumping, I dried up...it was like overnight. I tried everything I could think of but nothing...I wanted to kill somebody...so after 5 months of exclusively BM I had to finally admit defeat. I was so exhausted. I would spend an hour feeding her then another hour pumping every three hours for 5 months....I just couldn't take it anymore. I feel horrible about the whole thing and I wish I had it to do all over again...I would have let them call CPS and left AMA. I would have left the state or country if I had to.

Thank the goddess, I have a beautiful, healthy 2 year old dd and we are as bonded as could be...But I will always mourn the loss of the BF relattionship that was taken away from us.
post #8 of 57
Thread Starter 
Fyrestorm, s for you too mama.
its a tough road, not being able to give our children what they need to survive, having to settle for second(or really fourth) best with formula.
we are all fighters, troopers, mothers. we love our babies SO much, and would do anything in the world to provide for them.
so it breaks our hearts when our bodies arent able to give what we so badly need them to.

and another BIG for the hb transfer and c-sec.

mine was an unecessary induction leading to a c-sec.

its nice to have a place here to be able to share our stories.
post #9 of 57
Quote:
Originally Posted by AddysMama
Fyrestorm, s for you too mama.
its a tough road, not being able to give our children what they need to survive, having to settle for second(or really fourth) best with formula.
we are all fighters, troopers, mothers. we love our babies SO much, and would do anything in the world to provide for them.
so it breaks our hearts when our bodies arent able to give what we so badly need them to.

and another BIG for the hb transfer and c-sec.

mine was an unecessary induction leading to a c-sec.

its nice to have a place here to be able to share our stories.
to you too....Don't ya just hate Doc's sometimes!!!
post #10 of 57

Great support group for those who've had difficulties or couldn't bfeed

http://www.internetbabies.com/MOBI/
http://health.groups.yahoo.com/group/mobi/

and a great support organization for those recovering from cesarean:

http://ican-online.org
http://health.groups.yahoo.com/group/ican-online/

the two organizations could work hand in hand, if they don't already.
post #11 of 57
MOBI actually has a new website at www.mobimotherhood.org

And although the yahoogroup that MOBI has is great, I found the format to be very time consuming. The women there are amazing, yes, and I learned a lot from them in the short time I was able to read it regularly. I still use it as a resource when I have a question.

And Tiff and other mamas unable to breastfeed, Thanks for sharing your stories.

~claudia
post #12 of 57
Thread Starter 
i had to unsubscribe to the yahoo MOBI group. it moved very fast for me, i am not currently nursing, and not very many if any mamas on there were reduction moms. i go to www.bfar.org for my chatting with mamas in a similar situation.

and Claudia,
thank you.
post #13 of 57
I have insufficient tissue. I tried every galactagogue in the book. The only thing that seemed to work was Reglan, but the doctors at the time weren't willing to prescribe it for longer than a week. That left us to using the SNS much of the time.

Now I'm pregnant again, and I have a doctor who's willing to prescribe Reglan so I can breastfeed! I'm SO HAPPY! Hopefully it'll work again.
post #14 of 57

Coming out of the closet

I'm so glad to see this forum. I feel like I can finally get support for the loss of my breastfeeding relationship on MDC that I need. So, here's the story.

After an uncomplicated pg that was deemed complicated because of my history with lupus, I delivered a healthy girl unmedicated in the hospital. I was so relieved that she was healthy and that I had the birth that I almost wanted (I wanted a homebirth), that I didn't even think about breastfeeding being a problem. When I put her to breast, she never latched. I got LCs involved and they decided that I had flat nipples and a nipple shield would be the solution . That was MISTAKE #1. They brought in a pump and I used it to draw out my colostrum and feed it to dd through the nipple shield with a syringe. After leaving the hospital, we saw more LCs that moved us to an SNS. I was pumping ever 2-3 hours to maintain my supply and using EBM. By 6 weeks, dd had just about learned to bf and was mostly weaned off the nipple shield.

I went back to work/school and dd got bottles of EBM during the day MISTAKE #2. Little by little, she began refusing the breast . I was devastated. The relationship we had worked so hard to establish was in jeopardy and I could not quit school/work to be with her 24 hours a day.

Now, we only nurse in the evening before bed and in the morning if I'm there before dd wakes up : I'm essentially an exclusive pumper since dd does not nurse enough to empty my breasts. She's there for comfort (which I'm happy to provide), but doesn't suckle milk out.

Even though I feel proud that dd has never had formula, I'm still mourning the loss of our relationship and am looking forward to the support I will find in this forum.
post #15 of 57
Wow, it's such a relief to read these stories. DD is 14 months now and I am so still mourning the loss of our breastfeeding relationship.

My milk never came in after I gave birth. Our homebirth wound up in a hospital transfer and the birth was rough, but at least it was vaginal. I nursed her as soon as I was stiched up, and she latched and sucked like a champ. She nursed a ton in the first 24 hours and then stopped, I couldn't get her to take the breast for anything. She had jaundice and was getting more and more sedated . . . then we wound up in the hospital under lights with formula and donor breastmilk feeding from a bottle for a few days, then on to an SNS. I hated that stupid thing, it made me cry, but at least we were "nursing."

I was pumping like fool and using every galactagogue that we could think of, including domperidone. It helped a little but not much. I produced 2 oz total at the pump on a good day, and dd started refusing the breast because nothing was coming out. It was so awful, I cried all the time.

When dd was around 2 months old, I quit producing at the pump entirely. I'd pump for 30 mins every 3 hours, and nothing. I worked with a lacatation consultant who helped me figure out that dd would accept the breast about an hour after bottle feeding because she was full but not too full to want to nurse. I knew there were a few drops in there and I really wanted her to have them. When she started to accept the breast again, we nursed once per day, then more often as time went on.

Fast forward to today, dd still nurses at my empty breasts every day, especially overnight and during naptimes. It is extremely painful for me to nurse more than 10-15 mins at a time because there's so little milk in there, which sucks for all of us because there's no sleep if there's no breast. We have these 2 hour marathon nursings in the early am that I HATE, but I hate putting up with a crabby screaming baby all day long because she's overtired. I feel sad and resentful and so frustrated, I don't understand why I can't make milk for this darling little baby who I love so much and who is so great at nursing (and who loves to do it). What the heck is wrong with me?

So, yeah, I get the mourning the breastfeeding relationship. I'm so thankful that we still get to nurse, but it has come with it's own mess of problems and so few people have experience with this problem that I can't get any good advice. Mostly I get people trying to increase my milk supply, which is great, I really want to, but it's just not happening. Ugh.
post #16 of 57
whoops, duplicate
post #17 of 57
I am so happy to see this forum!

I guess I am not totally qualified as "unable to breastfeed." Essentially what I had was flat nipples and bad advice. I think his latch must have been wrong, because although he was sucking hard and I was leaking all over the place, he wasn't gaining weight. At his two-week appointment he was 8 oz. below birth weight. I had a doctor who pushed formula at every opportunity and nurses who all showed me different techniques and assured me that since he had such a great sucking reflex and my milk was clearly coming in, I wouldn't have any problems. I ended up supplementing and going about half and half for nine months, but he preferred the bottle, and my supply eventually dried up completely.

Next time ... things will be different. I will insist on a real LC and start pumping and storing milk early. I will get help on day 1 ... not on day 14. I will not be overconfident that if I feel full and he's nursing a lot, he must be OK.

My heart goes out to those of you who really, truly, could not nurse at all - what I went through was difficult, but I can't imagine how much harder it must have been for you.
post #18 of 57
Here's my peanut. 5 pounds, 6 ounces yesterday, which is two pounds more than her birth weight! She's 6 weeks old now.

We're going to LLL this morning, so hopefully we can get some good advice there!

http://www.flickr.com/photos/samanthab/153152741/
post #19 of 57
Ahhhh, Samantha is so cute. I love her bright eyes! Keep up the good work!
post #20 of 57
Hi...I'm Melanie, and ZZ is 19 months old, but I still mourn our bf relationship. We're still bottlenursing, and I figure anybody who wants to say I shouldn't can well, um, because if it hadn't been for HORRIBLE advice and RUDE pp nurses at the hospital he was born at, he would still be nursing. The plan was to nurse until he was at least 2. (Well, 2, the "at least' kind of got added on as I met people who went past 2.)

To make a long story short and give you an idea what I went through, I was told my child was so severly jaundiced that if I did not allow them to give him a bottle, he had a high risk of ending up blind and/or mentally retarded. (I later found out his level was 8 when they said that. The highest it ever got was 14, after he was home, then it lowered. I was told they don't even begin to consider lights and things until 16.)

And when I asked one nurse to please help us, she just looked at me and said "What are you going to do when you get home?" in this high-school snotty tone. (Like I wasn't already thinking that thank you....)

Yes, I did happen to call their department that takes complaints. I told them everything from that comment to the fact that the nurses NEVER came back when they said they would, and their LC only encouraged pumping, not anything that would help me actually nurse him.

And they told me to pump at least every 3 hours. Not enough, as I sadly found out....it took me every galactagogue in the book and 2 months of time to get up to where we were solely on breastmilk on that schedule. (Well...I admit, when they say 'at least every 3 hours'...I did stretch that sometimes just because I was so darn tired, or I wanted to do something that took more than an hour outside my house...) Oh happy day when I had 12 ounces of milk IN MY FREEZER....

Then I got food poisoining, and from that incident out (horrible dehydration), I never produced quite enough again. Sometimes he could go a day without formula, never 2...plus somewhere in there my pump broke and I couldn't pump for something like 13 hours...it was BAD....

Finally, at 6 months old, I decided my child needed a mommy who wasn't so hung up on this, who could just relax and be his mom, just snuggle with him and put him to bed and play....coincided with the point in his development where he really started to want ME...I couldn't just have Grandma do things for him while I pumped, he wanted ME...so ME he got. And for the most part, I really don't regret that decision. It was what had to happen at that time.

And now....ZZ is going to be a BIG BROTHER!!!!!!!! I learned a TON with him, but I'm scared that still somehow, it won't be enough...that even though I'm almost 100% certain ZZ's problems are entirely hospital and information related, there's still that tiny little doubt-thought that I just might be wrong about that......that scares me.
I'm doing everything I can to make that NOT happen...I have more breastfeeding friends now than I did then who could help. I go to LLL, which I didn't get to a meeting till Z was a month old and strongly refusing any attempt to latch on. I go to a birth group, I have a midwife who I'm sure will help, and I'll be delivering at the other hospital, the one with a better BF rep. (which I didn't know then.)

And on that subject, I would dearly LOVE to just get a big tub and homebirth but I won't go unassisted and it's illegal to get help in this state, so I'm doing the best I can with what I've got. (DH and I have discussed it, he would even be 100% pro-homebirth if my midwife could legally come and do it. Birth is about doing what you're comfortable with, and neither of us are comfortable going unassisted.)

Anyway...I'm just praying at this point that things will go better this time...and I've learned a *lot* in the past 19 months....
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