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FAQ: Domperidone (Motilium) - Page 9

post #161 of 435
Thread Starter 
Unfortunately, sometimes things do get stuck in customs, then returned to inhouse. When I ordered through globaldrug (now merged with inhouse), they told me to reorder ASAP. You should be getting a letter from customs that they held up your order. Globaldrug told me to send that to them, and that they would refund the $ to me for that order, since it was returned to them.

Did inhouse mention that to you?
post #162 of 435
My DS is gaining slowly (he's 2 months and gained about 10-12 oz last month) and nursing for very long periods (45 minutes-hour, every 1.5 to 2 hours except at night) very likely due to the fact that I have some kind of undiagnosed nipple pain issue and don't let down well for him. I don't think my supply is really all THAT low--borderline--but that I find it hard to relax and get anything beyond the first letdown. My LC, my midwife, and I are still aggressively pursuing the nipple pain issues, but I had the same problem with my first for all 15 months. (First was a slow gainer too, but not as slow as DS.) So I am not that hopeful.

I EPed for DD after 6 months, but that won't be possible this time with 2 kids. I cannot continue indefinitely with this pain. Either we find a solution or I wean early. (Like 6 months. Trust me, this KILLS me.) I know he is young, but I think he will continue the marathon nursing. DD did when I had the same issues.

Would domperidone make my supply abundant enough that I could nurse for shorter periods? This would be much much easier if he nursed for 15 minutes instead of an hour. Or is it unlikely to cause that kind of change?

I have a sympathetic medical team who would probably RX if for me.
post #163 of 435
Thread Starter 
: I don't know if it would, but I would be tempted to give it a try. If you don't have low supply, you might end up with too much milk, plugged ducts, and mastitis, so you should keep vigilant for that.

Have you also tried breast compressions to maximize milk transfer?
http://www.kellymom.com/newman/15bre...mpression.html

Also check out the stickie at the top of the BF challenges forum for other ways to maximize milk production and/or transfer.

Good luck on the nipple pain diagnosis, I had a brief experience with Raynaud's / white nipple blanching and that was really horrible .
post #164 of 435
so, whats going on with the nipple pain? hows his latch? does he have tongue tie? even slightly? are you blanching? what kind of pain is it?
are you seeing an IBCLC?
sorry to barrage you qith questions, but to get to the source, and get the solution to your probs we need to ask all sorts of questions.
how old is your son? how often are you nursing? for how long?
breast compressions is a great idea to help maximize milk transfer.
if you want to increase your supply, try other routes first, oats, herbs, etc, before heading to domperidone, cause DPD is a heavy hitter, and like a pp said you dont want to end up with over supply/clogged ducts, mastitis if your milk transfer is weak.
post #165 of 435

supply issues on domperidone

I have been taking 150-160mg of domperidone for about 7 weeks and I have a great upswing shortly after starting and now I am back to struggling with my supply. I am doing just about everything possible. DS is almost 8 months. Is this just a normal drop b/c DS is eating solids or should I be concerned?
post #166 of 435
some women find that if they drop their DPD intake for a week, then up it again, that it helps to boost production, is he nursing less? for less time?
how are you feeding solids?
are you getting enough water? you need to be drinking to thirst, so be aware of your thirst cues and drink til you feel sated.
also, adding some herbs could help too.
post #167 of 435
I have a 5 month old who is failing to thrive. At 12 weeks she was 13lbs and then at 18 weeks she was little more then 10 lbs. All on my milk. I have never nursed a baby full time past 4 months because of supply/latch issues. This baby has a great latch though.

She is now up to 12 lbs, has had one bottle of formula but that might soon be a must. We have been blessed with breastmilk from a DDC mama but that is fast running out. She will nurse and then still drink 4 oz of the other BM.

I have been doing everything I can and I am just at wits end here. Finanaces are super tight as well thanks to some military pay problems.

I want to try this, I can not get a prescription for it. I have begged, believe me. I do not have the heart I think to spend what little money we have on pills to only have them not get here.

Is it really really worth it? I feel like this would be my last thing to try.
post #168 of 435
Quote:
so, whats going on with the nipple pain? hows his latch? does he have tongue tie? even slightly? are you blanching? what kind of pain is it?
are you seeing an IBCLC?
sorry to barrage you qith questions, but to get to the source, and get the solution to your probs we need to ask all sorts of questions.
how old is your son? how often are you nursing? for how long?
The nipple pain is by far the worst during nursing, and lasts the entire feeding at a constant level. Nipples are pink and hypersensitive at all times. I would describe it as feeling kind of like he is nursing with a mouthful of blunt thumbtacks. No cracks or sores. Nipples are sometimes slightly blanched after nursing and at random other times, also sometimes purplish. Color does not seem to connect to the pain level.

I saw an IBCLC at 2 weeks and she said his latch was great. I am not sure I think this is still so. I need to see her again. He looks okay from the outside, at least, but I wonder if something funky is going on with his tongue or palate. She did check him for tongue-tie, but I don't know how thoroughly.

I have been treated aggressively for thrush twice and had my milk cultured for bacteria (nothig).

He is 2 months old. He nurses at least 8 times a day, and more often 10. Feeds are almost always 30-45 minutes long at least and he rarely seems really 100% satisfied...although he does sleep a 5-6 hour stretch at night (can't figure that one out). He is a very mellow baby...perhaps too mellow, in this case. He may just be used to not really getting enough. I am doing breast compressions now that I know his weight is low.

I have started taking fenugreek (started Sunday) and am pumping during his long sleep stretch. I think my supply may be increasing a little.

The weird and baffling thing is that I had exactly the same issues with DD. We were told the issue was a high "bubble" palate. I can tell this baby's palate is not as high, but nursing feels sooo similar.
post #169 of 435
Loraxc: the blanching and thumbtack pain sounds a bit like raynauds, Jack Newman has some good info, as does Kelly mom.
COULD be a palate/latch problem, could be a combo of both. i say, find a great chiro that does infant CST, and get back to the IBCLC to get it checked out. does your babes tongue when he sticks it out look like the top of a heart?
definitely check out Dr Jack newmans and Kelly moms websites for info in help with milk transfer. sounds like he is eating often enough and for long enough, but milk might not be transfering all that well.

Kontessa, if you dont want to worry about customs, order a smaller ammount. small ammounts rarely get stopped. its the big packs of 19+ that usually get stopped. OR you could look into Shatavari, it does the same thing as DPD, but its plant based, originated in india, and i have a friend who takes it due to her having a heart condition and being unable to take DPD, and it works GREAT! you can order it online. there is a link through www.lowmilksupply.com OR you can just google search it. and get to an IBCLC. seriously i cant stress enough how important it is for us moms with low supply issues to go talk to an IBCLC. lots of them do sliding scale for low income moms. just call around.
post #170 of 435
I was just wondering if you have heart palpations does that mean you should stop the Dom?

I went up to 2 pills 4x a day and had some issues. I went back down to 1 pill 4x a day and that's better, but I thought I would double check here that I'm doing the right thing.

Thanks
V
post #171 of 435
Quote:
Originally Posted by AddysMama View Post
some women find that if they drop their DPD intake for a week, then up it again, that it helps to boost production, is he nursing less? for less time?
how are you feeding solids?
are you getting enough water? you need to be drinking to thirst, so be aware of your thirst cues and drink til you feel sated.
also, adding some herbs could help too.
I drink TONS of water, about 90oz a day. I am making my own solid foods and feeding him when he's starting to get hungry or I will feed him solids after he nurses. His nursing hasn't changed at all. I used to take Mother's Milk but didn't notice a difference. But perhaps I could try just fenugreek? What would you recommend and how much?
post #172 of 435
for herbs, i take a blend from Vitanica called the lactation blend. its awesome, or you could start fennugreek, 3pills, 3x a day, plus blessed thistle, goats rue, alfalfa. there are tinctures you can take, i think they taste terrible, but if you can choke them down they rock. like more milk plus. and mothers milk tea is good too, make it STRONG and drink lots.
always feed your baby after you nurse. right now food isnt about sutanance, its about exploring texture and taste, so you dont want to be feeding them enough to fill them up. have you heard of baby led weaning? (british weaning, not american, just means intro ing new foods) its what we are doing and its going fabulously. at their age they dont need meals of food, but they do need the opportunity to explore foods, so chunks of bananas, avocado, sweet potato, regular potato, fresh or frozen corn kernals, steamed veg cut into little pieces, all baby friendly, all healthy, all fun to explore. its gives them "meal time" while still leaving you as their prime source of nutrition, as it should be.

Violet, talk to your dr about the palpatations, could be a sign of underlaying problems with your heart, not the dom.
if it would make you feel better you can also switch to shatavari.
post #173 of 435
Quote:
does your babes tongue when he sticks it out look like the top of a heart?
As a matter of fact, it DOES. However, when I look under his tongue, it doesn't look tied like in pictures of tongue-tie. I read the heart-shape can be normal, but I wonder.
post #174 of 435
at a class i am taking regarding lactation it was mentioned that a hear shaped tongue is a tried and true sign of tongue tie.
post #175 of 435
Just got mine today... I'm excited but scared too.

I've read through all these posts over the last few weeks... But I am still hesitant.

I'm not sure how "low" my supply is. I feel like it's quite often a struggle - especially around AF when it will drop from pumping about 9 oz a day (while at work) to less than 7. I went through my stash in those times so I really want to build back up. 7 is way too low for him for his 8 hours in daycare.

I've seen the questions about if you take it then quit does the supply go back down... So I'm wondering if I can somehow end up Worse by starting it then stopping??
post #176 of 435
Does it take a while for the dom to start working?
post #177 of 435
Quote:
Originally Posted by Jezzy View Post
Does it take a while for the dom to start working?
I think it depends on the individual.

I started my new shipment last wednesday and haven't had to supplement my baby since Monday. The first time I took it, I didn't notice a huge improvement, but it might be because I wasn't taking enough. I'm now taking 12-16 pills/day. I'm not sure if I need more because I'm heavy, but it would stand to reason. Give it time before giving up on it. some people don't notice a difference for a couple of weeks.
post #178 of 435
I luckily have never had to supplement I am just looking for a little more so I could pump some and store it for a rainy day
post #179 of 435

How long should I wait?

InhousePharmacy shipped my 4-month supply on April 7.

How long should I wait?

Was this too large of an order? If so and I re-order, what size should I order next time to make it through?

If my shipment was stopped in Customs, how long til I get a letter in the mail? Will I have to sign for it, etc.?

help?

Edited: I just got my shipment! Now onto trying the meds and see if they work...
post #180 of 435
Hi, everyone!

I'm Nora and I'm battling low supply and a "lazy nurser."

My son, Aran, is just about 5wks. and we've had problems from the start. Every health worker we've gone to for advice has been crappy at best. In the hospital I knew his latch was bad, but no one - not even the LC - took me seriously and I left cracked and bleeding. We were told to supplement with formula on his 4th day of life because he'd lost 6% of his weight, my milk was not yet in, and he had slightly elevated bili levels. We blindly let him nurse and then gave him a 2oz. bottle of formula. I didn't have a pump. Nursing was incredibly painful for me because of his latch. He just didn't open his mouth widely like in all the pictures and videos. He just had this teeny little bird mouth. Then we saw another LC and she said to keep plugging along and make sure he didn't feed for more than 30 minutes. He was so sleepy all the time that 30 minutes was an insane request. No matter what I did - compression, manual expression, everything - he would not seem satisfied after feeding. It was hard to get him to really eat. Actually no one ever explained to me what it should look like when he's actually drinking. I just let him sit at the breast and suck however he felt like without knowing at all if he was really eating. We thought he was doing well so we cut back on supplementing but then he started to lose weight so we were ordered back on to it. I finally got a Medela PISA and saw a 3rd LC. She said to feed twice per side, bottle feed, then pump every time he ate and to do it at least every 2 hours during the day. Well that routine was taking more than an hour so I was basically feeding all day still. I started fenugreek and another mixed supplement called Lactation Support. I never pumped more than 1/2oz. total at a time and he was still starving until he got the bottle. I finally saw a 4th LC and she set us up with an SNS. She also sort of helped us with latch. We are supposed to have him feed at the breast with 2oz. of formula and breast milk (what little I'm able to get) in the SNS. I'm supposed to only let him latch if he opens his mouth really wide (which takes forever because it literally never happens) and then as soon as he stops actively sucking for more than a second or two to take him off completely and give him a minute then relatch so that he learns that boobs are for food, not comfort. I'm also supposed to keep his nursing at less than 1hr. at a time so he doesn't expend more than he takes in. However, he's still never satisfied after nursing. Sometimes he'll nurse for 3 hours straight and only take in 1oz. from the SNS. The LC said he gets about 1oz. to 1.5 from me which means I make some where between 1/3 and 1/2 of what he needs. But now I think he's in a growth spurt and he's eating constantly. From about 5pm - 1am he's constantly eating. Boob is not enough. SNS (if he manages to stay awake and eat) is not enough. Even bottle is not enough. He'll eat what's there and be hungry 20 minutes later. There is no way I can limit his feeding time to 45min. (I can't stand to hear him cry about it for more that 5 minutes or so) and everything takes so long that his feedings blend together so I don't have time to pump. The only time he feeds well is in the early morning when I'm SUPER engorged (well for me - my boobs are barely bigger than pre-preg. and I still wear the same bras as before and I rarely feel engorged.

I desperately want to breast feed him. I have tried pumping, power pumping, herbal supplements, constantly having him at the breast (despite advice to the contrary), and just about everything short of drugs. I'm so afraid that I'll never be able to catch up with any of these methods because he'll just grow again and need mroe than I can make again.

I cannot take Reglan because of a history of depression. Dpd seems like my only remaining hope to salvage this relationship.

It's going to take forever to get the pills and then longer for them to start working. Is this worth it? I don't know if I can wait 2wks. then maybe as much as another month.

Any suggestions?
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