I'm so glad to have finally found this thread! It would have been fantastic to find a month ago when I was first starting Motillum, but at least I had all of the info on Kellymom to help guide me though how to obtain it and doseage.
Just wanted to share my experience with it so far: BF my older ds for almost 3 years with no problem so when baby #2 was born 6 months ago it really took me by surprise when we started having some major supply issues. It was very clear that I wasn't producing enough for her and after a while I began to realize that she was always hungry nor did she gain any weight in between 3-5 months.
I tried pretty much everything- enough fenugreek to make me smell like a maple syrup factory, rented a hospital pump, blessed thistle, you name it. The fenugreek worked for a while, but after a few weeks all of a sudden my supply plummeted again.
I was able to get some leftover domperidone from someone who had extra. I've been taking 30 mg 3 times each day. Within 2-3 days I noticed a slightly more "full" feeling and after a week my breasts got really heavy and full just like when my milk first came in. Dd has gone from being fussy at the breast to now being very content as she gulps. I can hear her swallow for the first time in months. She's gone from having dirty diapers once a week or so to blowouts 2-3 times daily.
I work 16 hour shifts twice a week. Before starting the medication I would pump every 2 hours at work and if I was lucky I might get 4-6 ounces. Now I'm easily pumping 25-30+ ounces during my shifts!
The only downside for me so far is that I feel slightly engorged much of the time and I get uncomfortable if I can't nurse/pump very frequently. This lead to some pretty badly clogged ducts last week. Since my supply was so great and I've stored up an impressive freezer stash in the last few weeks I decided to see what would happen if I stopped taking it. Unfortunately, within two days my supply dropped down to almost nothing again so I've started taking it again and once my supply is back up I'm going to see if I can slowly reduce my dose but probably not quite entirely again. I'll happily learn to live with a slight oversupply issue as opposed to the low supply issue that has given us so much trouble (and lots of tears and crying from me!) these past few months.
My dd had her 6 month appointment recently. I took in some info on domperidone and the box of Motillum that I've been taking. Our pediatrician is fantastic and extremely supportive of BFing so she was happy to write me a prescription. And it turns out that we have a small local pharmacy that is in-network with my insurance company AND has a compounding pharmacist on staff so I'll be able to get it for free now! (At least till the end of the year- in January our $4k deductable kicks back in and it will all have to be out of pocket, but until then I plan on making sure that I get every little bit of domperidone that my insurance company will pay for. It's also why I want to slowly wean myself back to the smallest dose that works for me in hopes that I'll end up with enough extra to tide me past the end of the year.
So far I couldn't be happier with my experience with domperidone and at this rate, my freezer will be full very soon. If that happens I'll most likely end up donating any extra milk which will just make it all come full circle since I relied on some donated milk for dd before the domperidone!