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FAQ: Domperidone (Motilium) - Page 17

post #321 of 442
Hi Megan ...
I'm on 160mg a day ... as per the high end of the Jack Newman protocol.
He says that while there is little reseach on staying on it long term, it is given long term to patients with digestive issues with little adverse affect. I want to get off it because I can't get rid of my pregnancy weight and have been told that dom is a big factor in that ... that being said, I want to stay on it for at least a year too. When I go back to work ... I don't know what I'll do either. I can't produce squat with the pump!
If we were TTC again, I'd definitely go off it.
post #322 of 442
Hi Starling,
I just e-mailed Dr. Newman to get his opinion on whether I should stay on the dom. I'm just wondering if it will continue to do any good if the breasts aren't being emptied as often. It will be a pain but I may try pumping once at lunch. I can't pump anything now after nursing but I could pump an ounce or two during a period when Leo was refusing the breast as a newborn.
I'm really not worried about any longterm risks of the dom – I just want to maintain the most supply I can. Honestly, the older the kid gets the more he loves the boob, although I can at least just give him more supp in the Lact-Aid so he won't be traumatized by abrupt weaning.
I will have to stop when we want to TTC sometime in late fall because I'm not menstruating. Although we'll see how I feel about that when I've tried being a WOHM.
The prospect of going back to work is really freaking me out
Anyhow, thanks for letting me ramble...
post #323 of 442
Starling,
Just wanted to add that I heard from Dr. Newman and he told me I can start trying to wean off the dom AFTER I return to work but should keep taking it if I notice my supply drops. He said whether to pump at work or not is up to me.
He also said to avoid sippy cups and have the daytime caregiver use open cups.
post #324 of 442
Great info, Megan! I love Dr. Newman!
post #325 of 442
He rocks – I felt a bit starstruck
post #326 of 442
Does anyone have any experience with this?

I had a plugged milk duct or the start of mastitis a few weeks back. It was bad news -- I already have had supply issues. I was on 90 mls of Domperidone and felt like my babe was hungry when this problem was going on and afterwards, because the affected breast wasn't making much milk. Luckily, it was not the breast that tends to make more milk anyway.

I thought I would temporarily up my dose of the Dom to 120 mls to try to get my supply back up and keep my DD well fed. The problem is that I have experienced some side effects and I am almost 100% sure that it is from the Dom. First off, I've had bouts of terrible headaches that won't go away. Second and most recently, I have had some anxiety and fogginess that make me feel nutso. I have tried to go back down to 90 mls, but have notice a decrease in supply, so I have gone back up, but I can't take anymore feeling icky.

Just wondering if anyone has any experience with this? Do you think this drop is just temporary? After I felt totally miserable this morning, I decided to try dropping back down to 90 mls gradually. Having a lower supply and having to possibly use my Lact-Aid with frozen milk is one issue, but feeling rotten like that is another. Do you think this is just a sign that I was taking way too much for my size? (I'm 5'7" and about 150 lbs.) Any recommendations on how to do this? I guess I'm just looking for some hope that I can drop my dose down again, feel normal and have enough milk for my baby.
post #327 of 442
I'm sorry you've had these problems, crankerton. I've read that increasing your dosage too quickly can result in headaches. I tried upping my dose to 160 mg/day and experienced awful headaches. I would try increasing it to 100 or 110mg/day and see if that helps. There might just be a ceiling- too much is just too much, but it can't hurt to try increasing gradually. Good luck!
post #328 of 442
Crankerton
Dr. Newman's protocol for weaning down is to drop one pill a day ever five days or so until you notice a drop in supply then return to the lowest effective dose. So if you're take 120 mg, you'd take 110 mg for a while and if there was no change go to 100 and so on.
I've weaned down from 90 mg to 60 mg without any change in supply and I plan to wean down further when my son gets settled in daycare next month.
Good luck.
post #329 of 442
Thanks to both of you for all of your help! I will try going to 110 mls and see how things go and then go from there. I'll have to just take a deep breath and be patient.
post #330 of 442
I'm at 160mgs a day ... and had headaches for a week or two, but they lessened over time. Now, if only the weight gain would follow suit. :
post #331 of 442
Crankerton did you have a fever with the mastitis/plugged duct? That can affect supply... I had EXACTLY the same problem when I was nursing - on domperidone, everything ok then I got mastitis and my supply tanked instantly. It came back over the course of a week or so with some extra pumping, but I never upped my dose of domperidone (I was taking 90 mg/day). I took abx for the mastitis which cleared it up quickly. And it was in the less-productive breast too - I think because the flow was much slower DD would get bored with it and want to switch before it was properly emptied, so it was prone to mastitis. I had it in the same place 3 or 4 times during DD's first 15 months, then never again. It was never as bad as the first time though.
post #332 of 442

question about stopping domperidone

Hi mamas,

I'm down to 60mg of dom and am ready to be done altogether. (My dd is 15 months now, and I think we are both ready for this transition. We will continue nursing.)

My question is, do I have to keep dropping one pill at a time, per Dr. Newman, all the way down to 0? Or can I just quit at some point?

The reason I ask is that at 60mg, I am barely getting any effect anymore, and I know from past experience that below 60mg the dom doesn't affect my milk supply at all. So it seems a little silly to keep slowly weaning down at this point? But I don't want to cause myself any difficulties (side effects etc.), either.

Any advice?
post #333 of 442
I think it's still better to wean off, but you could do it more quickly - drop a pill ever day, for instance. If you go off it all at once your supply could take more of a hit than you think.
post #334 of 442
bump
post #335 of 442

when to up domperidone dose

Hi--

this is day +5 of domperidone for me and I am only seeing a slight increase--maybe 2-3 ounces extra over 24 hours. Am currently pumping/nursing every 2-3 hours with 2 night nursings. I am taking 3pills 3x a day (90 mg). My question is, when should I increase the dose? Should I wait a week? Two weeks? Any ideas?
post #336 of 442
teton1898- I'm not sure when to increase dosage, but i upped mine pretty quickly because I really needed the extra milk! Within two weeks I was taking 120 mg/day.

Also- I read on some site that they did a study about absorption of Domperidone and it was absorbed much better if you took it 1.5 hours after eating. I take mine 1.5 hour after eating and 1.5 hours before I eat again. When I made that shift I also noticed an increase in milk production. Good luck.
post #337 of 442
Does anyone have info on the onset of dom? I am weaning off it and want to cut out the dose that effects the afternoon (since this when my milk supply is lowest) last.

Is anyone else weaning off? I started at 80, and am down to 50 a day. 20 in the am, 20 at 3pm, and 10 at bedtime. What is/has everyone else done?
post #338 of 442
Hi ladies,

I'm new to this forum and also a FTM to my 9 wk old son, Nickolas. I have read through this entire thread and I have found the discussion so informative and helpful. Thank you so very much for all the great discussion. Here's my story...

I have been BFingmy baby since birth and didn't find out that I have supply issues until he was 5 wks old. He became a very fussy baby as soon as his mild jaundice cleared up and DH and I just figured he was a high-needs baby and were committed to giving him the love and attention he needed. When he was a month old, my mom commented on his stool being green in color and told me that that was not normal for a BF baby. I started researching green stool and realized that it could be caused by a foremilk/hindmilk imbalance. That, coupled with the fact that my baby wanted to nurse all the time for 1-1 1/2 hrs, but still always seemed hungry led me to call his ped. The doc had me bring him in right away and immediately diagnosed reflux and gave us a script for Prevacid. Thankfully, he also referred me to a local breastfeeding resrouce center. After three weeks of working with two different IBCLCs, I am now being referred to a different pediatrician who specializes in more complicated BF issues. I have already been told that she will probably prescribe dom for me based on my consistent low supply. My baby typically gets 1.5-2 oz per feeding at the breast and I have been supplementing anywhere from 2-8oz of expressed breastmilk per day in a bottle.

Finding this discussion has been so helpful to me because it has let me know that I am definitely not alone in my struggles with low supply AND it has seriously raised my comfort level witht he idea of using a drug to increase my supply. I've been taking Fenugreek and Lactation Blend capsules plus eating lots of oatmeal but I just haven't seen the kind of results I would like. I'm also pumping 4-5 times per day after feedings and I get anywhere from a few drops to 2 oz. It's just so inconsistent. My son is ALWAYS hungry and I get so sad everytime he finally feels satisfied with a bottle after being so frustrated with me. I have a very small supply stashed in the freezer, but it won't last much longer and I want to avoid more formula if possible (I had to supplement with formula for about two weeks). I desparately want a long-term BF relationship with my son and I really hope dom will help me get that.

Erica
post #339 of 442
I too love this thread and the support it gives me. This is my third try at breastfeeding and to have supply issues again was heartbreaking. Thankfully, I have finally found out what has caused the issues and hopefully won't have the same struggles with the next. Anyway, I have been on Dom for 2.5 weeks. I had to increase to 160 mg/day but my beautiful boy went from taking 26+ oz of supplement a day to 4-8 oz a day and I am hoping will be completly off in a couple more weeks. It is a slow process but it is so doable! We overcame overactivce let down, shallow latch, low supply and even quitting BFing 3 times and restarting! Dom is a miracle drug to me and i am so grateful to have this thread that helps me know how to get it and how to use it as I have found that US docs and IBLC don't have much experience with it.
Quote:
Originally Posted by egmaranian View Post
Hi ladies,

I'm new to this forum and also a FTM to my 9 wk old son, Nickolas. I have read through this entire thread and I have found the discussion so informative and helpful. Thank you so very much for all the great discussion. Here's my story...

I have been BFingmy baby since birth and didn't find out that I have supply issues until he was 5 wks old. He became a very fussy baby as soon as his mild jaundice cleared up and DH and I just figured he was a high-needs baby and were committed to giving him the love and attention he needed. When he was a month old, my mom commented on his stool being green in color and told me that that was not normal for a BF baby. I started researching green stool and realized that it could be caused by a foremilk/hindmilk imbalance. That, coupled with the fact that my baby wanted to nurse all the time for 1-1 1/2 hrs, but still always seemed hungry led me to call his ped. The doc had me bring him in right away and immediately diagnosed reflux and gave us a script for Prevacid. Thankfully, he also referred me to a local breastfeeding resrouce center. After three weeks of working with two different IBCLCs, I am now being referred to a different pediatrician who specializes in more complicated BF issues. I have already been told that she will probably prescribe dom for me based on my consistent low supply. My baby typically gets 1.5-2 oz per feeding at the breast and I have been supplementing anywhere from 2-8oz of expressed breastmilk per day in a bottle.

Finding this discussion has been so helpful to me because it has let me know that I am definitely not alone in my struggles with low supply AND it has seriously raised my comfort level witht he idea of using a drug to increase my supply. I've been taking Fenugreek and Lactation Blend capsules plus eating lots of oatmeal but I just haven't seen the kind of results I would like. I'm also pumping 4-5 times per day after feedings and I get anywhere from a few drops to 2 oz. It's just so inconsistent. My son is ALWAYS hungry and I get so sad everytime he finally feels satisfied with a bottle after being so frustrated with me. I have a very small supply stashed in the freezer, but it won't last much longer and I want to avoid more formula if possible (I had to supplement with formula for about two weeks). I desparately want a long-term BF relationship with my son and I really hope dom will help me get that.

Erica
post #340 of 442
Hi,

At 4 months I am seeing a dip in my supply. I ordered Dom from the NZ pharmacy a week back...but am scared stiff about taking it. Actually my supply behaves erratically. Most days it is fine but some off days - I can tell my daughter is not getting 100% and she fusses.

I take fenugreek, MMplus and oatmeal.

I also ordered lact-aid which we should receive today. After reading this thread and some of the side effects (QTs, will reach baby and may affect her heart arrythmia (if it affects me in large doses- then what's to say it won't affect my baby's teeny heart?), not making me ovulate (meaning messing with my hormones) and also drug dependence(my supply may tank if I wean from it).....not to mention weight gain...
After reading all these - I am wondering why formula supplementing via lact-aid isn't the lesser evil?

Can someone please elaborate?
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