FAQ: Domperidone (Motilium) - Page 3

[Satori]

Can anyone tell me how long it took to see it working? I need it now and not in 2 weeks so umm, if anyone knows of closer US sources please PM me

[MaryJaneLouise]

If you can get a prescription from your health care provider, you can get some from your local compounding pharmacy:

http://www.iacprx.org/site/PageServe...=lookup_survey

http://www.angelfire.com/fl/endohystnhrt/pharmacy.html

[Satori]

Originally Posted by MaryJaneLouise

If you can get a prescription from your health care provider, you can get some from your local compounding pharmacy:

http://www.iacprx.org/site/PageServe...=lookup_survey

http://www.angelfire.com/fl/endohystnhrt/pharmacy.html

Not in the US you can't.

[caligirl]

Oh boy do I have experience with this.....

I used it for 1 month as a last ditch effort to preserve what breastfeeding relationship I had left with my DD2 (at 6mos old). I had such a struggle with low supply (she became so frustrated with nursing) that I was almost entirely pumping for her except she still nursed laying down to sleep.

Since I was pumping I got a very good idea of how it was working.

after about 2 weeks I went from pumping 1.5oz (on average) every 2-3 hours
to 5oz.

Shortly after that I developed a really bad heart arrythmia (my heart rate was never regular for more than 2 or 3 beats in a row, then would skip all over the place, my heart would stop, and then go back to normal beating only to repeat the process a few seconds later). The Cardiologist couldn't figure it out but I was on several different heart meds (beta blockers) to regulate it, they were nasty drugs and I couldn't feed DD the milk I pumped while on them.

After he researched the Dom (he had never heard of it) He said he couldn't be sure that it was the cause, but couldn't rule it out either, so I weaned myself off of it.
A month after I stopped Dom, my heart went back to normal and I went off of the beta blockers and I have had absolutly no problems since (a year later).

Please be careful when choosing to use this medicine!
Looking back I would not have done it at all because it cost me $50, a lot of problems, and I still had to supplement with formula!

[MaryJaneLouise]

Originally Posted by Satori

Not in the US you can't.

I was able to get domperidone at a COMPOUNDING pharmacy just 6 months ago. Again, have things changed? The last I heard the FDA had actually loosened up things at COMPOUNDING pharmacies.

[MaryJaneLouise]

On May 28, 2006, a US Federal Judge ruled that the FDA cannot prohibit compounding pharmacies from filling prescriptions issued by US doctors. **This means it is absolutely legal for a US physician to write a presciption for domperidone and for a US compounding pharmacy to fill it.**

http://www.lowmilksupply.org/domperidone-safe.shtml

[maxmama]

Originally Posted by Satori

Not in the US you can't.

Yes, you can.

I just got and filled a prescription at a local compounding pharmacy a month ago. The key is not to mention why you're taking it.

I love domperidone. I nurse at home, but work a 0.75 FTE, 12 hour shifts and pump then. I went from 3-4 oz/ pumping to 6-7 oz.

I don't take the dom on my off days, only on my work days, and I take the first dose about 2 hours before my first pumping. It works great!

[BCFD]

I took dom to induce lactation for my adopted child. It worked, however, I could never measure my milk supply in oz. Even after 7 or 8 pumping sessions a day I'd have less than 1/2 oz.

My first shipment was stopped at the border and Globaldrug just re-sent it. I opted for the quick shipping and it arrived a few days later. I was only out the shipping cost since Globaldrug apparently was used to Customs seizing it. They were great. I figured something was up after 3 weeks and no dom. At the 4 week mark, I received my letter from Customs and was devastated! But again, got a new shipment quickly.

I know Globaldrug is now called something else. They merged? Or were bought out? I forget..but they are still around..just under a different name.

There is a compounding pharmacy in NorCal (near Berkeley? Marin County?) that was pretty cheap...a little more than Globaldrug, but affordable. One of the best websites around is the Jack Newman/Lenore Goldfarb site www.asklenore.com. They work mostly with adoptive mamas, but they are a plethora of information on dom and the protocols.

ETA: Ahh...GD is now IHP. Missed that part.

[MaryJaneLouise]

Here's more info on where to get domperidone, in the US and around the world:

http://www.breastfeedingonline.com/d...onewhere.shtml

[MaryJaneLouise]

Another

[MaryJaneLouise]

[Jude Rose]

thanks for the bump, Mary Louise. It's a shame the thread isn't stickied.

[MaryJaneLouise]

:

[ErinBird]

Originally Posted by Satori

Not in the US you can't.

Actually, you can. You will need to hunt for a sympathetic doctor and your LLL leaders may be able to point you in a direction of someone local. A compounding pharmacy may ask you why you are taking the drug. The correct answer is "reflux."

[maxmama]

Originally Posted by ErinBird

Actually, you can. You will need to hunt for a sympathetic doctor and your LLL leaders may be able to point you in a direction of someone local. A compounding pharmacy may ask you why you are taking the drug. The correct answer is "reflux."

Or, as my compounding pharmacy put it (while I was BF my DD)," Oh, don't tell us anything, and we won't ask you anything."

[ErinBird]

Originally Posted by maxmama

Or, as my compounding pharmacy put it (while I was BF my DD)," Oh, don't tell us anything, and we won't ask you anything."

I believe I'm in the same city as you- my daughter's ped called the script in for me (on the advice of the IBCLC) and the pharmacy actually called me to ask what the purpose of me taking the drug was. I had (luckily) read earlier that day that I should not mention breastmilk at all, and that a valid reply was reflux.

Your pharmacist sounds better!

[bdavis337]

I'm curious - is the pharmacist legally allowed to ask about your medical reasons for filling a prescription?

[MaryJaneLouise]

[MaryJaneLouise]

[RootSnort]

Here's another reference source for compounding pharmacies:
http://www.pccarx.com/Patients.aspx?sm=Patients

Originally Posted by bdavis337

I'm curious - is the pharmacist legally allowed to ask about your medical reasons for filling a prescription?

Yes, and they really should do so to make sure they are treating you correctly. Pharmacists should be making sure that you are on the right dose for the right use of a medication, and should also check for and warn you about any potential interactions. Here in the hospital setting, the official accrediting board for hospitals is demanding that we have an indication (reason for use) for all drugs. Another benefit of this data is to make sure that the doctor has written the right drug name (Celexa is like Cerebyx is like Celebrex, but if I know the patient has seizures, I know what the right drug and dose is).