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Healing the Gut Tribe - June!!! - Page 6

post #101 of 770
Quote:
Originally Posted by chevy974
Mamajessica
.

I started taking enzymes yesterday and even ate a piece of pizza and no stomach pain. I am hoping this is the ticket.

Amy
ARe you taking digestive enzymes? I am still really scared to start the yeast enzymes up again :
post #102 of 770
Well DD had a little bit of blood on her butt twice today when I wiped her (we do EC) It's been 3 1/2 weeks since the last episode of bloody poop so I was hoping it was gone for good but I guess not. I so hope it isn't the goat yogurt. I told myself before I started the goat yogurt that I would "allow" one episode of bloody poop since it had only been a couple of weeks since the last episode at that point, so I guess I will wait and see what happens. If the bloody poop shows up again in the next week or so I'm going to have to nix the goat yogurt, too.

I feel like this is never going to end. The diet clearly isn't working all that great without probiotics of some sort, and I can't buy the really good probiotic supplement that is $5 a day...I'm afraid I'm going to be stuck with my issues forever and that DD will have food allergies forever, too
post #103 of 770
Hi caedmyn - I am currently a lurker on this thread but couldn't read your post without say something. I feel your frustration. It is so hard to figure all this stuff out on your own. There is so much information to learn and so many variables. I keep wishing that there were more practitioners who were experts in this area and could help us all to heal. That reminds me. I noticed on pecanbread.com that there are counselors. Has anyone ever used them? But then again... they cost money. There never seems to be enough money. I hope you can find the answers you are looking for.
post #104 of 770
I've been really reluctant to post here since I've been off SCD, but looks like I'm at square one now (surprise, surprise!).

I went to my ND a month ago, and she told me SCD was overkill for me, and that given my ethnicity (mostly Indian - from India) I needed rice etc.. She said all my prblems were stress related (which I believe) but I don't completley agree with her approach for me. For the first week after the reintroduction of some foods, I had splitting headaches, and the D. returned. It settled down a bit after that, but I'm back to almost exclusively having D. I want to go back to SCD so badly, but my DP has made it clear he would like me to do this under the approval (?) of a Dr.. I'm taking this time to also figure out our finances since I fiund SCD was breaking the bank.

In the mean time, I visited the drop-in clinic close to my house, and asked for a referral to a GI specialist. The Dr. I saw declined because I have no preliminary testing. I have an appointment with an Internist on Tuesday. I need to get my facts together so I can present him my case, but I'm in no shape to do reasearch at this time (I can barely write a message here, and then need to rest for a while because I feel so tired staring at this screen, and my head hurts )

I'm reasonably sure that the internist hasn't heard of SCD (though he might surprise me, but it's very unlikely), but I really just want to "sell" it to him Yes, I'm being sneeky, but I'm at the point of desperation, and really need this now for my sanity. I have my food journals from a few months, but I've found I don't keep the journal updated when I feel crappy... I haven't documented in the last month, goes to show how great I've been doing since coming off SCD

So, tell me mamas, what sort of documentation can I provide the Internist as proof that SCD works? (or something along those lines). I'm going to take BTVC along, but I find the book too simplistic to really sell someone on the idea (I wasn't sold by just reading that anyway). I'm going to print off the Canadian list of Dr.'s who are SCD friendly. Will that help? (http://www.scdiet.org/8resources/doctors.html)

There is just so much information out there, that I'm considering just giving him the most important links. Can anyone do my homework for me, and just suggest to be the most informative webpages (specific pages, not entire sites, since he won't have time to look through it all).

Also, I plan on suggesting Enzyme therapy to him, as one course of action. Of course I'll only want to take SCD friendly enzymes I wonder how open he'll be with that?

Any sort of support would be wonderful, since I'm in worse place now mentally than I remember being in before SCD. *Sigh* I've been graining weight (only grain reintro. is rice, but I eat potatoes occassionally too). My stress levels are still very much elivated. I'm taking up yoga to help with clearing my mind, and I really hope I can go back to SCD -- with everyone in my home being happy about it -- very soon. I need to stop worrying about the money.

I have no idea how to handle speking with conventional Dr.'s. The one at the drop in clinic was very condescending when I told him blood tests for celiacs would be pointless at this time. He was a really ass about it, but he's just one Dr. and I really hope the Internist will be different (in a good sense of course)!
post #105 of 770
Since my book should arrive sometime this week, and since I have not gotten any better since my initial improvement, I went shopping today to start for real. I actually did buy beef. DD was quite confused when I told her it was for me.

"But Mama, you don't eat meat??"
"Well, I am going to try a little bit to see if it will help my stomach problems."
"But you said that meat isn't good for you."
"Yes...but maybe in this case it is."

I even inquired about bones for stock, but will need to check back on that during the week. I just remembered that I am having a sleep over next weekend (as in only moms!) and probably don't want to be doing the SCD intro then, so I will wait until after that. I figure I can try to prep things this week.

I started 24h yogurt last night, actually following the directions on the website, so I am hopeful it will work out better than before, when it was terribly runny. On that note, DD1 was gobbling up the yogurt I bought for the starter. I bought Organic Whole Jersey Milk Yogurt. Is there any healing value to any commercial yogurt? I would not say that either DD really has any problems, so it is not as if they need to heal their guts, per se. Up until I started all this research for my stomach issues, DD has essentially been ovo vegetarian. I started giving her kefir and now this yogurt. I am hoping it is actually good for her!

Maybe I can work on weaning off of coffee this week. That is going to suck big time. :
post #106 of 770
OK, we have to start the intro again.
I made some NT muffins because of DH and I couldn't resist... also, I was gone all day and when I came home I found out DD had diarrhea- she was eating muffins all day plus goat milk. Her eczema also came back.... my eczema also got worse despite pumping enzymes. Cheating is still cheating even with enzymes. So back to no soaked grains and definietely no milk of any kind. It's never gonna end...
post #107 of 770
I'm sorry to you ladies who are still in the middle of this hell. I remember it vividly and hope that I never have to do it again.

Siana,

Based on your time on the diet, if you believe that it was helping you, then you know you need to be on it. If that's the case, I would not pitch the specific diet to a doctor who will know absolutely nothing about it. I would say something like "do you find that elimination diets work for your patients to determine what they are senstive to?" And if the answer is a good one, this can be your elimination diet. Desperate times call for desperate measures.

caedmyn,

Don't panic yet. Give it a little more time. You will know soon (like probably tomorrow) if this is not going to work.

The cost of this diet
So, besides the very high cost of supplements, what are you ladies spending more money on with this diet? It has been so long since we made the change and I'm used to spending obscene amounts and I have forgotten. Let's work on strategies to save money. But I've never done the SCD, I've forgotten all of this anyway, and I am drinking a kefir soda that is probably a wee bit too alcoholic. But I'll brainstorm with more info (or perhaps when the "soda" wears off).
post #108 of 770
Quote:
Originally Posted by EBG
OK, we have to start the intro again.
I made some NT muffins because of DH and I couldn't resist... also, I was gone all day and when I came home I found out DD had diarrhea- she was eating muffins all day plus goat milk. Her eczema also came back.... my eczema also got worse despite pumping enzymes. Cheating is still cheating even with enzymes. So back to no soaked grains and definietely no milk of any kind. It's never gonna end...
I remember "testing" some millet. I ate several servings in one day. I was not ready for it. s
post #109 of 770
It seems like all I've done on this group off late is just take, take, take I promise I'll make up some day.

DD had a BM a few hours ago, and she had what seemed to be blood in it. She just had a BM again, and it was D. She said her bum hurt, and when I looked, she has a bright red area around her rectum :cry

Why? I'm so tired of all this. I was really counting on my DD having no issues, but I've noticed in the past month or so, she's been having softer and softer stools. Could her BMs today just be because of something she's had in the last few days, or is this another long-term, deeper-issues case. Argh. I don't know how you moms do it, but I feel like my head is going to explode. More stress. Just what I need. : I can't think straight any more. I just can't.
post #110 of 770
Water kefir grains

In the interest of saving money, if anyone would like to try water kefir grains, I can ship to three people on Tuesday. The thread is here. Read especially the last couple of pages for the glowing reviews.

Pay no attention to the fact that I am drinking an alcoholic version right now. It's all about the sugar you put in. And by the way, you can reduce the sugar as much as is necessary. I doubt this is SCD legal since milk kefir is not. The reason for that I imagine is that there is no way to guarantee how much sugar is left after a specific period of time. I let mine brew to almost a vinegar state but I let my son drink it when it's still a bit sweeter.
post #111 of 770
Siana,
I printed this for dd'sallergist & brought it along. Bring it to your internist (or better yet, ask if you can send it ahead of time for him to read.)
http://www.pecanbread.com/scdscience.html#prof
post #112 of 770
Siana -- is she actually eating reasonably well? My son just turned four and it's just about impossible sometimes. So is this all happening on a really good diet?

And I'm not at all a poop expert but it could be long-term or short-term. That's what makes all this so much fun.
post #113 of 770
Quote:
Originally Posted by Gale Force
I remember "testing" some millet. I ate several servings in one day. I was not ready for it. s
I have been SO wanting to try millet but I know I'm not ready for it either. I mistakenly made some plantain chips the other day (never looking to see whether or not they were legal) and ugghhh . . . they felt heavy in my tummy and made me feel .
post #114 of 770
Quote:
Originally Posted by caedmyn
I feel like this is never going to end. The diet clearly isn't working all that great without probiotics of some sort, and I can't buy the really good probiotic supplement that is $5 a day...I'm afraid I'm going to be stuck with my issues forever and that DD will have food allergies forever, toosad
cademyn, I can't remember: Can you not do the yogurt?
post #115 of 770
Quote:
Originally Posted by EBG
OK, we have to start the intro again.
I made some NT muffins because of DH and I couldn't resist... also, I was gone all day and when I came home I found out DD had diarrhea- she was eating muffins all day plus goat milk. Her eczema also came back.... my eczema also got worse despite pumping enzymes. Cheating is still cheating even with enzymes. So back to no soaked grains and definietely no milk of any kind. It's never gonna end...sad
It's tough to be patient w/all this gut healing stuff! I know that the longer I'm away from the things I really can't tolerate, the MORE sensitve I am to them (when I do stray from *fanatical adherence*.) The worst for me was taro root, sweet potatoes and now plantains. Guess I can't handle starch eh?
I really really really want some grains though!
post #116 of 770
Quote:
Originally Posted by Gale Force
The cost of this diet
So, besides the very high cost of supplements, what are you ladies spending more money on with this diet? It has been so long since we made the change and I'm used to spending obscene amounts and I have forgotten. Let's work on strategies to save money. But I've never done the SCD, I've forgotten all of this anyway, and I am drinking a kefir soda that is probably a wee bit too alcoholic. But I'll brainstorm with more info (or perhaps when the "soda" wears off).
SCD flour is super expensive. It is nut flour and usually at least $6 a lb or more.

Also just eating more fruits and veggies is more expensive than being able to fill up on cheap grains. 1 cup of uncooked rice costs me $.50 and could feed my family supper. 1 cup of uncooked zuccini is $2.00 and might make a serving for me. Eggs are cheap protein but when you are eating/using 1 dozen a day it really adds up.
post #117 of 770
Quote:
Originally Posted by Gale Force
Water kefir grains

In the interest of saving money, if anyone would like to try water kefir grains, I can ship to three people on Tuesday. The thread is here. Read especially the last couple of pages for the glowing reviews.

Pay no attention to the fact that I am drinking an alcoholic version right now. It's all about the sugar you put in. And by the way, you can reduce the sugar as much as is necessary. I doubt this is SCD legal since milk kefir is not. The reason for that I imagine is that there is no way to guarantee how much sugar is left after a specific period of time. I let mine brew to almost a vinegar state but I let my son drink it when it's still a bit sweeter.
I have been making juice kefir. Grape juice and water. It is pretty good. We call it grape soda.
post #118 of 770
Ditto what Patty said ESPECIALLY the almond flour! And we go through at least 5 pounds a week easy.

Patty, how are the effects of the magnesium doing? (Or can't you tell given your enzyme troubles?)
I started my mag about the same time you did and had the same results.
post #119 of 770
Quote:
Originally Posted by Annikate
cademyn, I can't remember: Can you not do the yogurt?
I really don't know at this point...I started doing goat yogurt 2 weeks ago. DD's eczema flared up again a week later...but a few days later two teeth popped up, so I don't know if the eczema flare-up is the yogurt or the teething. And now with the bloody poop...

I just remember something else that could be the cause of the bloody poop--I started Candidase in between meals a couple of days ago. I know enzymes can be irritating, so I wonder if that can be causing it. Although I have been doing enzymes with meals for about 6 weeks now and DD was okay with those. So the bloody poop could be goat yogurt intolerance...or the enzymes...or just general causes

post #120 of 770
Quote:
Originally Posted by Annikate
Ditto what Patty said ESPECIALLY the almond flour! And we go through at least 5 pounds a week easy.

Patty, how are the effects of the magnesium doing? (Or can't you tell given your enzyme troubles?)
I started my mag about the same time you did and had the same results.
I'm actually not noticing much difference with the mag but I'm keeping it up. MT said that it took her a year to fix her mad defiency so I'm not giving up hope any time soon.

I have laid off the green glop though in fear that it was contributing to my tummy troubles.

I'm feeling off now and my hair is falling out so I think my thyroid is off again. Gonna get that checked tomorrow...
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