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Bad news from our MRI - Page 3

post #41 of 57
10/9/06 at 1:36pm
hugs and prayers from here..

I will say it took a year for the nim wits that Riley had a couple years back to actually FAX Kait's MRI reports to her neuorlogist five miles away

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post #42 of 57
10/12/06 at 8:57am
Thread Starter 
Quote:
Originally Posted by bri276 View Post
ugh, I wish they could expedite certain cases to get the family in faster in situations like these. I know if my kid had a non-urgent appt and someone from her neurologist's office called me to say "We have a very urgent case to put thru, do you mind coming in next month" I would!!!! but, I know it's unrealisitic. just frustrated for you.

Thank you -- the neurosurgeon has clinic just once a week, so we did get into the second-next clinic date, but still! I have been calling and calling and just want to know. I had a dream that the tumour grew minimally. Let's see if I am correct!

Thanks for all the support. I really appreciate it..
post #43 of 57
10/12/06 at 11:37am
I am so sorry! I know how phone calls a neurologist after an MRI can feel.

When my dd had her brain MRI (they were putting her under to do her spine anyway but didn't expect to find anything on the brain scan) and called the next day to tell us that she had scarring in her brain I was stunned, shocked and upset.

Thank God, for us, there was no progression at the last scan.

I hope the news isn't what you are fearing. I am praying though because urgent visits usually are, as you fear, not for good news.

((HUGS))
post #44 of 57
10/12/06 at 4:36pm
Thinking of your son...I know how worried you must be.

I also have NF.
post #45 of 57
10/23/06 at 3:01pm
Thread Starter 
Well, we have good news! The tumour has stayed stable, and we are just going to return for another MRI in 6 months! Other than the tumour shrinking, it was the best possible news!

Thanks Mamas for your support!
post #46 of 57
10/23/06 at 3:51pm
I am so glad it wasn't bad news.

I hope you get good news in six months!!

Can you schedule the follow up for right after the MRI (a couple days or a week) next time so you don't have to wonder and worry for as long?
post #47 of 57
10/23/06 at 5:06pm
Quote:
Originally Posted by CarolynnMarilynn View Post
Well, we have good news! The tumour has stayed stable, and we are just going to return for another MRI in 6 months! Other than the tumour shrinking, it was the best possible news!

Thanks Mamas for your support!
Yay! That is GREAT news!
post #48 of 57
10/25/06 at 11:45pm
Carolynn, I've been quietly stalking you here, watching for updates. I'm so, so glad that you got good news.
post #49 of 57
10/26/06 at 1:56am
wow, that is a huge relief. I am glad for you.

I need to start looking up NF. It was just mentioned to me today as a possibility for my dd (12). She doesn't have many spots but I haven't looked in a long time. However, she had some HUGE drops in her cognitive and academic testing this past year. The neuropsych we talked to today had mentioned ruling out NF and some other neurological type issues.

Renee
post #50 of 57
6/29/07 at 10:08pm
Thread Starter 
We went for another MRI in mid-June and are awaiting the most current results. I suspect that since they haven't called urgently that there is no growth, again.
post #51 of 57
6/29/07 at 10:13pm
Good news all around. NF is a tough disease.
post #52 of 57
6/29/07 at 11:25pm
Wishing you the best possible news!
post #53 of 57
6/30/07 at 12:16am
Quote:
Originally Posted by CarolynnMarilynn View Post
Well, we have good news! The tumour has stayed stable, and we are just going to return for another MRI in 6 months! Other than the tumour shrinking, it was the best possible news!

Thanks Mamas for your support!
That is such great news! I am so glad your son is doing well.
post #54 of 57
7/1/07 at 2:15am
That's good news!
post #55 of 57
7/2/07 at 1:10am
I am so glad it's good news. I've been wondering how you both were.

My son has an appointment with a dermatologist on Tuesday to get a better count of how many CAL's he has now (last year it was 6, this year I would guess at least 10) and whether the multiple CALs that seem to be appearing in the groin area would count as freckling. My DH and I just admitted to each other the other night that we both think he has NF1 now.

The unpredictability of NF1 is really hard for me to deal with--you never know what if any tumors will appear nor do you know whether you are better off treating or watching when they do appear.

to you and your family

Sherri
post #56 of 57
7/2/07 at 11:39am
Lots of positive thoughts and prayers are sent your way.

Mary
post #57 of 57
7/2/07 at 9:21pm
I'm so glad you got good news!
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