I think I introduced myself on the other thread, but things have changed a bit so I guess I'll post again. lol!
First of all I'm so moved by the strength and wisdom of you all. I used to bypass this board because "Special Needs" was so foreign to me and I didn't even want to really think about it. But here I am, and you know, it's not so bad.
My 3yo dd Abirami is gifted, spirited, spunky, defiant, a real handful. I admire her spirit but I fear she's going to to have a really hard time making friends and will lead a lonely childhood. Sigh. We are not sure what she has, she's still being evaluated, but for sure she has some ADD, probably some SID but that part is not impacting her too much, she's grown past the gagging and food aversions, and learned to rub herself in her room, learned not to walk on her toes outside of the home because others don't do that. But she screams for no reason, mimics what others say when she's in non-structured environments, and quotes a lot from movies. It's like she just doesn't know what to do with herself during free play situations. Also soon to be evaluated for a sleep disorder because she has bad insomnia at night and I often find her playing in her room by the nightlight at 2 AM. But she's a good girl and most of the time she tries. She's very loving and snuggly, my first born, my teacher.
Nitara, my 6mo, started out in-utero with preterm labor which required months of bedrest and terbutaline. Born healthy at 38 weeks but immediately showed signs of GERD. No one listened to me, said it was colic, even though she wasn't eating well and not growing so well and screaming for hours and hours.
Anyway, at 3mo she decided not to eat anymore and landed in the hospital where she was finally diagnosed properly with GERD, Failure to Thrive, Sandifer's Syndrome (siezure like behavior as a result of the pain), and feeding aversions. We were sent home with her on an NG tube which she is still on 3 mos. later. She eats okay during growth spurts and we think maybe she's getting better, but then 2 days later she's back to taking 2-3 oz. per feeding and that's it, getting dehydrated and it's so frustrating. So the tube goes back in. It kills me to have to push that tube down her nose, she screams and looks at me with pain in her eyes, and then turns off for a few hours and won't verbalize or look anyone in the eye.
So, as much as I dread it I think she's going to be getting a gtube soon. I am scared about the surgery but at least hopefully after it heals our lives will be less stressful and the trauma will stop. She has started feeding therapy recently, too. If anyone's child is on a gtube I'd appreciate some reassurance or some tips on what to expect.
My dh has never been diagosed, but after talking with MIL he showed many signs of SID and Abi's doctor wants him to get evaluated for ADD which I'm relieved at, because I've thought he had it for years. He also had a severe feeding aversion as a baby and was fed by dropper from 2-9 mos. because he refused breast and bottle, vomited a lot, cried a lot, and only ate limited food until he was 5. So there's something going on there, whether he had GERD or it's purely sensory, but something's being passed down to our kids.
Anyway there's my long rambling post. I need to be in bed right now sleeping while I have the chance!