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Thyroid Drugs - Page 3

post #41 of 107
Just wanted to share my journey. I was diagnosed with graves disease in december of 2005. My TSH levels came back undetectable (lower than 0.001). My heart was racing out of control (it would jump from 120 to 220 in a matter of seconds), I lost weight, my mood was horrible, I passed out, I had trouble swallowing, I would sweat, I had severe insomnia...

I was put on PTU right away (while nursing). The only side effect I immediately felt was the HORRIBLE taste it leave in your mouth! After 3 weeks my body grew an allergy to it. My choices where IR, or a thyroidectomy. I absolutely didn't want to stop nursing my then 19 month old. I actually refused. I also refused the iodine tests too. I opted for the sub-total thyroidectomy. It took me about a week to start moving around after the surgery and about 5 months to get my voice back (just last month) to normal. I don't do well with anethisia, but other than that it wasn't too bad.

I was put on synthroid, which is also completely safe during breastfeeding. I take one tiny pill everyday and have my blood drawn every 6 weeks. I am currently at 1.88 TSH and I feel great. It was like an instant cure having the surgery! I felt happy, my husband couldn't believe the difference. I didn't NEED to eat every hour, my heart STOPPED racing and I could finally sleep!

I am now almost 6 months post surgery and I still feel great!
post #42 of 107
It also took me about 5 months to get my voice back. Part of it was the swelling due to the surgery and part of it was because the dr let my thyroid levels bottom out before doing the radiation and starting meds.
post #43 of 107
im so glad you all posted your journeys, this is very helpful to me Actually wrote that wrong, my TSH level is LESS than 0.01, so there is hardly any detectable. but it can also be postpartum the endo said, so it could go away in 6 months. I think what we are doing is nothing for 6 months to see if it goes away, but if theres a problem with the nodule, then we do something. I dont know if i want surgery, im scared of that actually lol. ive never had surgery except 3 c/s and i was awake for that. ive never been put under before.

As for the car crashing thing....it was a one time only thing due to a surge in hormones. I am on zoloft already, the day that it happened i started it. i didnt want to---i wanted to prove to myself that i could control my body and heal myself. But i cant, ive been trying for months. I wanted to do with out meds....i wanted all herbal. I wanted to trust that my body knew what to do. I trusted it to give birth after 3 c/s....and i did well, i didnt want to ruin that. i didnt want to go back to my old living habits and be unhealthy. but i guess i have to give in and go on meds. I never wanted to do this again, why did it have to happen to me, right after i changed my living habits? I eat healthier, i had a baby vaginally, i heal myself with herbs and things of the earth....i dont understand how my body can be "broken" again. Im sorry im ranting.....im just sad that i have to give in. I dont have a choice, i have to give in or the depression was on the verge of getting worse. I told my doctor everything, btw, so dont anyone think that i wasnt smart enough to get help lol I would never harm myself or my children, just the thought was there and i was behind the wheel and wanted to. I was still in somewhat of a right mind since i thought of my lovely children and thought of all the good i have brought forth into this world...how could i do something so devastating, so ridiculous and so selfish? MY breastfed baby needs ME! My older children need a mamma to sleep on at night. i could never hurt them that way, never. Thats why i had to get control of the depression. i dont want anyone thinking for a second that this is something that i want to do.

I didnt know it took that long for your voice to come back. Oh well, my husband will be happy tee hee i talk alot, can you tell? we shall see what will happen when i get my sono i guess. has anyone had a small nodule that didnt have to be taken out? do they just do radioactive stuff for that? And if so, can i wait a long time (like when im done breastfeeding) to do that, or is it dangerous? Thanks so much ladies, i really appreciate all of your advice!!!
post #44 of 107
[QUOTE=Emily12581]Just wanted to share my journey. I was diagnosed with graves disease in december of 2005. My TSH levels came back undetectable (lower than 0.001). My heart was racing out of control (it would jump from 120 to 220 in a matter of seconds), I lost weight, my mood was horrible, I passed out, I had trouble swallowing, I would sweat, I had severe insomnia...



Wow, that would be scary for me the heartrate jumping like that. I dont get that, i just get slight heart accelerations.....up to 120s to 130s. but its not everyday. I get some palpitations and it feels like constricting on my throat....but its not painful and goes away. my TSH is the same....my moods are insane. I was about to commit myself last week, i really needed to be put away i thought. I never passed out, but ive had trouble swallowing for at least 3 years....bread is very very hard to swallow and then when i finally do manage to swallow, i get the hiccups and sometimes it takes up to an hour for the food to pass through. i sweat constantly for the past 3 years...i mean constantly. even in the dead of winter, and i never wear a coat or jacket ever. i sleep ok, sometimes im wide awake though, but not alot. everyone is different i know...but its comforting to know that im not alone I just wonder, why does this happen? Why did my thyroid decide to go on strike lol?
post #45 of 107
As long as the nadule is not cancer it can stay in there no problem. I am thinking that they will not remove it unless it is cancer. I have a cousin who has nodules but they are fine they keep an eye on it for her but other than that no worries. Pretty sure the only scan they have for the thyroid involves radioactive iodine but the nodule can be biopsied with a needle without that. It isnt fun by any stretch but it isnt painfull really just the thought of the needle in your neck and the way it feels in there almost made me pass out and I am not the passing out kind of person.
post #46 of 107
I was able to stop taking the PTU after about 4 months. It was making me HYPO-thyridic then. And it really DOES leave the WORST taste in your mouth! GAG!
post #47 of 107
Quote:
Originally Posted by doulajewla
As for the car crashing thing....it was a one time only thing due to a surge in hormones. I am on zoloft already, the day that it happened i started it. i didnt want to---i wanted to prove to myself that i could control my body and heal myself. But i cant, ive been trying for months. I wanted to do with out meds....i wanted all herbal. I wanted to trust that my body knew what to do. I trusted it to give birth after 3 c/s....and i did well, i didnt want to ruin that. i didnt want to go back to my old living habits and be unhealthy. but i guess i have to give in and go on meds. I never wanted to do this again, why did it have to happen to me, right after i changed my living habits? I eat healthier, i had a baby vaginally, i heal myself with herbs and things of the earth....i dont understand how my body can be "broken" again.
I totally understand what you are going through with the depression. Depression runs on both sides of my family. My dad was on Prozac for 6 years and although it helped him he shared very personal experiences with me about how it effected him. When I was in college I did a research paper on St Johns Wort VS Prozac and I interviewed him. It was interesting learning as an adult how depression effected his relationship with us as children and I understood him way better than I ever had before. I wish I could have understood sooner but I don't think I was mature enough yet.

Anyway I was scared to take depression medicine. I did not want to screw with my bodies natural process; however I had the unique perspective of a child that grew up with a parent who had uncontrolled depression. So what does a person do? I made the decision that I thought was the best at the time and I took St Johns Wort to control the depression, with the consent of my psychiatrist, and it helped. However if I felt it hadn't helped I would have taken the Paxil the doctor had given me.

Depression isn't an easy thing to deal with but once you understand the problem and its triggers you can get to the point where you can control your reactions. That is the difference, you might never fix the chemical imbalance but you can at least learn how to deal with it in a healthy manner.

My dad has been drug free now for 10 years and he says it is a struggle sometimes but the depression no longer controls his life like it used to.
:
post #48 of 107
One day ill be like your dad I cant take st johns wort it made my heart jump out of my chest. Ive tried everything too. Motherwort worked good for a while but then i was really getting out of control and it didnt work. I believe when i get control of my thyroid problems then it should work itself out and i wont have to be on zoloft. My doc is good, and she agrees that temporarily its ok and then i can go back on my herbal remedies
post #49 of 107
The heart accels were why I needed the surgery right away. When your levels get that low you are at risk for heart failure (I went undiagnosed for 3+ years), my heart had been weakened by it. I am happy to say my latest heart scan showed dramamtic improvement! yay! Just keep an eye on it. I don't think they like letting people with such low levels go for too long because you can start losing calcium in your bones and your heart can weaken.
post #50 of 107
everyone keeps saying my heart sounds fine. I had a holter monitor about 6 years ago and it said it was fine. I also had an echo and an ekg. when the endo listened to my heart the other day he said it sounds fine. i take my pulse often even when its racing so i can keep track of the beats and how it feels. i do have when i breathe in and out where my heart will skip a beat and speed up a bit upon inhalation, but my mw noticed that last year and wasnt concerned. its always done that for 10 years now. but yeah, thats one thing ill keep in mind
post #51 of 107

update

went for my ultrasound of my thyroid today. hoping and praying the nodule isnt so big that i need a biopsy, i am terrified! will update more, didnt get bloods back yet
post #52 of 107

very Scared

I am completely and utterly insane. I cant take these moods, zoloft didnt work so i went off of it....i scream at least once a day. I freak once a day, and scare my kids. I am screwing them up royally. I am so scared ive screwed up my kids. we are all in counseling, i know enough to do that. but its not enough. My kids know im nuts, i tell them i have a chemical imbalance...and no one can help me right now. I havent seen my endo in 6 weeks, so i dont know anything about bloodwork i had done or the sono of the nodule. Im just so angry, the last time i saw my endo, he wanted to wait 6-9 months to see if the hyperthyroid went away on its own, maybe it was pregnancy induced. I dont think ill make it without cracking up completely. does anyone know any info about pregnancy induced hyperthyroid? I thought it would clear up by now, my baby is 8 months now. ive had symptoms since 4 years ago....and this endo says he believes me, but if i really had hyperthyroid for 4 yrs, i would have been in grave danger during my pregnancy and we would have definetly known. So he thinks its due to the pregnancy, but my gut is telling me otherwise. i need meds. i need something, i need surgery, i dont care what the hell it is (sorry) but i need something. Anyone have any thoughts? Im screwing up my kids, i scream all the time. I cant do this to them anymore, but i dont have control over the heated moods i get...i literally tried so hard to stop the screaming, but i couldnt. i just couldnt do it, i felt so shaky and hot and mad....is this normal? are my kids going to be traumatized? i do tell them what is going on, but then when they get older i fear that they will suffer with an abusive mate because the mate will apologize and say "sorry im nuts" and its ok because that is what my kids are learning. I am so scared.
post #53 of 107
I'm sorry honey. Really the only things that are going to help are Rx prescriptions. A beta blocker like propanonol for the increased heart rate and blood pressure, and the PTU for the thyroid.

Both of those are really not dangerous drugs. I don't know WHY they won't just give them to you. I'd call, and call, and call until they helped you. Mine was pregnancy induced and it didn't get better until I took the PTU for about 3 months. Then my thyroid calmed down and I was able to stop taking the PTU.

My best advice is to get another GP or Internist or even Endo. SOMEONE who will help you. Check yourself into an emergency room and tell them what is going on, maybe they will help you. Past that I don't have any suggestions. Maybe you can order the drugs online. You seem to be able to get anything else there.
post #54 of 107
I have pregnancy induced hypOthyroid... but my endo didn't hesitate to put me on meds for it. I agree with the previous poster - the meds are one of the few things that really will help.

I'd totally suggest seeing a different endocrynoligist - the one you have obviously isn't listening to you. The best endo won't just listen to the numbers and the symptoms - s/he'll also listen to the patient.
post #55 of 107
thank you very much, i am going to do just that---call another endo. I am apprehensive about doing that only because every single damn endo in my area isnt accepting patients until september, october and november. I am already in with one, and that took alot of legwork and crying to get in. im going to my GP on monday, and will ask for a beta blocker. that is safe with nursing? I cant believe this endo wants to wait 6 months before giving me anything, he thinks it will just go away on its own. Im getting worse, not better. I am just really bad. I yell at my kids for NOTHING. They are doing nothing wrong sometimes and i snap. I cant go on like this. Thanks so much ladies!
post #56 of 107
hugs mama...... i have gone hyperthyroid after both pgs..... graves disease.... less than 0.01 tsh.... i have been a terrible mom, i look like crap, feel like crap, feel crazy....
dh does not understand it.
i donnt for that matter. the pills taste so fricking gross.....
i hate it too mama...
i would find another doc too....
btw- i yelled at ds for pooping today. you are not alone.
when i am freaking bad i either try to go somewhewre in public or call a friend. i need to be accountable.
post #57 of 107
to you too. I just feel completely nutso. every single day. I dont understand though----if i have pregnancy induced hyperthyroid(im not pregnant now but was last year) does it go away? i see you said you are on meds for it....does it ever go away, or sometimes does it stay? I dont understand if some people never get rid of it why he wouldnt want to make it better for me right now and give me something. Im planning on telling that endo if we dont do something now ill admit myself to the psych ward because i swear, someone is going to put me in there if i dont. i cant leave my kids, but i briefly thought if i wasnt here to badger them and yell and scream like a nutty woman they would be better off. I would never ever leave them, but i thought if i just let my husband raise them they would be better. But to leave them would be way worse. My grandmother left 4 kids of hers because she had a breakdown and couldnt afford to feed them or clothe them, so she let them live with their rich father because she thought it was best for them. When i thought of that, i said i could never do that to them. I had 4 uncles and aunts i never knew until i was 20. I dont want to be like that. But i often wonder how much damage i am doing....i lose it often, and i mean LOSE it. I dont hit them, never ever, but i can scream and curse, its getting really bad.
post #58 of 107
It's NOT your fault it's the thyroid in overdrive. Did you that women used to be institutionalized because of it and most wasted away and died. It was often misdiagnosed as thisngs like bipolar disorder and schizopherenia. It's NOT your fault. If you got on the meds you need you would act and feel MUCH better. Hang in there.
post #59 of 107
oh mama- you areo not alone. no you should be on medication!!!!!!!
It is safe to bf on both meds- PTU or the other one...
I have. If that is the reason he is not giving you the rx- get another doctor. mine did go into remission after 1.5 years- then back after i had dd.
the reason he says it is pg induced is because our homromnes change during pg then they do not regulate after we have our babies. thyroid troubles are common postpartum,.
please go on amazon and get some books on it- or to the library. there is a group on yahoo.com also for graves disease....
get someone to help with your kids. i would call a local church or something and explain what is going on. also- start taking some vitamin b complex....
hugs mama. i have been there. it sucks sooo bad.
post #60 of 107
The dr said i could have ptu, but he thinks it will just disappear on its own in 6 months. I saw my GP today and we discussed how the beta blockers arent going to work because she isnt comfortable with giving them to me while nursing. SHe showed me her book where it said that most beta blockers will pass through the milk and the baby could experience slow heartrate and stuff like that while on it. I opted to not take it, and she was NOT comfortable giving them to me. I am certainly not comfortable taking them. Nothing else is working, not zoloft, and years ago i took buspar, and paxil, and then prozac, with bad side effects. so there really isnt anything else i can take, although she is researching it to see if maybe there is something. But she said the main problem is the thyroid, and she will be speaking to the endo herself to convince him not to wait 6 more months, due to the fact that there isnt anything i can take for the severe moods. I put in a call to the endo today but have not heard back. I am trying some chakra work to open up the throat area and im wearing a blue bead near my thyroid. Hopefully some energy work will help.
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