Just wanted to share my journey. I was diagnosed with graves disease in december of 2005. My TSH levels came back undetectable (lower than 0.001). My heart was racing out of control (it would jump from 120 to 220 in a matter of seconds), I lost weight, my mood was horrible, I passed out, I had trouble swallowing, I would sweat, I had severe insomnia...
I was put on PTU right away (while nursing). The only side effect I immediately felt was the HORRIBLE taste it leave in your mouth! After 3 weeks my body grew an allergy to it. My choices where IR, or a thyroidectomy. I absolutely didn't want to stop nursing my then 19 month old. I actually refused. I also refused the iodine tests too. I opted for the sub-total thyroidectomy. It took me about a week to start moving around after the surgery and about 5 months to get my voice back (just last month) to normal. I don't do well with anethisia, but other than that it wasn't too bad.
I was put on synthroid, which is also completely safe during breastfeeding. I take one tiny pill everyday and have my blood drawn every 6 weeks. I am currently at 1.88 TSH and I feel great. It was like an instant cure having the surgery! I felt happy, my husband couldn't believe the difference. I didn't NEED to eat every hour, my heart STOPPED racing and I could finally sleep!
I am now almost 6 months post surgery and I still feel great!
I was put on PTU right away (while nursing). The only side effect I immediately felt was the HORRIBLE taste it leave in your mouth! After 3 weeks my body grew an allergy to it. My choices where IR, or a thyroidectomy. I absolutely didn't want to stop nursing my then 19 month old. I actually refused. I also refused the iodine tests too. I opted for the sub-total thyroidectomy. It took me about a week to start moving around after the surgery and about 5 months to get my voice back (just last month) to normal. I don't do well with anethisia, but other than that it wasn't too bad.
I was put on synthroid, which is also completely safe during breastfeeding. I take one tiny pill everyday and have my blood drawn every 6 weeks. I am currently at 1.88 TSH and I feel great. It was like an instant cure having the surgery! I felt happy, my husband couldn't believe the difference. I didn't NEED to eat every hour, my heart STOPPED racing and I could finally sleep!
I am now almost 6 months post surgery and I still feel great!





Actually wrote that wrong, my TSH level is LESS than 0.01, so there is hardly any detectable. but it can also be postpartum the endo said, so it could go away in 6 months. I think what we are doing is nothing for 6 months to see if it goes away, but if theres a problem with the nodule, then we do something. I dont know if i want surgery, im scared of that actually lol. ive never had surgery except 3 c/s and i was awake for that. ive never been put under before.
I would never harm myself or my children, just the thought was there and i was behind the wheel and wanted to. I was still in somewhat of a right mind since i thought of my lovely children and thought of all the good i have brought forth into this world...how could i do something so devastating, so ridiculous and so selfish? MY breastfed baby needs ME! My older children need a mamma to sleep on at night. i could never hurt them that way, never. Thats why i had to get control of the depression. i dont want anyone thinking for a second that this is something that i want to do.

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to you too. I just feel completely nutso. every single day. I dont understand though----if i have pregnancy induced hyperthyroid(im not pregnant now but was last year) does it go away? i see you said you are on meds for it....does it ever go away, or sometimes does it stay? I dont understand if some people never get rid of it why he wouldnt want to make it better for me right now and give me something. Im planning on telling that endo if we dont do something now ill admit myself to the psych ward because i swear, someone is going to put me in there if i dont. i cant leave my kids, but i briefly thought if i wasnt here to badger them and yell and scream like a nutty woman they would be better off. I would never ever leave them, but i thought if i just let my husband raise them they would be better. But to leave them would be way worse. My grandmother left 4 kids of hers because she had a breakdown and couldnt afford to feed them or clothe them, so she let them live with their rich father because she thought it was best for them. When i thought of that, i said i could never do that to them. I had 4 uncles and aunts i never knew until i was 20. I dont want to be like that. But i often wonder how much damage i am doing....i lose it often, and i mean LOSE it. I dont hit them, never ever, but i can scream and curse, its getting really bad.
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