In search of answers as well ...Yeah, I feel your pain. I too get GBS flare ups. The first time it happened it was really bad and I did the whole antibiotic thing which did help get the worst of it under control but ended up causing yeast infections and a whole host of digestive problems including C-dif (which I wouldn't wish on anyone) and developing allergies to the antibiotics themselves. It took me over a year to recover from it all. If you are looking for solutions, I'd be wary of the antibiotic route. I tried probiotics as well but my digestive system wasn't too fond of them at the time.
One OB-GYN after another has said the same thing, nothing to be done about it and flare ups can be expected. They obviously don't suffer themselves and have no idea how bad it can be. They don't even bother to try to consider what may cause a flare up.
My latest flare up started after buying new underwear that weren't 100% cotton and I am getting some relief by not wearing underwear or at least loose-fitting boxer styles when I'm at home.
I see that flour has been mentioned in this thread earlier but suspect that not just flour, but all gluten products may be involved in throwing my own system out of balance. Sugar, yeah, also a likely candidate since sugar and gluten products often go together in our diets. But I'm going to have to look at "bad" carbohydrates as well since they are basically sugars.
Though I haven't been tested for a gluten allergy or celiac disease, I have my suspicions that this may be an underlying factor for me. If I have it, it would explain a lot. Celiac can also cause abdominal pain/bloating and cause infertility, both problems mentioned by women earlier in this thread.
But I do know that I have a mild case of hyperthyroidism, not bad enough to have to take any medication, but I suspect this hormone imbalance could be a reason I'm one of those women who does suffer from GBS instead of being one of the lucky ones who doesn't even know they are carriers.
And I've also had extremely low cholesterol in the past which can cause problems since your body needs cholesterol to produce some hormones. (Yes, it is possible to cholesterol levels that are too low.)
If you are in search of answers, I'd look into hormone imbalances. You can get your hormone levels tested next time you have your normal OB/GYN visit or a regular physical. If the results come back as being outside the normal range, your regular doctors may send you off to the endocrinologist to find out what may be the cause of your hormone imbalance or for treatment. Cholesterol should be one of the tests performed with any regular physical.
I also suggest doing your own research as to what "normal" hormone levels actually are. The old norm allowed for much higher numbers than what revised studies have indicated so if your doctor isn't keeping up with the times, he/she may tell you you're normal when you're not. And make sure to get a copy of all of your test results from your doctor. Empower yourself and avoid having doctors repeat tests that have already been done, possibly saving yourself time and money.
Gluten allergy and celiac testing I know less about since I haven't done them myself. But I'll be working harder at avoiding gluten and sugar to see if it can help with my most recent flare up.
Another thought I had was that perhaps too many alkaline or acidic foods could be to blame? Ph balance - could make sense.
Some other basic things to consider:
Make sure that your partner is clean before fooling around so that he doesn't throw your system out of balance with random bacteria. Even foreplay can cause problems if he doesn't wash his hands.
Drink a lot of water to keep your urinary tract clear.
And this one may seem a little crazy but could masturbating help produce more natural fluids to flush your system or help get the flora back in balance... as long as you don't introduce bad bacteria in the process? I don't know. I guess it would depend on why it is out of balance and it could just aggravate the symptoms by spreading things around. Could be a fun theory to test out though.
One thing I saw in previous comments that bothered me: the idea that using a tampon to "soak things up". All it would do is keep things trapped. It could give you temporary relief by keeping discharge away from the more sensitive outer areas, but long-term, is sure to make things worse by keeping bacteria trapped and stopping the natural process our bodies have for flushing things out.
I hope some of these ideas help others in their search for answers.