Is Leaky Gut not recognised by mainstream gut docs???I am so frustrated today I could cry. THREE weeks ago I finally went to a gut doc, despite TWO YEARS of this hell; I have been afraid to go fearing the tests they would run (invasive) and the prospect of being told (as I was in the past on an unrelated problem), "There is nothing physically wrong with you" when there is VERY MUCH SO something VERY WRONG. Ok, so doc I happen to get seems to actually listen to me (shock!) and actually does not immediately toss prescription orders at me to be filled (shock!), orders up a plethora of lab tests (I am so afraid to get that bill....), even gives me his card and tells me to call if I have questions or have a bad attack. Oh and gave me some advice to try something over the counter (that seems to be helping marginally).
Monday I got tired of waiting to find out about my tests, so I called. Spoke with a nurse who said all the tests look normal, that she's not sure why the doc hasn't 'signed off' on them, but that he's not in, she'll have him call me Tuesday. He didn't. Yesterday I realized I am rather depressed about hearing those tests were all normal- here we go again, "There is nothing physically wrong with you.....", so I start reading and researching more, and lo and behold, leaky gut sounds really really like I should be looking into that avenue. This morning I get a call from another? nurse asking, "Just calling to see how you are doing." WTF?!?! How am I doing? I am wondering what the hell all my tests say and mean, first off, I am wondering why the doc won't call me second off, no, I am not miracurously cured after 2 years of hell just by a simple office visit and some over the counter goop, third off. I asked her about Leaky Gut. "Hmmm. I have worked here for just about a year and I've never heard of that." WHAT?!?! A gastroenterology group, a nurse who stands in for a doc on calls to patients, and SHE'S NEVER EVER HEARD OF LEAKY GUT?!?!? WTF is going on?!?!? So I patiently (haha pun) explain that some of the symptoms sound a lot like me and I am curious what the doc's stance on leaky gut might be. At this point the conversation got sort of weird and strained, not overtly so, but enough that I felt I was carrying the whole conversation. They have me scheduled for a sigmoidoscopy in a few weeks. At the time he mentioned it during my appointment, I reminded him I'm pg, and he assured me that it was only a sig, that he'd be careful, that he wouldn't endanger my baby. Then I got home and read all the preparations I would have to do for that procedure, and it just really scares me with all the purging and enemas and other stuff that I've heard women do to INDUCE labor- I'm just not sure I want to do this while pg, YKWIM? I indicated to the nurse that I am not 100% sure today, at this moment, considering my pregnancy, that I am going to have that procedure next month. Oh my gosh I just finally remembered why she called- it was to ask me if I wanted to move that sig appt up sooner, per the doc, since 'you're not doing much better'. So I am leaving that appt as it stands, giving myself time to decide, but in the meantime I want to know if maybe we could do some testing toward the leaky gut aspect. She had no idea. She said for me not to be dismayed about my results, that she's pretty sure the doc will just order more blood tests so we can maybe find one that comes back abnormal and we can then look in that direction (wheeeee! more money I get to pay the lab).
So my main question after all that is: do mainstream docs view leaky gut as one of those wacked-out, fringe, granola-type "explanations" that they won't lower themselves to even mention let alone entertain or (forbid!) pursue???? Right now I am frustrated that the doc can't bother himself to call me himself- just seems rude to me. It seems I completely baffled the nurse with either my knowledge or my worry (oh, excuse me for wanting to know what's wrong with me and for being very very tired and fed up with having to deal with it and no one having a clue what it is). She acted like the next step is the sig and other than that we're at a standstill. Who knows if this reflects what the doc thinks, since I'm not speaking with him, only his proxy. Just seems all my fears of bastard mainstream docs (of which I've had quite a few experiences, thus my reticence to go to any doc) are coming true in this case as well, meaning money and time down the drain and no answers, just humiliation and frustration, feeling like I'm screaming into a void.