Wow - you guys have been chatty!
Jane...Thanks for the hugs. I'm fearful of Vitamin C as it tends to exacerbate all of my symptoms no matter what form/brand. This is also why I can't take multivitamins - they all contain Vitamin C. The only kind of C I have been able to take in the past was Acerola. It's in my kitchen cabinet and I've thought of taking it again but I'm nervous. At this flare state I don't want to do something that will worsen my symptoms.
A couple of things...
Raw milk - if you have any doubts about the safety of the milk you are buying, put it back. Where I live there are tons of sources (many from Amish farms) and my friends and I have created friendships with these sources. We visit the farms and spend time with the farmers and animals. Most of these farmers are opposed to becoming certified raw (this involves lengthy/frequent testing and filling out many forms) and I truly wish they'd just move forth with the procedure. But...it is what it is. That said, there are many MANY farms across the country that do offer certified raw and this, to me, is the best choice - particularly if the cows are Jersey and are 100% grass fed.
Social eating while on a special diet - For me this has been the hardest part to accept. My husband, daughter and I adore food and enjoy eating out. Clearly, this is not the best choice since about 8 out of 10 times either me or my dh feels like crap after we eat out - and this is with choosing the healthiest items on the menu. We're also social butterflies (at least Isadora and I are) and being so limited is difficult. Almost all of our close friends are into whole, organic foods, etc. and are knowledgeable about food sensitivities, so that helps but it's hard not to feel disappointed that I can't feel relaxed about eatng, always worrying about what's in this or that and scared that I'll eat something that will make me feel like sh!t. It's frustrating and annoying.
I want to plug that Optimal Digestion
book again. It was one of the best books I've ever bought (and I have developed quite a library, lol) on digestion/yeast/holistic health and I have used it frequently throughout the years.
One of the things that I've picked up from the book is that people who have experienced these issues in the past are much more prone to developing them again in the future, sometimes despite the person's best efforts. It seems as though we are now predisposed and must remain diligent to not lose sight of what can happen if we binge on *illegal* foods. I'm an example of this - cleared myself up, got pregnant and felt great regardless of what I ate (so I ate lots and lots of illegal foods like ice cream, carbs, etc.) and this was totally my downfall as I am now back to square one. Luckily I have a history with all of this (and much more information at my disposal) so I don't think it'll take me nearly as long to improve as it did the first go around - that's not to say it's any less frustrating now, particularly since I have a child now to worry about as well.
On that note, it's important to realize that we are all different even though we seem to be suffering from similar issues. What works for one person may not work for another. I've only had poor experiences with enzymes and have taken a bunch of different brands. They have caused severe stomach burning (much like I get when I use Vit C) and I have returned them to the stores they came from. I have not tried to get them specially compounded at a pharmacist so I don't know if that would make a difference. According to Optimal Digestion authors, some people who have badly irritated digestive tracts do react negatively to enzymes so it's important to go slowly with them.
And, I recall trying l-glutamine in the past and not loving it. I know it can cause constipation in some people and this can be a problem for me.
As for nystatin not working long term - well, I don't know. I took it my first go around and had great results but this time, not so much. I took it a few months ago and still don't feel all that fabulous. I think it's because yeast is not my big issue anymore...it's more about healing the lining of my gut as well as the lining of my bladder (having symptoms in both areas).
I want to look into this product
as it is one that Optimal Digestion authors highly recommend. I'd like to take this in conjunction with either Chlorella or Chlorophyll (I'd prefer the first but it could be too cleansing for me now) and hope that my husband and daughter can take them as well. Dh has a history of digestive woes (mostly ulcer related but who knows what it is now) and my daughter (who has not had these digestive issues in the past) has recently been complaining of a belly ache. I'm not sure if there's something truly going on with her or if she is just mimicing me since I'm frequently complaining about my gut. I'm leaning towards the former, though, since she's had some nasty poops the last few times and seems to be in one of those cycles of nasty poop one day, no poop for a day or two, belly ache/bad poop the next. Grrr. Poor thing.