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The Thyroid Thread - Page 4

post #61 of 1011
I haven't been diagnosed. My GP thought my symptoms were just from becoming a mother. But I had a m/c 6 months ago & haven't been able to get pregnant again and I'm tired all the time & have definite rage issues. So I think I'm going to go in and get tested.
post #62 of 1011
Quote:
Originally Posted by lotusbeans View Post
I've heard other people say they don't want to take a synthetic hormone - why not?
ALL synthetic hormones have side effects and are not as effective as your body's own hormone. Every major prescription hormone is chemically different from what your body makes (otherwise it can't be patented and there's no $ in it for the companies that manufacture it). I've heard some things about long term use of synthetic thyroid hormone being linked to liver problems.
post #63 of 1011
Well wouldn't the Armour Thyroid also be considered "different" from human thyroid since it comes from pigs? Is it better because it's at least from a living, breathing mammal rather than a test tube?
post #64 of 1011

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Edited by lotusbeans - 3/16/14 at 12:48am
post #65 of 1011
Definately interested in this thread. Thank you for starting it. Hypothyroidic here for around 10 years. Had tonsils taken out when I was little too. My Dad has it. Don't know much about a hereditary link. The weight gain, dry skin, hair loss, and lack of energy have all been symptoms I have battled on and off with for a long time. My dosages are changed usually every three months. I noticed when I was on Levoxyl, my symptoms increased and when I went back on Synthroid, I was a lot better. I believe it is because generics do not have the same quality control on dosing per pill that a namebrand does. I have researched it a bit and like many other drugs out there, no matter what the doctors or pharmicists say, there IS a big difference between a generic and namebrand drug. I have found for me, one of the keys to maintaining a consistent "normal" feeling, I take Synthroid at the exact same time every day. I have dabbled and researched with alternative remedies but so far no luck with any combo I've tried. So I always end up going back to the drugs. Depressing.


DC
post #66 of 1011
Quote:
Originally Posted by dallaschildren View Post
I noticed when I was on Levoxyl, my symptoms increased and when I went back on Synthroid, I was a lot better. I believe it is because generics do not have the same quality control on dosing per pill that a namebrand does.
Just FYI, Levoxyl is not a generic. It's a different name brand drug. I switched to Levoxyl from Synthroid because Synthroid has lactose in it and I'm lactose intolerant. It's probably not enough to bother me but I figure if you're going to be on a drug for life you might as well have it be lactose free. It's hard for me to tell if I feel better/worse on the Levoxyl since I'm still a bit wacked out from being postpartum.
post #67 of 1011
I'm hypo and have been for many years. I was taking synthroid and now I'm taking the generic.

I've had no side reactions to the synthetic that I'm aware of.

I am still nursing DD #1 at 2 1/2 and am 32 weeks prego with #2.

I've had a LOT of trouble getting dosages settled. I seem to be stable when I'm pregnant but AFTER- my dosages went up like 4x! We'll see what happens this time.

I had no issues with getting pregnant. No problem at all and no BFing issues. I also pumped when I went back to work.

My cousin is hyperthyroid is facing either surgery or radioactive removal of her thyroid (too bad we can't share). She ended up having MAJOR issues with BFing due to the thyroid problems. Her milk just never came in. She tried EVERYTHING. Hopefully, by the time she's ready for #2- she'll have the hyperthyroidism taken care of. She was diagnosed once she became pregnant...
post #68 of 1011
Quote:
Originally Posted by cloak View Post
Just FYI, Levoxyl is not a generic. It's a different name brand drug. I switched to Levoxyl from Synthroid because Synthroid has lactose in it and I'm lactose intolerant. It's probably not enough to bother me but I figure if you're going to be on a drug for life you might as well have it be lactose free. It's hard for me to tell if I feel better/worse on the Levoxyl since I'm still a bit wacked out from being postpartum.
Oh. I was under the impression Levoxyl was the generic of Synthroid. Hmmm. So what is the generic name of Synthroid then?
:

Aha! The names are pretty similar and that is maybe why I am confused???? The generic for BOTH levoxyl and synthroid is Levothyroxine.
http://thyroid.about.com/b/a/094626.htm Another screw up by my physician. Figures.
post #69 of 1011

Immunity to Armour

My ND suspects that my body has developed an immunity to the pig tissues in the Armour, and is going to try Thyrolar next. Has anyone heard of this happening? She is trying to lower my antibodies. I am still symptomatic, so it is a little frustrating...
post #70 of 1011
Hi everyone.I thought I posted on this thread before but I guess didn't.I have Hashi's hypothyroidism.I was diagnosed with hypo about 18 months ago,and just recently diagnosed with Hashi's.I'm on 75mcg of levothyroxine,and I still feel horrible.Headaches,chest pain(I had tests to rule out heart problems),all over aches,depressed,and so exhausted.I just started on antideppressants to see if that helps my mood at all.My TSH is around 1.7.I just had an ultrasound on my thyroid today.Does anyone know what they may suggest if they find it's enlarged?I'm just sick of feeling this way.I don't know what to do.TIA.
post #71 of 1011

 


Edited by lotusbeans - 3/15/14 at 10:49pm
post #72 of 1011
bumping to join and sub
i'm hypo, have been for 12-ish years now, not currently on meds but will probably be back on synthroid in the near future. i didn't know that rage was a symptom, but that could explain why i've been so snippy with dd lately :
post #73 of 1011


My hyperthyroid was discovered when my first ds was 9months. The endo thought it was pp tyroid condition, but then I got pg just a few months after that and it went away during that pg. Then when ds2 was born it came back. One yr pp after ds2 he decided it was Graves and not going away : . I cant think of what I take right now, but I do have my tonsils, but I have been diabetic for 10yrs if that makes a difference (endo says it does).

My ques is to those who have done the iodine thing. My endo wants me to do it, but last time he brought it up I was still nursing so I said no way. What is the advantage to it? doesn't it make you hypo? If I become hypo will I gain a bunch of weight?
post #74 of 1011

 


 

 

 


Edited by lotusbeans - 3/15/14 at 8:50pm
post #75 of 1011
just wanted to say hi, it has been helpful to read yalls experiences... I had no clue that I was hypo, just thought that being really tired and grumpy was part of having a baby!! Then I got diagnosed (endo said PP thyroiditis) when DD was 4 mo, w/ TSH over 200 and T3 and T4 almost 0, so now on synthroid... and feel 500% better.

CyndyRR327, I don't know anything about iodine test, but I don't think you necessarily gain weight if you're hypo, although that is a common symptom... I had a normal weight when I got diagnosed, although I have lost some since starting the meds.
post #76 of 1011
Quote:
Originally Posted by purplegirl View Post
I still have my tonsils but struggle with a huge thyroid and am hypo
What does it mean, to have a "huge thyroid"?
post #77 of 1011
Quote:
Originally Posted by Metasequoia View Post
What does it mean, to have a "huge thyroid"?
I had my thyroid removed two weeks ago. The doctor said it weighed one pound. So I'd say that's pretty huge!
post #78 of 1011

wow

1 lb? wow! that is huge... :
post #79 of 1011
What I mean is, how do you tell? Can you tell by feeling your neck/throat? What is your neck/throat *supposed* to feel like?
post #80 of 1011
Hypo here... for 7-8 years. Diagnosed at a routine physical shortly after my older sister was diagnosed with a goiter. Mainly was seeing my family practitioner, then the reproductive endo (for atypical PCOS), then the OB once I was pregnant and back to the family prac. So, in all that whirlwind of switching providers I was going through many dose changes/thyroid swings. I finally asked for a referral to an endocrinologist and he has been wonderful!

The biggest change was telling me to make up missed doses. With two kids under three I was missing 1-2 pills per week. The family doc said just skip them if you don't remember until the next day. He said take the missed doses as soon as you realize they were missed - up to three at a time. Also he was much more open to keeping me at the low end of normal for TSH. Family doc said as long as it is in the lab's normal range you are fine (TSH up to 5!)

I do still feel like crap, but I have a 3 yo, nursing an 18 mo and pregnant, so I suppose I can't expect to feel all wonderful Also have been running kind of hyper lately (TSH <0.2) which they want for pregnancy, but it interferes with sleep, so am I tired from the kids, the pregnancy or just not sleeping well??

Anyway, to add on to a few of the earlier comments. The endo says to use Sythroid, Levoxyl or Levothroid ONLY and stick with one of them. The problem with the generics isn't so much that they are bad, but that you need to stay on the same brand. Once you say generic is OK, you may get generic company A the first time then generic company B the next and so on and that can really mess things up.

I still have my tonsils and so does my sister, so I'm not sure of a connection there.
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